Kelly,  Kristen is the same way. But now with the meds she will give in faster than before. If I give her an answer that makes since she will now say ok...
Has anyone used Trileptal for stablizing moods? I know it is an anti-epileptic drug, too. ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On...
Hello everyone! I have a question that regards my son who has both Alternating Hemiplegia of Childhood and ADHD. I consulted my son's doctor which I have had...
Hi Carina How old is your son? My daughter started having behavior problems at 9yrs old. The meds she had been on for many years seemed to cause behavioral...
Hi Carina How old is your son? My daughter started having behavior problems at 9yrs old. The meds she had been on for many years seemed to cause behavioral...
Dear Carina Sorry to hear about your experience with the Swedish doctors... What medications is Kenny taking now? Sunna is not diagnosed with ADHD, but what I...
My 8 year old brother has Alternating Hemiplegia and I'm trying to find other people who have siblings or children with the same disorder so that way I can...
Hello Alyssa, Welcome to our chat line. What is your brother's name and where are you from? My name is Glenda and I have a daughter, Laura, with Alternating...
Hi Carina, My eight year old daughter has AHC and was just started on a couple of new meds, Focalin for ADHD and Risperdol for mood/aggression. She is also on...
Hello all I'm Brooke, my son, 9 yrs. old, was diagnosed today with AHC, after 6 years of searching for an answer. He has had periods of regression in motor...
Hi Brooke, My name is Jeff. My wife Renee & I have a 2yr old , Matthew, diagnosed with AHC 7 months ago. He had problems from birth. The best site for...
Hi Brooke. Welcome to the AHC group. My daughter, Lili, is 6 years old and was diagnosed when she was 10 months old. We tried Flunarizine for 3 years but it...
Hi Brooke, We have a daughter, almost 11 yrs old with AHC (diagnosed at 3 yrs). She has been on flunarizine since diagnosis and takes 15 mg at night. We get...
Thanks everyone for your responses. We are in St. Louis, MO, and are seeing Dr. Geller at Cardinal Glennon. A few questions I'm trying to find answers to. I...
Hi Brooke, I am Thais my daughter she is now 18 months we started flunarizine like 2 months ago is too early to say that is not working but I am not seeing any...
Hi all, I have one more question. We are considering going to get a 2nd opinion. We live in St. Louis, MO, so we're looking at either Dr. Silver in Chicago,...
We see Dr. Silver twice a year since we live in the NW suburbs of Chicago. I remember our first visit with him lasted over an hour. He took his time with us,...
Hi, Brooke We are in Kansas City, MO and see a pediatric neurologist at Children's Mercy, Dr. Jean-Baptiste Le Pichon. So far he has been fabulous to work...
... Brooke, Our daughter Emory has AHC and coincidently we live right down the street from where you work, in des peres. We too thought that she was having...
Hello all, My daughter with AHC, Jennie age 22, wants to do something to raise money for AHC. We went out and bought some beads and tried making bracelets but...
What a great idea Marcia! Please send some here to Australia... I will be able to sell them to the ladies at my dance classes. Glenda & Laura (Australia) ... ...
Hi Marcia, Chris Morris here. I would be willing to sell some. Please put me in for 75 if you do decide to go through with it. 310 Vonder Ln. Geneva IL 60134 ...
Marcia, we had thought about making bracelets, too but Joce gets weak doing beads. I was going to make them myself and recruit family/friends to help, but it...
Chris Morris- Do you have a child with AHC? We hold an annual walk in Lake Zurich, IL along with another family. This year it will be held on September 27, ...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
