HI Glenda Joel and Laura will have to have another catch up - He is spongebob squarepants MAD!! - We even have a goat called "Spongebob" and a fish called...
Hi Sue, Sorry for the delay in responding. We've had a crazy month and I am just catching up. I read your past posts and my son, Ian, has some similarities. He...
Hi my name is Thais I have a little girl she is 16 months. When she was 6 month she started having weakness on her right side (arm and leg) she couldn't more...
Hi Thais Welcome to the group. We have all been where you are today and are thinking of you as you go through this difficult time. I have a little boy who is...
Here are 2 websites to visit for more information and more links: www.ahckids.org http://medicine.utah.edu/neurology/research/swoboda/ahc/index.htm Also the...
Thanks for sharing the information I know each kid a diferent but knowing a little bit of each you may have an idea of what to expect. I have visited a bunch...
Hi Paula, Thanks very much for your reply. Found reading your reply certainly very interesting and informing for me. Been very big month for us as well....
Hello Everyone, Just wondering if any one has had a negative reaction to this medication? Or whether other families dont use this at all? Most of the post I ...
Sue, This is Karen, mom of Trevor who is 10. We did have some side effects on the Flunarazine but he is to date still on it and it does help. (he also...
Hi Sue My daughter has been 15 mg (5 in am/10mg in pm) since 2 yrs old. It pretty much stopped her hemiplegic episodes . We still had to watch her activity...
Karen, What are you doing to deal with the behavior stuff, we are having horrible times to put it lightly with Trevor as well he also just turned 10 in...
Hi Sue -- my daughter, Abbie, does not take Flunarizine.? Her spells are not severe or frequent enough?to warrant this drug.? She gets the hemiplegia attacks...
KathHurl@...
Jun 14, 2009 10:00 pm
7162
Hi Kathy Can you explain 'wobbly'? I'm trying to understand what Addie calls her 'shakies'. I don't know if they're AHC or tremor from meds etc. We have...
Hi All, Jake is 17 and has been on Flunarizine since he was 7. The only time I saw anything bad was once when we increased it to 15 mg., he got this thing...
Hi Karen -- Abbie's "wobbly" spells are hard to describe -- she gets?kind of spaced out and her?walking is less steady.??She is more likely to fall and has to...
KathHurl@...
Jun 15, 2009 12:27 pm
7165
By the way -- anybody know why all the question marks show up in my posts??? ... From: KathHurl@... To: afha@yahoogroups.com Sent: Mon, Jun 15, 2009 8:26...
KathHurl@...
Jun 15, 2009 12:43 pm
7166
thanks for the info Kathy. Also for lack of a better descriptive term, Addie can look like a bobblehead. Her head is tremoring and usually so is her...
Karen Don't ever feel that you can't say whatever you want on this site.....What you are going through is normal and life especially our lives.....I lasted ...
Mindy, Thanks so much for responding to me, I was in tears feeling that everyone else had worse problems since I got no response. I have only gone to...
karen Its so funny ...my kids (I have 3 others besides Hailey) are done with school in 3 days and I make believe cry because I am so afraid of how summer...
Hi all, I've been reading the recent posts and we've been dealing with behavior issues for last year or so. We are trying to sort out what is behavior due to...
Hi Heather, Kiley is 8 yrs old and is not on Keppra. I remember talking to Dr. Silver about her behavior when she was 5 yrs old and it has steadily gotten...
Are any of the children on Lorazepam or Ativan?? Abbie has been on it since she was about 4 -- she is now 20.? She doesn't have any behavioural problems now,...
KathHurl@...
Jun 17, 2009 9:16 pm
7175
Hi Heather, I am so glad you wrote. This is EXACTLY what we are going through. Addie has been on Keppra since 4.5 yrs old. We have always had to go up...
Kelly, Joce finally has been peeing consistently on the potty for over a year, but it wasn't until few months ago she could feel when she had to go and tell...
Joce hasn't used ativan since Dx except last hospitalization. When we used to use it she would get agitated. How much does Abbie take a day? Does she have...
Karen, thanks for posting. I'll give you a call sometime tonight if that's okay (or if weekend is better let me know!). Funny you mentioned Skype. I thought...
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