Hi Adele, If it is not too late, I would like to contribute a recipe to your fundraiser book. Can you please give me your email address so I can email you...
Has anyone had issues with AHC being more stroke related than seizure? My 5 yr old son was just diagnosed with AHC last year, but we were told his episodes...
When ever Tyler was hooked up to EEG's there was nothing abnormal but theses spells our children have make parts of there bodie or also full bodie paralysis so...
I know AHC can be confused with stroke but I don't know if an actual stopping/blocking of blood flow occurs which is what I think happens in stroke. Maybe...
I should add that stroke and seizure can still occur with AHC but not with everyone. Karen ... From: erika misenti <emisenti@...> Subject: Re: [ahc]...
My daughter Mary has(or had) the "classic" AHC, not the nocturnal variation that your son has. In 1991 her doctor(Mary Zupanc) published an article that showed...
Carol & Kevin
pruntys79@...
Oct 7, 2008 4:27 pm
6781
This sounds very similar to our son Levi. More like a stroke than a seizure. Rachel mum of Levi age 7 ... [Non-text portions of this message have been...
Jennifer, She's not Mary's doctor any more.We live in Illinois and when Mary turned 21 she had to go on Medicaid and they will not cover out of state. Carol ...
Carol & Kevin
pruntys79@...
Oct 8, 2008 7:52 pm
6785
Could we compile information from AHC parents about years on/doses of flunarizine, when dystonia started to see if correlation? I wonder if the info Dominic...
Hi Roshell, I have two daughters. My oldest is 20 and does not have AHC. My youngest is 18 and she does have AHC. Dana Tasi - from CT - Daughter Brooke...
Dana Tasi
dtasi@...
Oct 13, 2008 8:46 am
6789
I have 4 daughters, ages 25, 23, 19 & 15.??My 19 year old, Abbie, is the only one with AHC. Kathy ... From: Dana Tasi <dtasi@...> To: afha@yahoogroups.com...
KathHurl@...
Oct 13, 2008 12:09 pm
6790
Hi Karen -- my daughter, Abbie, has never been on flunarizine and she has experienced the dystonic attacks for several years now.? In her earliest years her...
KathHurl@...
Oct 13, 2008 12:13 pm
6791
We have 4 children oldest does not have AHC (21) second child does (18) third and fourth do not (16) Hope this helps (11) [Non-text portions of this message...
I'm a careseeker and I have found the ideal match on http://sittercenter.bravehost.com/, It is a really trustworthy site.I feel satisfied with thier...
Roshell, My wife and I have a 5y/o with AHC, I am not her father, We also have a 4 month old who we hope is not affected. my question to you is what age...
Thank you to who ever brought this post back up to the top. When I posted this I had just found out I was pregnet. I now have a (so far) healthy 8 month old...
Hi Dana- I am in South Windsor, CT. Where in CT are you? Olga Olga A. Gerber South Windsor, CT 06074 Phone: (860) 680-9410 <mailto:olgaagerber@...> ...
My name is Thelma and my first son Mario (6yrs old) is affected with AHC. I also have a set of twins ( 5 yrs old) not affected with AHC. All I have to say is...
Hello, Our son has aggressive behaviors for several years now. For the last few months they are becoming worse. Last week we had to take him to the ER due to...
Roberta, I am so sorry that you are going through this. We had similar problems with our daughter, Amanda. Dr. Swaboda in Utah who is on the AHC medical...
Roberta, I noticed he's had impacted colon. Our daughter has had major constipation issues which I think can be very uncomfortable and painful. We use...
Roberta, I am so sorry to hear of all that your family has gone through, My son Tyler has had extreme behaviors, mostly do to not being understood and also...
Erika, Wow this is very interesting reading. We have noticed a pattern that he will wait until the last minute to use the restroom rather it be urinating or...
What age and cognitive levels are you all starting to see behavior changes? Are they gradual or come does behavior take a turn for the worst all of a sudden...
Kiley is 7 years old. Since she turned 5 we have been having behavior issues, mostly at home in the morning with me. Over the last couple of years her...
Are any of the children on ativan or lorazepam?? We started Abbie on it when she was about 3, mainly because we thought at the time that it might help with the...
KathHurl@...
Oct 22, 2008 12:21 am
6805
Kelly - Chad is doing the same thing right now, one minute violent and telling me to leave next minute crying and begging for me to stay. We have changed...
Thanks Roberta for getting back to me it is so hard for our children and for that matter with all children with special needs i work with 5 children with...
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