Hi everyone, I need some feedback. We have had problems getting our son to eat for a very long time. It seems he has no interest in food. He is capable of...
Hello Chrystal, Tyler has always been a great eater but had a lot of trouble with tectures we had to try diffrent things all the time and than try that food...
Chrystal, Hunter is just adorable and I hope you find help soon. It was a pleasure meeting your family in Chicago. While Emma's issues are much different, two...
Vicky, I think you have me mixed up with the other family that have a son named Hunter. I wasn't able to attend the conference. But I appreciate the...
Hi Adele I have family and friends who are happy to supply recipes. What is your deadline? Do you want adult and kids recipes? Do you want names with...
Hi Karen, I would welcome recipes of all kinds and from whomever would like to contribute along with their names and the AHC child. I am really hoping to get...
Hi everyone, I know we are all concerned about our AHC kids getting the nutrition they need. Eating is a battle with our son. I have found a product that I...
Along another line of nutrition, we recently tested our daughter's vitamin D level after it was recommended at the recently conference. Her level is low. ...
Hi Karen, I use a calcium supplement called Caltrate. It is now available with Vitamim D added. Not sure if you can obtain it over there! Also not sure what...
Dear Dr. Katchan, I am the secretary of the AHC Spanish organisation. We have read about your speech in the last meeting in Chicago. We are very encouraged by...
Adele, We are working on recipes to send. I'm typing them in Word. We're just waiting for a couple more from family members and we'll get them sent to you. ...
I recently contacted the dystonia foundation and received the following response: Thank you for contacting the Dystonia Medical Research Foundation about AHC....
Hello AHC Families, I have deleted my posting on September 10th and ask those families that have already received it to please disregard that posting and...
can somebody send me the address to make donations to for the foundation? Thanks Mindy Mom to Hailey 11yrs. **************Psssst...Have you heard the news?...
Hi Mindy, All donations for AHC can be sent to 11700 Merriman Rd, Livonia, Michigan 48150 Thanks, Sharon Ciccodicola [Non-text portions of this message have...
thanks sharon **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips...
Our son went through phases where he couldn't swallow liquids, but was OK on thickened liquids. We used a thickener such as Quick Thick, and fed them with a...
In January of this year I started using www.Goodsearch.com <http://www.goodsearch.com/> as my Internet search engine. Just by using the search engine, based...
Hi Adele, If it is not too late, I would like to contribute a recipe to your fundraiser book. Can you please give me your email address so I can email you...
Has anyone had issues with AHC being more stroke related than seizure? My 5 yr old son was just diagnosed with AHC last year, but we were told his episodes...
When ever Tyler was hooked up to EEG's there was nothing abnormal but theses spells our children have make parts of there bodie or also full bodie paralysis so...
I know AHC can be confused with stroke but I don't know if an actual stopping/blocking of blood flow occurs which is what I think happens in stroke. Maybe...
I should add that stroke and seizure can still occur with AHC but not with everyone. Karen ... From: erika misenti <emisenti@...> Subject: Re: [ahc]...
My daughter Mary has(or had) the "classic" AHC, not the nocturnal variation that your son has. In 1991 her doctor(Mary Zupanc) published an article that showed...
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