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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)

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Messages 7435 - 7465 of 10532   Oldest  |  < Older  |  Newer >  |  Newest
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7435 charles_w_2000 Send Email Oct 10, 2009
1:41 pm
Alternating Hemiparesis (weakness) Anyone experience, from time to time: Alternating hemiparesis (weakness) which tends to shift from the left side of the body...
7436 mwmmtlc Send Email Oct 10, 2009
3:36 pm
Hi, My name is Mary. My son Tanner just turned 22yrs. old. He has alway had weakness off and on one side or both. verys from time to time.It seems that when...
7437 PaulaG
paulageurin Send Email
Oct 11, 2009
2:12 am
My three year old daughter's neurologist is 99% positive that she has AHC. After two years of tests and being diagnosed with epilepsy (although seizure...
7438 sherrie2380 Send Email Oct 11, 2009
5:01 pm
My daughter is 6 years old and has this condition she is in kindergarden and the trasition from pre-k to this year has been fairly well, The school was...
7439 paigeashworth@...
paigeashworth Send Email
Oct 11, 2009
5:07 pm
My son also started kindergarten this year but pre-k was a lot better. The teacher has not been very helpful with his developmental delays. She is very...
7440 Jamie and Angela Sparks
jamieangelas... Send Email
Oct 11, 2009
11:58 pm
Where in Florida do you live? We live in the Panhandle area of Florida. We have a neurologist in Pensacola that we go to for the last 2 years that has ...
7441 Jeff Wuchich
thewuch Send Email
Oct 12, 2009
3:24 pm
Dr. Karen Swoboda at University of Utah & Dr. Kenneth Silver at the University of Chicago are the primary researchers & experts on AHC. My wife Renee & I...
7442 KathHurl@... Send Email Oct 13, 2009
8:58 pm
Dr. James Riviello is a child epilepsy specialist, but he is also familiar with AHC.? He used to treat our daughter at Boston's Children's Hospital and he...
7443 Olga Gerber
sean_ethan_g... Send Email
Oct 13, 2009
11:18 pm
This is the contact for a James Riviello on anywho.com James Riviello 2424 Sheridan St Houston, TX 77030 (713) 592-6599 Olga A. Gerber Sean's Mom ...
7444 brendals76 Send Email Oct 14, 2009
2:55 pm
Hi All I know this topic has been discussed numerous times on this forum, but was wandering if anyone had suggestions re: behaviour medication. Is it valuable,...
7445 Platt, Vicky
ahcplatt Send Email
Oct 14, 2009
3:45 pm
Brenda, You're not alone. I am in the exact same position with my 7 year-old daughter Emma. She is in 2nd grade and has fewer issues at school than what you...
7446 Brenda
brendals76 Send Email
Oct 14, 2009
3:50 pm
HI Chrystal That song is absolutely beautiful and sums up so much ... i loved it , thanks for sharing. And Glenda - I am so excited you are on facebook, I am...
7447 Brenda
brendals76 Send Email
Oct 14, 2009
3:50 pm
HI Chrystal That song is absolutely beautiful and sums up so much ... i loved it , thanks for sharing. And Glenda - I am so excited you are on facebook, I am...
7448 Brenda
brendals76 Send Email
Oct 14, 2009
3:56 pm
HI Natalie I just wanted to let you know that although I haven't been on this forum for quite a long time - I have read your posts over the 7 years of having...
7449 Marcia Perkins
marcia_perkins Send Email
Oct 14, 2009
4:12 pm
Does anyone know of an easy way to get this money from Australia to the foundation? Marcia Perkins Holiday Companies Benefits Administrator ...
7450 Brenda
brendals76 Send Email
Oct 14, 2009
4:19 pm
Joel is also 7 1/2 and grinds his teeth. He has also only lost 3 teeth, two lower front and one top front. some of his top teeth have actually been ground...
7451 Brenda
brendals76 Send Email
Oct 14, 2009
8:27 pm
Hi Marcia the safest and most economical way is as Glenda suggests - either direct funds transfer or paypal. regards Brenda...
7452 Jennifer
jejeant Send Email
Oct 15, 2009
12:56 am
Paypal? I use it all the time for Ebay and other purchases. Take care, Jennifer (mom to Alaina, 4/7/00 and Lydia, 9/8/05) jejeaja@... ... From: Marcia...
7453 Ms Karen Kluting
kluting1 Send Email
Oct 15, 2009
4:02 am
Brenda,   This is Karen mom of Trevor who is 10 y/o.  First of all let me say Trevor is not on any behavior meds yet,  a month ago I would have told you we...
7454 yolandae10 Send Email Oct 15, 2009
12:56 pm
Hi Brenda My name is Yolanda. I am the mother of Theo. He is 10 years old. We live in South Africa. He was diagnosed with AHC at the age of one and it has been...
7455 Brenda
brendals76 Send Email
Oct 15, 2009
7:25 pm
Thanks Yolanda, Joel's was diagnosed at 10 months old - and his epilepsy started at 4 years old. What medication was Theo on for his epilepsy when his...
7456 yolandae10 Send Email Oct 16, 2009
6:38 am
Hi Brenda WhenTheo started with his seizures we used Limictum first and that increased his seizures. Then we tried the Tegretol and that also made it worse....
7458 Siggi Jóhannesson
sunnavaldis Send Email
Oct 19, 2009
10:43 am
Hello everyone I was wondering if your childrens neurologists have recommended the H1N1 vaccination and if you could share your comments on the shot. Thanks ...
7459 Wilkinson
zachsmom77 Send Email
Oct 19, 2009
5:40 pm
Hi Brenda, Reading your post was like reading about Zach (7). He is in first grade w/a one-one aide...lunches separately w/1-2 friends - who all clamer to be...
7460 Chrystal Wagner
wagnerchrystal Send Email
Oct 19, 2009
10:50 pm
Hi Ragga, I was wondering the same thing.  I still don't know what to do about getting the shot for my kids.  I have heard the argument both ways.  I...
7461 ADCAR@...
adelelouisc Send Email
Oct 21, 2009
12:44 am
Hello all, I have set up a Causes page on Facebook for AHC. It's a great way to raise money for the foundation. If you are a facebook member follow the link...
7462 Jennifer
jejeant Send Email
Oct 21, 2009
12:55 am
GREAT idea! I have joined and forwarded to my friends on Facebook. Take care, Jennifer (mom to Alaina, 4/7/00) jejeaja@... ... From: ADCAR@... To:...
7463 Glenda Davies
glenda_davies Send Email
Oct 21, 2009
1:13 am
Fantastic idea Adele. Well done! I have made a donation and sent out invitations to my 151 friends on Facebook. Glenda & Laura Australia ... From:...
7464 ADCAR@...
adelelouisc Send Email
Oct 21, 2009
1:25 am
Thank you! ... From: Glenda Davies <gkdavies@...> To: afha@yahoogroups.com Sent: Tue, Oct 20, 2009 9:13 pm Subject: Re: [ahc] Support the Alternating...
7465 ADCAR@...
adelelouisc Send Email
Oct 21, 2009
2:56 am
Thanks to all who joined the causes page on Facebook. In less than 24 hours we have raised $150 and I am sure it will keep growing. If you are not yet on...
Messages 7435 - 7465 of 10532   Oldest  |  < Older  |  Newer >  |  Newest
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