Hi Karen,

 

Haven't spoken to you in a couple of months, how is your progress going????  I would love an update, I have been using the iodine now since the middle of March and am seeing growth!!!  YEAH!!!!  I have been thinking about you and wondering how things were going....Take Care....Renee'

Karen Gentile <caryn000512@...> wrote:

Hi Misty

 

I am so sorry to hear about your son.  I have Alopecia Areata and live in Northfield, Ohio.  I see a dermatologist in Independence, Ohio - her name is Dr. Mary Sivik at Northcoast Dermatology on Rockside Road.  I luv her.  She is the most kindest doctor I have ever run across.  I was a total basket case last year when first diagnosed and she is a very compassionate doctor.  I haven't had a problem with insurance paying for anything.  If you need to talk Misty I'm here for you.  Please email me directly at caryn000512@... and I will give you my cell phone number. 

Misty Lester <dmkd140@...> wrote:

Hello everyone.  I am new here.  My 5 year old son was diagnosed
with AU about 2 weeks ago after all kinds of blood testing that went
on for about a year.  They poked and prodded him to test for
everything they could think of.  As if it already wasn't hard enough
on him to lose all of his hair.  He started to lose the hair on his
head a year ago and was sent to children's hospital.  They tested
for thyroid problems, for lupus, and for rhuematoid arthritis.  Well
then ALL of his hair started falling out.  Then his eyebrows and
eyelashes.  I brought his lack of hair on his arms and legs to the
attention of the doctors then but they blew me off.  His insurance
company refused to pay for his doctors visits because they said
that "It's not a medical necessity."!!!  If they had a 4 year old
with no hair then would it be a necessity?  I tried to get him into
the hospital again but they wouldn't see him until this summer
because they are already booked up. So I found a doctor that would
see him and guess what More Blood Tests.  That is terrifing for my
son but all I care about is finding out what is wrong.  This doctor
finally diagonosed him with AU after thousands of dollars spent on
doctors and steroids with no result.  He is going to see a Dr. Wilma
Bergfeld in Cleveland Ohio in July.  Do any of you know anything
about her?  They said that she is the best in the state on the
subject of alopecia but I have also read bad things about her too. 
I am so scared of my son not getting the medical care he deserves
because AU is so rare and the doctors don't see it very often.  He
has already showed signs of mental problems from haveing no hair. 
He was 4 years old and saying " I don't care if I kill myself"!!!!! 
I don't even know where he heard something like that.  Please help
us find resources on this condition.  Sorry this post is so long but
I am begging for anyones help.  By the way I am in Ohio.

---

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1�/min.