alkaptonuria-society : Alkaptonuria Society

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This group provides news from the Alkaptonuria Society, a charity that promotes research and awareness about Alkaptonuria, a genetic disorder.

AKU e-news: online communities, launch of National AKU Service, new Dear AKU friends, We have some very good news for you as we continue our quest to find a cure and help patients with AKU (short for Alkaptonuria), a rare Posted - Tue May 22, 2012 9:46 am	Nick Sireau nick@... Send Email
The AKU Society is recruiting: Patient Support Officer Please share this email widely among your contacts: * * Patient Support Officer - AKU Society * * The AKU Society is recruiting for a new position, a Posted - Thu Mar 8, 2012 12:22 pm	Nick Sireau nick@... Send Email
News release: Liverpool to be Centre of Excellence for AKU Dear AKU friends, Here's a preview of some exciting news for AKU that we're announcing publicly tomorrow (Wednesday), on Rare Disease Day, as we've just heard Posted - Tue Feb 28, 2012 7:23 pm	Nick Sireau nick@... Send Email
AKU e-news: funding, workshops, research... Dear AKU friends, We've got some exciting news for you this month... AKU team works on funding for international clinical trial We heard last week that Posted - Mon Dec 12, 2011 12:47 pm	Nick Sireau nick@... Send Email
Buy my new ebook and help AKU / support our marathon runner for AKU Hi everyone, Two opportunities to support AKU: either buy my new book, or sponsor Andres as he runs a marathon this weekend. Or even better: do both! *1. Buy Posted - Wed Nov 16, 2011 5:11 pm	Nick Sireau nick@... Send Email
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