Hi Ragga, Thanks so much for your reply. Kiley is only on Flunarizine for the episodes so I can’t connect the behavior to any other medication. Also, she...
For those with school age kids, can you tell me if your child is going to school full days or half days? do they provide a sleep/rest area in or out of class...
Karen, My Emma is 7 years old and in first grade. She attends full day school. A rest break is provided if needed. Usually that can be anywhere between...
Hi, My daughter Brooke is 18. She has been on Flunarizine/Sibelium since age 2 when she was first diagnosed. She did not experience aggressive behavior...
Dana Tasi
dtasi@...
May 1, 2009 7:41 pm
7120
Lili, age 6, goes to school a full day. We are very fortunate to have a special needs school here and they are willing to work with me. Her class always has...
Kiley is almost 8 and has been in full day since age 4. She has a bean bag chair in the class that is hers alone and she uses it when she needs to rest. I...
I believe when you do an IEP for your child you decide what should be his or her goals for the year and also what their daily routine would be.Isaac has been...
Does anyone deal with their children's anxiety over dentist visits? Has anyone given their children anything to relax so appt can be completed? We are...
Karen we take our daughter Hailey (AHC) to a dentist for special needs and they give them something to relax them before and during the appt....when she ...
I would see if your dentist offers nitrous oxide - the only caveat is that the child needs to nose breathe for it to really work. It does relax them though, at...
It might too late for this appointment but have you looked at a pediatric dentist? I took Nick to one when he was younger and she was great. She took...
Kiley sees a pediatric dentist who specializes in special needs kids. She doesn't like the spinning of the brush or the suction to get the water/saliva out of...
WE HAD TO END UP GOING TO A SPECIALIST JUST SO THEY COULD LOOK IN HIS MOUTH.THEY THOUGHT THEY WERE GOING TO HAVE TO GIVE HIM MEDS TO PUT HIM TO SLEEP.HE HATED...
Thanks everyone for getting back to me on dental visits. Unfortunately, she fell apart almost having a total anxiety attack. She has been to dentist...
Kiley complains of "seeing two of you" or not being able to see (I think it lasts a second or two). I'm wondering if she is seeing spots as is common with...
That's interesting you mention the tongue thrusting......I saw it for the first time 2 weeks ago after she had been sick with cold/flu. She had several...
Hi Kelly and Karen, Jocelyn gets the tongue thrusting, and severe jaw movements like she is opening and closing it over and over and over. It is like she is...
Jennie, age 21, has been seeing double during down times for years. The next time she says she can't see have her cover one eye and see if she can then see...
Ryan, age 27, first complained about seeing double around 7 years ago. Since then, about 2 or 3 times a year, he will tell me that he is seeing double, he...
Kiley has been tongue thrusting for years, but only when she is in a severe episode where she doesn't talk or walk, and she drools. It is one of the signs we...
I'm Shookreey, from Malaysia. My 8 years old daughter was diagnosed by doctors as suffering from Alternating Hemiplegia of Childhood. She was first diagnosed...
Dear Shookreey, Thank you for sharing your thoughts with us and your English is just fine. While we may speak different languages, those of us who love a child...
Dear Shookreey Same from us here in Iceland. You are in our prayers. Keep on fighting and searching for answers for your daughter. We have a 3 year old...
Shookreey, Our daughter is 10 1/2 yrs and has always had gagging/vomiting during full body paralysis, as recent as last night. At one point we talked to the...
Hi, our son, now 19, always vomited with his episodes. For a while they thought he had Cyclical Vomiting as well. [Non-text portions of this message have been...
Richard George is holding a raffle to benefit AHC. Many of you saw the poster at the family meeting. He is raffling a brand new 2002 Titan Motorcycle that has...
Richard George is holding a raffle to benefit AHC. Many of you saw the poster at the family meeting. He is raffling a brand new 2002 Titan Motorcycle that has...
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