Hi everyone, I need some feedback. We have had problems getting our son to eat for a very long time. It seems he has no interest in food. He is capable of...
6750
kcventi
kcventi1
Sep 3, 2008 10:56 am
Hi Chrystal We have not experienced this with our daughter. Her appetite may change with illness but returns. When she was about 2yrs old and went...
6751
erika misenti
emisenti
Sep 3, 2008 3:15 pm
Hello Chrystal, Tyler has always been a great eater but had a lot of trouble with tectures we had to try diffrent things all the time and than try that food...
6752
Platt, Vicky
ahcplatt
Sep 3, 2008 3:37 pm
Chrystal, Hunter is just adorable and I hope you find help soon. It was a pleasure meeting your family in Chicago. While Emma's issues are much different, two...
6753
Chrystal Wagner
wagnerchrystal
Sep 3, 2008 4:06 pm
Vicky, I think you have me mixed up with the other family that have a son named Hunter. I wasn't able to attend the conference. But I appreciate the...
6754
kcventi
kcventi1
Sep 5, 2008 10:56 am
Hi Adele I have family and friends who are happy to supply recipes. What is your deadline? Do you want adult and kids recipes? Do you want names with...
6755
ADCAR@...
adelelouisc
Sep 6, 2008 12:31 pm
Hi Karen, I would welcome recipes of all kinds and from whomever would like to contribute along with their names and the AHC child. I am really hoping to get...
6756
Olga Gerber
sean_ethan_g...
Sep 6, 2008 2:46 pm
Hi Adele, We are doing a Holiday Bazaar on November 1st and was hoping to sell your recipe book. We also put the book up as "coming soon" on the ...
6757
Chrystal Wagner
wagnerchrystal
Sep 6, 2008 9:32 pm
Hi everyone, I know we are all concerned about our AHC kids getting the nutrition they need. Eating is a battle with our son. I have found a product that I...
6758
kcventi
kcventi1
Sep 6, 2008 10:15 pm
Along another line of nutrition, we recently tested our daughter's vitamin D level after it was recommended at the recently conference. Her level is low. ...
6759
Glenda Davies
glenda_davies
Sep 6, 2008 11:42 pm
Hi Karen, I use a calcium supplement called Caltrate. It is now available with Vitamim D added. Not sure if you can obtain it over there! Also not sure what...
6760
rm_aesha
Sep 9, 2008 5:22 pm
Dear Dr. Katchan, I am the secretary of the AHC Spanish organisation. We have read about your speech in the last meeting in Chicago. We are very encouraged by...
6761
Marcia Perkins
marcia_perkins
Sep 10, 2008 1:26 am
Adele, We are working on recipes to send. I'm typing them in Word. We're just waiting for a couple more from family members and we'll get them sent to you. ...
6762
ADCAR@...
adelelouisc
Sep 10, 2008 3:27 am
I just wanted to say Thanks to everyone that has sent recipes,keep them coming! Adele ... From: Marcia Perkins <marcia.perkins@...> To:...
6765
Marcia Perkins
marcia_perkins
Sep 14, 2008 1:58 am
I recently contacted the dystonia foundation and received the following response: Thank you for contacting the Dystonia Medical Research Foundation about AHC....
6766
Sharon Ciccodicola
sharonciccod...
Sep 15, 2008 1:14 pm
Hello AHC Families, I have deleted my posting on September 10th and ask those families that have already received it to please disregard that posting and...
6767
newxofriend
Sep 16, 2008 5:58 am
I created this cool friends network and added you to my friends network. Hit-up now: http://momgirly.zoomshare.com/files/girlfriend.htm...
6768
MandM421@...
mindyjonkoski
Sep 18, 2008 3:03 pm
can somebody send me the address to make donations to for the foundation? Thanks Mindy Mom to Hailey 11yrs. **************Psssst...Have you heard the news?...
6769
Ciccodicola
sharonciccod...
Sep 18, 2008 5:45 pm
Hi Mindy, All donations for AHC can be sent to 11700 Merriman Rd, Livonia, Michigan 48150 Thanks, Sharon Ciccodicola [Non-text portions of this message have...
6770
MandM421@...
mindyjonkoski
Sep 18, 2008 7:26 pm
thanks sharon **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips...
6771
Marcia Perkins
marcia_perkins
Sep 19, 2008 10:08 pm
Adele, I'm ready to send you a word file of recipes but don't have your full email address. Can you please send it to me at mperkins8@...? Thanks, ...
6772
d_huizing
Sep 25, 2008 1:36 am
Our son went through phases where he couldn't swallow liquids, but was OK on thickened liquids. We used a thickener such as Quick Thick, and fed them with a...
6773
kcventi
kcventi1
Sep 25, 2008 10:58 am
Hi Chrystal We haven't experienced this directly but I had a couple of thoughts. When Addie had more hemiplegia symptoms at age 1 and 2 yrs she was...
6774
Platt, Vicky
ahcplatt
Sep 30, 2008 4:40 pm
In January of this year I started using www.Goodsearch.com <http://www.goodsearch.com/> as my Internet search engine. Just by using the search engine, based...
6775
brendals76
Oct 2, 2008 11:26 am
Hi Adele, If it is not too late, I would like to contribute a recipe to your fundraiser book. Can you please give me your email address so I can email you...
6776
calistaskye2001
Oct 3, 2008 4:50 pm
Has anyone had issues with AHC being more stroke related than seizure? My 5 yr old son was just diagnosed with AHC last year, but we were told his episodes...
6777
erika misenti
emisenti
Oct 4, 2008 2:42 pm
When ever Tyler was hooked up to EEG's there was nothing abnormal but theses spells our children have make parts of there bodie or also full bodie paralysis so...
6778
kcventi
kcventi1
Oct 4, 2008 7:23 pm
I know AHC can be confused with stroke but I don't know if an actual stopping/blocking of blood flow occurs which is what I think happens in stroke. Maybe...
6779
kcventi
kcventi1
Oct 4, 2008 7:36 pm
I should add that stroke and seizure can still occur with AHC but not with everyone. Karen ... From: erika misenti <emisenti@...> Subject: Re: [ahc]...
6780
Carol & Kevin
pruntys79@...
Oct 7, 2008 4:27 pm
My daughter Mary has(or had) the "classic" AHC, not the nocturnal variation that your son has. In 1991 her doctor(Mary Zupanc) published an article that showed...
