Hi Everyone, my name is Suzie and I Have a question for Canadian families .We applied for Disability tax credit and were told that Michele's(4-AHC) Disability...
stan urge
blava0069@...
Feb 5, 2002 2:57 pm
987
Hi,Im david piersig,ashley is 13 AHC and Im not in Canada but most State and goverment groups around the world don't know enough about this AHC and reject all ...
MANEEXP@...
Feb 5, 2002 3:25 pm
988
Does anyone have recommendations about successful speech therapies they have used with their kids? I remember an email not too long ago referencing something...
Hi David, Do you have recommendations for state/fed gov assistance in the US? I have worked with my state Dept of Health to access info but not found alot of ...
Karen, We have received all our info regarding assistance programs through our local County Social Services Department. You should be able to look in your...
Hi Suzie, My friend is a CA in Canada and also has a daughter with CP. I referred your question to him and this is his response. If I remember it correctly...
Look into something called a medicaid waiver. They have them in different categories - mental retardation (MR waiver), developmentally delayed (DD waiver),...
JIMMYAHC@...
Feb 6, 2002 2:12 am
993
Hi, suzie,Well we just moved to new jersey from Phil pa.and we had to do all the paperwork all over again.DDD helped,NJ medical assistance,we got a Medicaid...
MANEEXP@...
Feb 6, 2002 5:35 pm
994
Hi, well speech has always been a problem. We work all the time w/her trying to have her speak slowly and use pictures and watching our mouth move and use the...
MANEEXP@...
Feb 6, 2002 5:46 pm
995
Hi David, my Ashleigh basically sounds the same, she is 10. She has speech therapy once a week and drooling is a big problem at this stage. When no paralysis...
Tim Powell
tpowel6@...
Feb 6, 2002 7:45 pm
996
To the Powells,Thank you for your response, IM glad to hear you have the faith, it is the best way to help everyone in all situations. Your ash and my ash...
MANEEXP@...
Feb 6, 2002 9:26 pm
997
Hallo everyone, Thanks for all the tips.We are going to appeal and basically start the process all over again with more documentations from Michele's...
stan urge
blava0069@...
Feb 7, 2002 3:49 pm
998
Hi, Please change. I have a new email address: laegan6@... I will have this account until the end of February. [Non-text portions of this message...
Suzie, Our family lives in Burlington, Ontario. We did not get the tax credit when our daughter, now 20, was younger ( I think we were not eligible for other...
Don Kilpatrick
kilpatri@...
Feb 7, 2002 10:08 pm
1000
Etudiante infirmière, je fais mon mon travail de fin d'études sur: "L'importance du toucher/massage auprés d'une personne hémiplègique" Vous qui êtes...
aline chartier
prynces85@...
Feb 8, 2002 3:31 pm
1001
Mary Kay, Is your son going to try Camp Courage this summer? We just got the registration info in the mail and the spots are filled on a first come first...
I just sent in registration for two weekends of respite care at Camp Friendship in Annandale. Their week long camp info doesn't come out until March. Also,...
Mkderks@...
Feb 9, 2002 5:48 pm
1003
Hallo Janet, Michele's doctor is Dr.Ronan at the Chedok Mcmaster Hospital in Hamilton.When he first diagnosed Michele 4 years ago with AHC he told us that he...
Camp Courage is by Maple Lake, Minnesota. Probably not too far from you if I remember right. I should check into Camp Friendship for Jennie. She enjoys camp...
J'aimerai faire mon travail de fin d'études sur "l'importance du toucher/massage auprés d'une personne hémiplègique". L'épanouissement de la sensibilité...
aline chartier
prynces85@...
Feb 12, 2002 9:47 pm
1006
Hi Everyone, I remember someone talking about this therapy and it being successful with their child. If anyone knows more about this therapy and specifically...
Karen, my daughter has been receiving craniosacral therapy for about 6 mths. I had posted earlier asking if anyone else has tried it and got one response that...
I signed him up for the July 12, 13, and 14 and July 26, 27 and 28. These are for the respite weekends. The camp info comes out in March and he will probably...
Mkderks@...
Feb 16, 2002 4:13 am
1009
I know we all talked about behavior. We have noticed that when our son is going to be going somewhere (ie spending the night at grandparents house) or going...
Dear Roberta, My Ashley is 13 yrs and at times does the same thing, sometimes she does it in school, or at home at times when she is tired. I also look at the...
MANEEXP@...
Feb 18, 2002 8:17 pm
1011
Chad is 13yrs old also. He is on the following meds; Klonopin, Gabitral, Haloperdil, Verapamil, Paxil. He is an ese class in school. Meds have not increased....
Hi Everyone My son Alec (almost 4) has the same behavior problems at times completely out of the blue. Most of the time he is tired or really excited. Some...
Renny001@...
Feb 19, 2002 3:05 am
1013
Hi Kelly, My daughter, Addie, is 2.5 yrs old and was diagnosed w/AHC at 2yrs. She had her 1st event at 3 mos and it looked just like a tonic seizure that...
Kelly, I forgot to mention this about Addie's behavior.... As infant, she was extremely easy and after phenobarb started at 3mos, she was very 'sedated' for...
Roberta, My daughter Jennie, age 14, sees a psychologist. She sees someone that deals with kids with chronic illnesses. She helps her work on dealing with...
