Greetings Folks, Our son Ian (age 9) also needs the weight of a heavy blanket for sleeping at night. However, he also needs his clonazepam (klonipin). He has...
9730
Katrina Sliwka
katrinaplum
Apr 15, 2012 6:06 pm
Hi there. I need Lynn egan's proper address. Delaney's square just got returned in the mail. Thanks! [Non-text portions of this message have been removed]...
9732
Vicky Azaksken
azakoul
Apr 22, 2012 3:06 pm
Hi everyone, Well, we got got out of the hospital again...Tony was having hemiplegia attacks on his right side from the 13th-15th of this month and then on...
9733
Katrina Sliwka
katrinaplum
Apr 22, 2012 5:06 pm
My daughter delaney weighs 32lbs and takes 15 mg of Sibelius. Best of luck and health to tony. Katrina ... [Non-text portions of this message have been...
9734
Roxanalopez
roxielopez78
Apr 22, 2012 6:11 pm
My son Luke is 3 and takes 10mg in the am and 10 mg in the evening. Hope Tony is better. Sent from my iPhone...
9735
Ragga Hjaltadottir
raggahjaltad...
Apr 22, 2012 10:29 pm
Sunna is 6 years old and is tall for her age and weights 28 kilos (don't know how much that is in lbs) and she is currently taking 15 mg of Flunarizine...
9736
SMG
roosky41
Apr 24, 2012 3:17 pm
My name is Stacy and we live in Michigan, USA. We have a three year old son named Rory who was recently diagnosed with a mild case of AHC. He had been showing...
9737
khadijat21@...
khadijat21
Apr 24, 2012 3:21 pm
Hello Stacy, Nice to have you in this group. I hope you will benefit from the group as much as I have. Our son, Abdulhaseeb (8) is also making good progress...
9738
Vicky Platt
ahcplatt
Apr 24, 2012 4:02 pm
Hi Stacy and welcome to the Yahoo Group; it is a helpful and welcoming group. Please post any questions as this is a safe environment as you will come to...
9739
Brenda
brendals76
Apr 24, 2012 4:15 pm
HI Heather I rarely get migraines, but when I do, if they are severe, I take Maxalt Wafers - they are amazing and fast acting. Interesting that a number of...
9740
Shannon Grady
shanleigh85
Apr 24, 2012 4:18 pm
Hi Stacy! Welcome to the group, my daughter Keira is 2.5 years old and was diagnosed at 8 months old. She is now in a pre-school and is learning a lot of new...
9741
Brenda
brendals76
Apr 24, 2012 4:21 pm
HI Kim, My name is Brenda, I am from NSW, Australia. I have a ten year old son, Joel with AHC, and a 14 year old daughter without AHC. To my knowledge,...
9742
SMG
roosky41
Apr 24, 2012 5:31 pm
Thank you for the warm Welcome. Vicky, I happen to be a U of M fan. It looks like we will be having a healthy rivalry. ;) LOL...
9743
JIMMYAHC@...
dennis_kiern...
Apr 24, 2012 6:14 pm
It's more surprising that we don't all have migraines (kidding). When first dealing with AHC about 17 yrs ago, I remember questionairres regarding things like"...
9744
Katrina Sliwka
katrinaplum
Apr 24, 2012 9:48 pm
Hi Stacy, My daughter delaney (3 1/2) has AHC and I am originally from Riverview, Mi but now live in Vermont. However we will be inmichigan at the end of may...
9745
MaryKay Riley
marykay12of12
Apr 25, 2012 1:08 am
When Nick got the diagnosis of AHC at age 2 1/2 in 1992 migraines were also mentioned. His diagnosis had come from a dr here in Mpls that had worked with a dr...
9746
Brenda
brendals76
Apr 25, 2012 2:33 am
When Joel was diagnosed in 2004 our Paediatric Neurologist said that it was "Thought" that the disorder had some link to migraines, and we too were asked the...
9747
Brenda
brendals76
Apr 25, 2012 2:41 am
Hi all, Just wanting to get some insight as to how you get around with our AHC children. Joel is 10 now, and although small for a ten year old, I am not that...
9748
Shannon Grady
shanleigh85
Apr 25, 2012 1:41 pm
Hi Everyone - I misjudged how much Flunarizine I had left for Keira and am now down to a week's supply. Her doctor has still not sent the rx to Northwest...
9749
Christine Morris
christine.mo...
Apr 25, 2012 1:49 pm
Shannon I can send someChris MorrisPlease call me 630-437-0939 if you still need we are in Chicago To: afha@yahoogroups.com From: shanleigh85@... Date:...
9750
SMG
roosky41
Apr 25, 2012 2:01 pm
Katrina, what days will you be in Michigan? It would be wonderful to meet another AHC family and get the kids together! We live in the Battle Creek/Kalamazoo...
9751
Heather
hossanova2000
Apr 25, 2012 8:37 pm
Hi Brenda, we have had a wheelchair van (Chevrolet Venture with Braun foldout ramp lowered floor) for 8 yrs. It is manual pull out ramp which means no power...
9752
Heather
hossanova2000
Apr 25, 2012 9:51 pm
Hi Stacy, welcome! We live in NW Ohio Near Toledo. Our daughter, Jocelyn, is 13. If you'd like meet sometime, let us know. Heather ... [Non-text portions...
9753
Heather
hossanova2000
Apr 25, 2012 9:58 pm
Hi Brenda - Thanks for info on maxalt. I just tried verapamil (calcium channel blocker used to treat migraines as well as blood pressure,etc). I had to stop...
9754
Becky S.
take2xcess
Apr 26, 2012 1:14 am
Jake's Flunarizine was held up in customs one time and he went without it for about 2 1/2 - 3 weeks, it took months for him to recover. I too had thought it...
9755
Becky S.
take2xcess
Apr 26, 2012 1:23 am
We have gotten some ffrom Sharon with the AHCF, she got it to us very quickly and she had enough to last us for about 6 weeks. Her phone number is 313-663-7772...
9756
Katrina Sliwka
katrinaplum
Apr 26, 2012 1:14 pm
Hi Stacy, We will actually be heading to chicago for my sister's wedding over memorial day weekend. Do you live near interstate 94? We will be driving through...
9757
SMG
roosky41
Apr 26, 2012 3:10 pm
Heather, I would love to meet up with you sometime! Toledo is a little over a two hour drive from our house. Not bad at all. If you would like to connect, my...
9758
SMG
roosky41
Apr 26, 2012 3:11 pm
I just sent you an email so we can connect. Let me know if you didn't receive it!...
9759
Brenda
brendals76
Apr 28, 2012 5:39 pm
Hi Vicki Joel is 10 and weighs 22kg. He takes 10mg bd (so 20mg/day). He has been on this dose for a number of years now. Joel also takes Epilim and Tegretol...
