Hello Michelle, My daughter, Christa, is 32 now and graduated at 19 (actually, received a certificate of attendance). We live in Alaska. We applied for ...
6980
Angie Davis
lxdimd1
Feb 4, 2009 2:54 am
I AM STILL LOOKING FOR SIBELIUM,HAS ANYONE FOUND A PHARMACY WHO CARRIES IT?MY SON ISAAC FINISHED ALL THAT WAS LEFT AND HAS BEEN ON FLUNARIZINE FOR GOING ON...
6981
Dana Tasi
dtasi@...
Feb 4, 2009 9:46 am
I am also looking for a pharmacy that carries Sibelium. All of us who have children on this drug really need help finding a pharmacy who can supply us with...
6982
Siggi Jóhannesson
sunnavaldis
Feb 4, 2009 10:27 am
Hi Angie I emailed Janssen - Cilag on the 20 th of January, in Denmark (we live in Iceland). This is there response. We "googled" the company and found their...
6983
Siggi Jóhannesson
sunnavaldis
Feb 4, 2009 10:49 am
Hello all again Has anyone tried to contact Dr. Swoboda and check if she knows about a pharmacy who carries Sibelium???? Just a thought. Ragga mom to Sunna...
6984
erika misenti
emisenti
Feb 4, 2009 11:08 am
hello we just got the generic and have not started using it yet im starting to freak out now getting the email about Isaac I am so sorry to hear about Isaac. ...
6985
Lynn Egan
laegan5
Feb 4, 2009 6:55 pm
Hi, I spent some time in January trying to get some information about Sibelium. I spoke with Mark's Pharmacy who has been selling the Apo-flunarizine (generic...
6987
Carina Ruderfors
carinaruderfors
Feb 4, 2009 7:04 pm
Hi! I saw that a lot of people wanted to know which pharmacy you could get Sibelium from, but here in Sweden Sibelim is on licence and the only way to get it...
6988
Dana Tasi
dtasi@...
Feb 4, 2009 8:14 pm
Hi Lynn, Thanks so much for trying to locate a pharmacy that will sell us the Sibelium. I'm praying that you are successful. Dana Tasi ... From: Lynn Egan...
6989
Michael Kemp
suek12000
Feb 4, 2009 8:33 pm
We get sibelium vi a the National hospital london. It is from Jansenn France. I would be happy to contact hospital pharmacy for more details if that helps. ...
6990
ADCAR@...
adelelouisc
Feb 5, 2009 1:06 am
I have ordered my son's medication from this website 1drug.com or 1drugstore-online.com for years and have never had a problem, there was one time that it...
6991
Angela Compton
harcompton
Feb 5, 2009 1:48 am
Hunter is on the generic form. He started mid -December. he has actually gone longer without an episode on the generic form. I was so surprised. i have...
6992
Craig Loudon
akmale98
Feb 5, 2009 7:15 am
Hello all, When Christa (32 yrs) had massive seizures last Sept, she was given Topomax by one Neuro. She didn't do well with it and her regular Neuro called...
6993
teapots44
Feb 5, 2009 11:01 am
Could someone send me the addresses of the Valentine Day exchange? I inadvertently deleted them on my e-mail. my e-mail address is teapots44@.......
6994
erika misenti
emisenti
Feb 5, 2009 2:03 pm
hello thank you for all the responses, so the switch to generic form will not make a diffrence since Tyler has been taking the sibelium form since the Boston...
6995
Platt, Vicky
ahcplatt
Feb 5, 2009 2:36 pm
We also have used 1drug.com since the Boston family meeting. We have not experienced any problems and buy the generic version. A prescription is not required,...
6996
Kelly Andrasco
gandrhotmailcom
Feb 5, 2009 5:09 pm
Hi Sharon, Another question about obtaining grants: has the grant writer looked into charitable organizations? They might be more able to help than the ...
6997
Modesto Millo
mo_millo
Feb 5, 2009 9:12 pm
I just found Sibelium for my daugther Emily on NorthWestPharmacy.com. I spoke to a customer service rep who assured me it was the Brand made by Jassen. I...
6998
Chrystal Wagner
wagnerchrystal
Feb 6, 2009 9:23 pm
Hey everyone, I just would like to get everyone's input on this medicine. Hunter is almost 4 years old and has never been on it. From the very beginning we...
6999
kcventi
kcventi1
Feb 6, 2009 9:57 pm
Hi Crystal It can be so frustrating trying to understand what is working for some with AHC and not others. We really need to collect information to...
7000
brendals76
Feb 7, 2009 5:59 am
Joel (almost 7) has been on Topomax for a couple of years now due to seizures. As you would all be aware, it is somewhat difficult to tell which side affect...
7001
Hannah Garnet
hannahgarnet
Feb 7, 2009 2:45 pm
Hi Karen, could you please let us know what med.s your daughter is taking for seizures? It sounds like you have found one that she is tolerating well with no...
7002
kcventi
kcventi1
Feb 7, 2009 8:26 pm
Addie's seizures in the beginning seemed to be every 4-6 weeks so we thought they might be AHC and not seizures. But as she aged, her seizures seemed to be...
7003
sunnavaldis
Feb 8, 2009 9:48 pm
Hi Chrystal I have been reading the postings about Topamax. Thank's everyone for your input!!! I have a 3yr old daughter, Sunna, she is currently taking...
7004
Marcia Perkins
marcia_perkins
Feb 9, 2009 1:24 pm
Chrystal, If you've never tried Flunarizine I would certainly give it a try. It made a world of difference for Jennie even though we spent 6 years getting her...
7005
pgpalmerino
Feb 10, 2009 8:03 pm
... CARRIES ... FLUNARIZINE ... AND ... SOON...
7006
pgpalmerino
Feb 10, 2009 8:03 pm
... CARRIES ... FLUNARIZINE ... AND ... SOON...
7007
pgpalmerino
Feb 10, 2009 8:08 pm
My apologies for not sending this sooner but I am just catching up with the posts. I just checked CanadaDrugs.com, which is where we get our Flunarizine from...
7008
kcventi
kcventi1
Feb 10, 2009 8:11 pm
I wonder how they can be (or how long they will have supply) of Sibelium. It's worth a phone call to make sure it's not the generic b/c the Canadian company...
7009
Jeff Wuchich
thewuch
Feb 10, 2009 8:58 pm
Hi Angie, My son Matthew is 19 months old and was just recently diagnosed with AHC (back in December). He has had the symptoms almost since birth though, but...
