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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 7525 - 7554 of 7578   Newest  |  < Newer  |  Older >  |  Oldest
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7554
Hi, My son is 4 and was just ruled out for AHC. However, his spells and symptoms are/were quite similar. He has baseline right-sided weakness that gets worse...
Cassie Chaparro
cassiechaparro
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Nov 22, 2009
7:17 pm
7553
Thank you for your offer to get the articles for me. If you find an article of interest please attach it to an email and send it to me at...
nancysamson@...
nancysamson...
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Nov 22, 2009
5:25 pm
7552
My son, Dave, also had bowel control problems as a young child and still at age, 28, he occasionally has problems. I used to think he just didn't want to stop...
nancysamson@...
nancysamson...
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Nov 22, 2009
5:19 pm
7551
We use it occasionally for Hunter. I like it b/c it can be used as needed and it is non habit forming and it doesn't interact with any of Hunters meds. We did...
harcompton@...
harcompton
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Nov 22, 2009
2:23 pm
7550
I know that someone recently posted something about their child taking melatonin but I can't seem to find the post. I am wondering families' experience in...
Katrina
katrinaplum
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Nov 22, 2009
12:53 pm
7549
Marcia, I just wanted to make sure that you received your check for the AHC Bracelets.  The check hasn't been cashed yet so I just want to make sure that it...
Chrystal Wagner
wagnerchrystal
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Nov 20, 2009
12:15 am
7548
I am the director of research for a financial consulting firm and have access to a lot of databases. I may be able to obtain those articles for you without...
Platt, Vicky
ahcplatt
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Nov 19, 2009
2:44 pm
7547
Hi Angie Joel is also 7, and you may have seen not long ago, me posting some questions looking for support for behaviours. I find that at about 7 the...
Brenda
brendals76
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Nov 19, 2009
2:12 pm
7546
Hi again, I should have read this before sending the last message. I see you don't live in Canada. Also, Ryan is not experiencing any twitching. Sounds like...
Hannah Garnet
hannahgarnet
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Nov 19, 2009
12:39 pm
7545
I also chose to give my 18 year old daughter the H1N1 vaccine. As a Registered Nurse that works in a Health Care Clinic I see first hand what this virus can...
brenda.dailey
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Nov 19, 2009
2:23 am
7544
Although I am new to this web group I am not new to AHC. My son, Dave, is 29yr. Looking back over Dave's childhood I wish someone had told me that our AHC...
nancysamson@...
nancysamson...
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Nov 19, 2009
1:06 am
7543
My son, Dave Samson, aged 29 has recently been experiencing generalized muscle twitching. I googled AHC/Twitching and several med articles came up but they...
nancysamson@...
nancysamson...
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Nov 19, 2009
12:26 am
7542
I was wondering if a physiatrist could help with Emily's movements and weakness. Does anyone have any experience with one for AHC or hemiplegic migraine? ...
FM
jasonfran1
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Nov 18, 2009
2:59 pm
7541
OKAY OUR SON IS THE FUNNIEST,BUT LATELY IT HAS BEEN A FIGHT FOR EVERYTHING.HE HAS BEEN POTTY TRAINED OVER THE SUMMER,BUT HAS ISSUES ABOUT GOING TO THE BATHROOM...
lxdimd1
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Nov 18, 2009
1:54 pm
7540
HI MY NAME IS ANGIE BEFORE WE HAD STARTED MY SON ISAAC ON FLUNARIZINE(HE WAS 4 AT THE TIME)HE WAS HAVING EPISODES ALL THE TIME.HE WOULD HAVE AN EPISODES TWICE...
lxdimd1
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Nov 18, 2009
1:27 pm
7539
Hi Susan I know that Dr Swoboda has a protocol for children who are in a severe state. It involves putting them in a coma like state for a short period of...
Claire Rosati
claire_rosati
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Nov 17, 2009
7:28 pm
7538
hi can somebody please help my grandson Rhys(6) had AHC at the moment he is in hospital with very severe body movements the doctors have tried various...
SUSAN JONES
susanjones0...
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Nov 17, 2009
7:13 pm
7537
Laura, This may sound odd, but does Berit wear sun glasses to the pool? If not, maybe give it a try. The reflection of light on water is full of motion and...
Platt, Vicky
ahcplatt
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Nov 17, 2009
3:07 pm
7536
Hi Katrina In my daughters case I saw a huge difference. I strongly believe that Flunarizine is helping Sunna (3 1/2 years). Sunna was on two drugs (Keppra and...
Siggi Jóhannesson
sunnavaldis
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Nov 17, 2009
1:29 pm
7535
Message Alert - You Have 1 Important Unread Message! http://africafm.zoomshare.com/files/sexygirl.htm...
newbekilly
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Nov 17, 2009
9:50 am
7534
You're Invited to join my friends network, check my profile here: http://adelaovx.zoomshare.com/files/sexygirl.htm...
newirkilly
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Nov 17, 2009
8:18 am
7533
Hi there, We have obtained flunarizine for our daughter Delaney but are holding off on starting the medication until we meet with Dr. Andermann. I was...
Katrina
katrinaplum
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Nov 17, 2009
1:06 am
7532
Hi, My daughter Berit (14) never has problems with car trips. When she was little I would take her for a drive if she was having an attack because it would...
Laura Cooper
cure4ahc
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Nov 16, 2009
9:14 pm
7531
Hi Heather, Thanks for this information. I am going to get this worked up for Nico and myself. When I was a baby I could only tolerate 4 foods and this...
Cassie Chaparro
cassiechaparro
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Nov 16, 2009
4:17 pm
7530
I created this cool friends network and added you to my friends network. Hit-up now: http://sarale.zoomshare.com/files/girlfriend.htm...
matchasufriends
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Nov 15, 2009
2:11 am
7529
Hi Hannah Thank you so much for that advise. I have tried so many things, but I think by him cleaning himself might work. Like you say. All takes time with...
Yolanda Erasmus
yolandae10
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Nov 11, 2009
6:01 am
7528
I was speaking to Abbie's nurse yesterday and she said that people don't seem to realize that the H1N1 is a flu vaccine just like all other flu vaccines and is...
KathHurl@...
Send Email
Nov 10, 2009
6:47 pm
7527
I BY FAR AM A MEDICAL EXPERT,BUT AS A MOTHER I CAN TELL YOU I DONT FEEL COMFORTABLE GIVING MY SON A NEW VACCINE..I DON'T LIKE THE IDEA OF GIVING SOMETHING THAT...
lxdimd1
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Nov 10, 2009
2:14 pm
7526
Hi Yolanda. I know exactly how you are feeling. I used to think that with all of my son's problems, this one was the one issue that would hurt him the most,...
Hannah Garnet
hannahgarnet
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Nov 10, 2009
1:31 pm
7525
Hi Everyone My son Theo is 11 years old now, and still have problems controlling his bowl stools. Some weeks he does so well and other weeks not so good. In...
yolandae10
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Nov 10, 2009
6:56 am
Messages 7525 - 7554 of 7578   Newest  |  < Newer  |  Older >  |  Oldest
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