Hello Michelle, My daughter, Christa, is 32 now and graduated at 19 (actually, received a certificate of attendance). We live in Alaska. We applied for ...
I AM STILL LOOKING FOR SIBELIUM,HAS ANYONE FOUND A PHARMACY WHO CARRIES IT?MY SON ISAAC FINISHED ALL THAT WAS LEFT AND HAS BEEN ON FLUNARIZINE FOR GOING ON...
I am also looking for a pharmacy that carries Sibelium. All of us who have children on this drug really need help finding a pharmacy who can supply us with...
Dana Tasi
dtasi@...
Feb 4, 2009 9:46 am
6982
Hi Angie I emailed Janssen - Cilag on the 20 th of January, in Denmark (we live in Iceland). This is there response. We "googled" the company and found their...
Hello all again Has anyone tried to contact Dr. Swoboda and check if she knows about a pharmacy who carries Sibelium???? Just a thought. Ragga mom to Sunna...
hello we just got the generic and have not started using it yet im starting to freak out now getting the email about Isaac I am so sorry to hear about Isaac. ...
Hi, I spent some time in January trying to get some information about Sibelium. I spoke with Mark's Pharmacy who has been selling the Apo-flunarizine (generic...
Hi! I saw that a lot of people wanted to know which pharmacy you could get Sibelium from, but here in Sweden Sibelim is on licence and the only way to get it...
Hi Lynn, Thanks so much for trying to locate a pharmacy that will sell us the Sibelium. I'm praying that you are successful. Dana Tasi ... From: Lynn Egan...
Dana Tasi
dtasi@...
Feb 4, 2009 8:14 pm
6989
We get sibelium vi a the National hospital london. It is from Jansenn France. I would be happy to contact hospital pharmacy for more details if that helps. ...
I have ordered my son's medication from this website 1drug.com or 1drugstore-online.com for years and have never had a problem, there was one time that it...
Hunter is on the generic form. He started mid -December. he has actually gone longer without an episode on the generic form. I was so surprised. i have...
Hello all, When Christa (32 yrs) had massive seizures last Sept, she was given Topomax by one Neuro. She didn't do well with it and her regular Neuro called...
hello thank you for all the responses, so the switch to generic form will not make a diffrence since Tyler has been taking the sibelium form since the Boston...
We also have used 1drug.com since the Boston family meeting. We have not experienced any problems and buy the generic version. A prescription is not required,...
Hi Sharon, Another question about obtaining grants: has the grant writer looked into charitable organizations? They might be more able to help than the ...
I just found Sibelium for my daugther Emily on NorthWestPharmacy.com. I spoke to a customer service rep who assured me it was the Brand made by Jassen. I...
Hey everyone, I just would like to get everyone's input on this medicine. Hunter is almost 4 years old and has never been on it. From the very beginning we...
Joel (almost 7) has been on Topomax for a couple of years now due to seizures. As you would all be aware, it is somewhat difficult to tell which side affect...
Hi Karen, could you please let us know what med.s your daughter is taking for seizures? It sounds like you have found one that she is tolerating well with no...
Addie's seizures in the beginning seemed to be every 4-6 weeks so we thought they might be AHC and not seizures. But as she aged, her seizures seemed to be...
Hi Chrystal I have been reading the postings about Topamax. Thank's everyone for your input!!! I have a 3yr old daughter, Sunna, she is currently taking...
Chrystal, If you've never tried Flunarizine I would certainly give it a try. It made a world of difference for Jennie even though we spent 6 years getting her...
My apologies for not sending this sooner but I am just catching up with the posts. I just checked CanadaDrugs.com, which is where we get our Flunarizine from...
I wonder how they can be (or how long they will have supply) of Sibelium. It's worth a phone call to make sure it's not the generic b/c the Canadian company...
Hi Angie, My son Matthew is 19 months old and was just recently diagnosed with AHC (back in December). He has had the symptoms almost since birth though, but...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
