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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)

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Messages 9721 - 9751 of 10516   Oldest  |  < Older  |  Newer >  |  Newest
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9721 Hannah Garnet
hannahgarnet Send Email
Apr 12, 2012
6:41 pm
Dennis, you are absolutely correct. Hannah To: afha@yahoogroups.com From: JIMMYAHC@... Date: Thu, 12 Apr 2012 14:30:11 -0400 Subject: Re: [ahc] Honeymoon...
9722 MaryKay Riley
marykay12of12 Send Email
Apr 12, 2012
6:49 pm
Dennis, well put. Also, we need to remember that even thought our kids have this medical condition, they are still kids and many times we should look at what...
9723 Paige
paigeashworth Send Email
Apr 13, 2012
2:25 am
It's awful. He is so inconsistent and impulsive. People blame it on behavior since he appears smart. No matter how much I tell them. They now want to put him...
9724 MaryKay Riley
marykay12of12 Send Email
Apr 13, 2012
3:11 am
There are so many things to say here. At that age Nick too had many problems. However, I think alot of i had to do with the teachers, staff around him. When...
9725 Paige
paigeashworth Send Email
Apr 13, 2012
3:14 am
Thank you. It's just so frusterating. I feel I am always taking up for him and trying to explain why he is so different. Sent from my iPhone...
9726 Kcventi
popcornkcv Send Email
Apr 13, 2012
1:39 pm
You should find a really good psychologist who can conduct a THOROUGH Functional Behavior Analysis. Find one without existing ti to your school district ,...
9727 Vicky Platt
ahcplatt Send Email
Apr 13, 2012
2:43 pm
Paige, Hi. I hope you will be coming to the Family Meeting in San Francisco this year. Alice Belgrade will be speaking at the meeting on behavioral issues as...
9728 Meg Krenn
megkrenn Send Email
Apr 13, 2012
4:02 pm
Hi Katrina, The first year of Emory's life we thought she was having seizures, like many of our AHC kids. We tried five or six different benzodiazepine drugs...
9729 gppalmerino Send Email Apr 13, 2012
4:52 pm
Greetings Folks, Our son Ian (age 9) also needs the weight of a heavy blanket for sleeping at night. However, he also needs his clonazepam (klonipin). He has...
9730 Katrina Sliwka
katrinaplum Send Email
Apr 15, 2012
6:06 pm
Hi there. I need Lynn egan's proper address. Delaney's square just got returned in the mail. Thanks! [Non-text portions of this message have been removed]...
9732 Vicky Azaksken
azakoul Send Email
Apr 22, 2012
3:06 pm
Hi everyone, Well, we got got out of the hospital again...Tony was having hemiplegia attacks on his right side from  the 13th-15th of this month and then on...
9733 Katrina Sliwka
katrinaplum Send Email
Apr 22, 2012
5:06 pm
My daughter delaney weighs 32lbs and takes 15 mg of Sibelius. Best of luck and health to tony. Katrina ... [Non-text portions of this message have been...
9734 Roxanalopez
roxielopez78 Send Email
Apr 22, 2012
6:11 pm
My son Luke is 3 and takes 10mg in the am and 10 mg in the evening. Hope Tony is better. Sent from my iPhone...
9735 Ragga Hjaltadottir
raggahjaltad... Send Email
Apr 22, 2012
10:29 pm
Sunna is 6 years old and is tall for her age and weights 28 kilos (don't know how much that is in lbs) and she is currently taking 15 mg of Flunarizine...
9736 SMG
roosky41 Send Email
Apr 24, 2012
3:17 pm
My name is Stacy and we live in Michigan, USA. We have a three year old son named Rory who was recently diagnosed with a mild case of AHC. He had been showing...
9737 khadijat21@...
khadijat21 Send Email
Apr 24, 2012
3:21 pm
Hello Stacy, Nice to have you in this group. I hope you will benefit from the group as much as I have. Our son, Abdulhaseeb (8) is also making good progress...
9738 Vicky Platt
ahcplatt Send Email
Apr 24, 2012
4:02 pm
Hi Stacy and welcome to the Yahoo Group; it is a helpful and welcoming group. Please post any questions as this is a safe environment as you will come to...
9739 Brenda
brendals76 Send Email
Apr 24, 2012
4:15 pm
HI Heather I rarely get migraines, but when I do, if they are severe, I take Maxalt Wafers - they are amazing and fast acting. Interesting that a number of...
9740 Shannon Grady
shanleigh85 Send Email
Apr 24, 2012
4:18 pm
Hi Stacy! Welcome to the group, my daughter Keira is 2.5 years old and was diagnosed at 8 months old. She is now in a pre-school and is learning a lot of new...
9741 Brenda
brendals76 Send Email
Apr 24, 2012
4:21 pm
HI Kim, My name is Brenda, I am from NSW, Australia. I have a ten year old son, Joel with AHC, and a 14 year old daughter without AHC. To my knowledge,...
9742 SMG
roosky41 Send Email
Apr 24, 2012
5:31 pm
Thank you for the warm Welcome. Vicky, I happen to be a U of M fan. It looks like we will be having a healthy rivalry. ;) LOL...
9743 JIMMYAHC@...
dennis_kiern... Send Email
Apr 24, 2012
6:14 pm
It's more surprising that we don't all have migraines (kidding). When first dealing with AHC about 17 yrs ago, I remember questionairres regarding things like"...
9744 Katrina Sliwka
katrinaplum Send Email
Apr 24, 2012
9:48 pm
Hi Stacy, My daughter delaney (3 1/2) has AHC and I am originally from Riverview, Mi but now live in Vermont. However we will be inmichigan at the end of may...
9745 MaryKay Riley
marykay12of12 Send Email
Apr 25, 2012
1:08 am
When Nick got the diagnosis of AHC at age 2 1/2 in 1992 migraines were also mentioned. His diagnosis had come from a dr here in Mpls that had worked with a dr...
9746 Brenda
brendals76 Send Email
Apr 25, 2012
2:33 am
When Joel was diagnosed in 2004 our Paediatric Neurologist said that it was "Thought" that the disorder had some link to migraines, and we too were asked the...
9747 Brenda
brendals76 Send Email
Apr 25, 2012
2:41 am
Hi all, Just wanting to get some insight as to how you get around with our AHC children. Joel is 10 now, and although small for a ten year old, I am not that...
9748 Shannon Grady
shanleigh85 Send Email
Apr 25, 2012
1:41 pm
Hi Everyone -   I misjudged how much Flunarizine I had left for Keira and am now down to a week's supply. Her doctor has still not sent the rx to Northwest...
9749 Christine Morris
christine.mo... Send Email
Apr 25, 2012
1:49 pm
Shannon I can send someChris MorrisPlease call me 630-437-0939 if you still need we are in Chicago To: afha@yahoogroups.com From: shanleigh85@... Date:...
9750 SMG
roosky41 Send Email
Apr 25, 2012
2:01 pm
Katrina, what days will you be in Michigan? It would be wonderful to meet another AHC family and get the kids together! We live in the Battle Creek/Kalamazoo...
9751 Heather
hossanova2000 Send Email
Apr 25, 2012
8:37 pm
Hi Brenda, we have had a wheelchair van (Chevrolet Venture with Braun foldout ramp lowered floor) for 8 yrs. It is manual pull out ramp which means no power...
Messages 9721 - 9751 of 10516   Oldest  |  < Older  |  Newer >  |  Newest
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