Please note that my e mail address has changed to Ockman5@.... The change will take place this month. I would like to start getting my e mails at that...
Jennie is 14 and we are seeing some new things with her and I'm wondering if anyone else has experienced this. She has always had double vision at time but...
Marcia, Chad is 13yrs old he also has the shaking in both legs when just sitting. Some times I will Tell him to take several deep breaths, the shaking tends to...
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MANEEXP@...
Jan 4, 2002 11:18 pm
Hi all, this is Ashley's father Dave she is 13, well because of the behavior effects of clanazpan(spelling?) we slowly took her off the med. and she is so bad...
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Kevin Prunty
prunty58@...
Jan 4, 2002 11:22 pm
Marcia, Mary has the same thing with her leg bouncing. The neurologist said that it is an involuntary action caused by neurological damage. Usually, if we...
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Don Kilpatrick
kilpatri@...
Jan 5, 2002 3:17 am
Marcia Our daughter, now 20, has had this tremor off and on for several years now. I think the doctor said it was called clonus. It usually happens when she...
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Mkderks@...
Jan 5, 2002 5:56 pm
I have seen this occasionally with Nick also. I also think Dr. Janousek has seen it with Nick. Nick's seems to be able make his leg do this when he flexes his...
How slow did you go? Depending on who long she was on the drug should determine how long it would take to come completely off it. Does she have a pattern when...
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MANEEXP@...
Jan 5, 2002 8:22 pm
Hi, yes we took our time,she has no pattern but after three days she seems ot be comming around.we now look to the tenex prug and see if it helps,any thoughts ...
I brought this to the attention of Tracy at Dr. Janousek's office last Friday and am waiting to hear back from them. I'll let you know if I get any...
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MandM421@...
Jan 8, 2002 8:09 pm
Hello everyone this is Mindy Hailey's Mom...Hailey will be turning 5 in 2 weeks... Ok here is my question......we just came home from Hailey's neurologist and...
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MandM421@...
Jan 9, 2002 2:28 pm
Dave how weird we are both asking about Tenex Mindy...
Hello everyone...This is Karen V., Addie's mom. Does anyone's child jerk during an attack? SOmetimes Addie's eyes flutter wiht body tremors and subside...
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MANEEXP@...
Jan 12, 2002 2:18 am
OK, this sounds like you need to get as much info as u can in a short time frame. Our Ashley is now 13 . Yesterday was her 13th birthday and we are so glad...
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Renny001@...
Jan 12, 2002 3:46 am
Hi Karen Alec had the flu last January(a year ago tomorrow) he had a great deal of difficulty walking for quite some time after. His legs seemed somehow ...
KV, The turning blue, jerking from head to toes, sounds more like seizures than the ahc. Did she sleep any after the er visit. Our son has seizures also. You...
Hi Kelly, I am sorry to hear Cameron may be going through the same issues. Is she having a PET at CHildren's? If there is anything I can do to help, please ...
Hi Karen, I can't really address the issues as you describe but it sounds like you got some good information from families who know. As for communication, we...
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MandM421@...
Jan 12, 2002 9:53 pm
Nobody knows anything about Haldol or Tenex ????? Mindy...
Hi Mindy, I've never heard of Tenex. Haldol was suggested to us in 1993 (I was just cleaning out files and found the information). After researching the drug,...
963
Renny001@...
Jan 13, 2002 4:28 am
Hey Karen Camryn had her Pet on Monday at Childrens. It showed almost exactly the same as Alecs test did which doesn't give us a warm feeling. She is still...
Hi Kelly, Please let me know if any of the testing helps with conclusions. Children's opted out of the PET testing for Addie. They were going to do this and...
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Renny001@...
Jan 15, 2002 1:11 am
Hi Karen Just got home from Childrens today. I'm not sure what the genetic and metobolic work up is. I do know it consisted of alot of blood samples taken ...
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yvonne3
yvonne3@...
Jan 15, 2002 4:52 am
Karen, Kristen has seizures and she does the same type of things. She will have a episode where she's playing will get jerky and after resting she stops....
Hi Yvonne, I think I have asked you thiese questions this past summer when we had what we thought were seizures while on vacation. THanks for getting back to...
Hi Karen, We tried Keppra for Alex (4) with no side effects however it did not help to control the seizures. A good side effect of Keppra however, is it ...
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Kevin Prunty
prunty58@...
Jan 15, 2002 8:25 pm
Karen, We recently tried my daughter Mary (age 15) on Keppra. She became very agressive with pinching and biting. They did not like it at school at all! Carol...
Hi everyone, Our daughter, Jocelyn, receives Physical therapy once a week. We stopped traditional therapy since she receives it at preschool and we found out...
Hi, I'm trying to get info from everyone about what therapies have helped despite constant AHC attacks. our daughter, Jocelyn, 3 1/2 yrs is now showing more...
