Hello. My name is Laura Cooper and I am the mother of Berit who is 13. I am compelled to write tonight because I really need the support of the AHC community....
Hi Jenny, glad you found the group. Like Jeff said, it sometimes takes us a few days to respond. Many of us have our children on flunarizine (sibelium). We...
Greetings Everyone, I am posting a blog that I discovered today on Kosmix, a search engine. If I understood the post correctly, a father, who lives in Israel,...
Dr Swoboda's website on AHC talks about the temporary paralysis. I would hope that coupled with a signed dr's note about diagnosis for that child would help....
Good news! Dr. Swoboda's office has already been in touch with the family. The post was dated to Feb 1st, but whereas there were no responses/comments listed...
Greetings Everyone, I have been meaning to ask the group if any other children/adults with AHC also have been diagnosed with Dyspraxia? Ian, age 6, had his...
Hello all. I was wondering if any of you had some good tips for us about good bedtime routine. We have been having some trouble getting our 3yr old daughter,...
We put Lili, 6 years old, in her bed and then we play our other daughter's DS until she falls asleep. It has always been a struggle to get to go to sleep on...
My son (17 Y.O.) was put on Keppra when he developed epilepsy about 2 yrs ago. He was on it only a month - it caused intense rage, a weird anger in his eyes,...
Welcome to the group. Our daughter, Lili, is 6 years old with AHC. Lili was diagnosed at age 10 months old with it. She is in partial paralysis for some...
-It's interesting that your first reply says the exact same thing that mine will. I too held my son until he went to sleep until he was around 4. Then I would...
Greetings Folks, I just found Dr. Matt Sweeney's paper online - the paper that he presented at the Chicago conference. If someone else has posted it,please...
Thank you, Paula, for forwarding the information to us all. I didn't have this article, and I printed it out to add to my file on Ryan. Have a good weekend,...
Our Emma is 7 and also has the same bedtime issues. She craves "snuggling" and wants my husband or I to be next to her as she falls asleep. Before bedtime we...
... Hello to you all, My name is Sue I am trying to find out some more information about AHC. My neurologist believes that more than likely that my daughter...
Hi Sue, your daughter's attacks sound like AHC attacks, but without seeing them it's hard to say for sure. When you say she has cramping, where is that and...
Hello We are wondering if anyone has experienced obsessive behaviour in their teen or adult children with AHC. Our daughter Margaret, 27, seems to be getting...
Don Kilpatrick
donkilpatrick@...
Apr 24, 2009 1:18 pm
7096
Janet and Don, Jennie, age 21, gets stuck obsessing about different things also. As an example, she worries all weekend about getting to the store to make...
Hi Janet and Don, Yes... my daughter, Laura, is totally obsessive. It drives me nuts! She is not on any medication for obsessive-compulsive disorder so I can't...
Greetings Everyone, I know it takes time for us to respond to posts (I'm usually at least a month behind) but I was really surprised that no one responded to...
Hi Paula Let me respond to your list but remember she was on antiseizures meds of some sort since 4 mos old: -Addie has always been very neat eater; swallowing...
Hello Paula, I was very interested in your posting about Dyspraxia. I followed your link to the website and read about the symptoms, however, I don't feel that...
Hi Heather, Thanks very much for your reply sorry i havent replied earlier had a really tough week with Jessie. In relation to your question about jessie...
Hi Janet and Don, Glenda, and Marcia, I just talked to Dr. Josh Magleby about that! Jocelyn has several things she does. I've started ignoring the things...
Hi Paula, Oh My God do i really need to speak to you in great depth at some stage......... My name is Sue i have a little girl who we believe has AHC but are...
Just thought I would mention that Laura has these attacks (like Jessie) quite often during a visit to the Supermarket. It happened only yesterday: Laura was...
My Hunter has just turned three years old. he already displays obsessive behaviors. The wheels on his car have to be stright- all the time- his jacket has...
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