HI. I hope you all had a great time at the conference. We would love to come one year. we live in England. I wondered what you learnt and if you would share...
6662
Hannah Garnet
hannahgarnet
Aug 1, 2008 5:14 pm
Hi Sue, There was some very interesting however, contraversial, evidence of some new meds that Dr. Katchan has been trying, but I'm cirtainly not the person to...
6663
pgpalmerino
Aug 1, 2008 10:48 pm
Hi Karen, So sorry for the continued delay. Here is what I have, but I have to caution that what I heard and remember might be different from other folks so I...
6664
pgpalmerino
Aug 1, 2008 10:48 pm
Hi Karen, So sorry for the continued delay. Here is what I have, but I have to caution that what I heard and remember might be different from other folks so I...
6665
Nancy Barrett
margsmac
Aug 2, 2008 12:44 am
Thank you Paula for all the conference information! Cameron (9), his mom, and I were at the Boston meeting but were unable to join you all at this one, so we...
6666
kcventi
kcventi1
Aug 2, 2008 1:13 am
Wow Paula! Great job and thanks for putting so much time into summarizing the meeting. I've never seen Dr Swoboda's link and it is really informative. We...
6667
kcventi
kcventi1
Aug 2, 2008 1:13 am
Wow Paula! Great job and thanks for putting so much time into summarizing the meeting. I've never seen Dr Swoboda's link and it is really informative. We...
6668
Olga Gerber
sean_ethan_g...
Aug 2, 2008 1:20 am
My husband and I had intense conversations with numerous people after the Family meeting regarding the future use of the drugs Dr. Katchan mentioned. We were...
6669
paigeashworth@...
paigeashworth
Aug 2, 2008 2:12 am
We just got home from the hospital due to A bad episode. My son turned 4 beginning of June and the episodes started getting more frequent in May but by the...
6670
erika misenti
emisenti
Aug 2, 2008 2:14 am
hello to all I hope you all that was able to attend the metting enjoyed it my family was unable to attend we went to the one in Boston but unable to go this...
6671
Glenda Davies
glenda_davies
Aug 2, 2008 2:30 am
Thank you Paula - your email was very informative! I was surprised when I clicked on the link to find my daughter, Laura, on a video. Until now, I didn't know...
6672
Jennifer
jejeant
Aug 2, 2008 6:12 am
Hi, everyone I uploaded some of the pictures I took from the conference. I apologize for the quality of the photos the hotel was very dark and I tried not to...
6673
merido@...
take2xcess
Aug 2, 2008 2:36 pm
Hi, My son Jacob, age 16, uses Valium for really bad hemiplegic or dystonic episodes. It was made by a compound pharmacist, it is a gel that I pull up in a...
6674
pgpalmerino
Aug 2, 2008 7:04 pm
I'm sorry to hear that your son is not well and that you are not getting much help from your doctors. I don't know if you are already doing this or not, but...
6675
Michael Kemp
suek12000
Aug 3, 2008 9:36 am
We use rectal valium to stop episodes sue To: afha@...: gpalmerino@...: Sat, 2 Aug 2008 19:04:12 +0000Subject: Re: [ahc]: Paula...
6676
Hur Hazlin Abdullah
hazzlynn_abd...
Aug 3, 2008 4:32 pm
Hi. We also use rectal valium on Aryssa and it works 80% of the time. We had an appointment with the neuro 2 weeks ago and she suggested that we should...
6677
Heather
hossanova2000
Aug 3, 2008 6:02 pm
Friends, It was good to see everyone at the conference last weekend. We didn't get a chance to personally meet everyone (there's just not enough time), but it...
6678
Jamie and Angela Sparks
jamieangelas...
Aug 3, 2008 8:46 pm
Thanks Heather for writing this down and emailing it to all of us! I had just sat down at the computer to type all this up to send to my in-laws and Jamie. I...
6679
Michael Kemp
suek12000
Aug 3, 2008 8:51 pm
Is this different from baclofen which we have just started . Sue To: afha@...: jamieangelasparks3@...: Sun, 3 Aug 2008 15:46:00...
6680
Glenda Davies
glenda_davies
Aug 4, 2008 3:13 am
Thank you so much Heather and Jay for the information on Dr. Katchan's presentation. I will show this email to Laura's doctor here in Australia and see what...
6681
Olga Gerber
sean_ethan_g...
Aug 4, 2008 5:30 am
Those are great notes and an excellent explanation to the group. As I mentioned in an earlier email, we were supposed to hear from the research team in Utah...
6682
Wendy
lyxana
Aug 4, 2008 11:43 am
Are we talking about GHB, the "date rape drug"? i mean really, are we? wendy ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com]On Behalf Of Olga ...
6683
kcventi
kcventi1
Aug 4, 2008 12:37 pm
Apparently the 'date rape' drug is a derivative of sodium oxybate (Xyrem from Jazz Pharm.). Because of its potential for abuse etc this is a class 3 substance...
6684
Olga Gerber
sean_ethan_g...
Aug 4, 2008 1:39 pm
A different version. Olga A. Gerber South Windsor, CT 06074 _____ From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Behalf Of Wendy Sent: Monday,...
6685
Wendy
lyxana
Aug 4, 2008 5:49 pm
Quote from previous email ... Unquote Quote from Project GHB (http://www.projectghb.org/narcolepsy.htm) GHB and Narcolepsy While lobbyists, parents, and...
6686
Heather
hossanova2000
Aug 5, 2008 2:35 am
First, I want to make clear that I was just presenting the information that was given to us at the conference. Only a small number of people were there and I...
6687
mycrew5
Aug 5, 2008 4:24 am
I don't want to start an argument, but I really feel the need to respond to some of the harsh words you used toward me (that is how I took it). --I have sat...
6688
jamiesparks3
Aug 5, 2008 7:07 am
Wendy (and all the Friends and Family in the AFHA Group), This is probably not going to be the only email on this subject, so I'm sorry if this is part of a...
6689
Wendy
lyxana
Aug 5, 2008 12:44 pm
First, i am sorry about hurting feelings. i should have waited the 2 - 24 hours i usually wait before sending an email. Time does calm one down, and i didn't...
6690
lxdimd1
Aug 5, 2008 5:56 pm
I have tried to get information of any kind.I also have tried to get the family packet from the ahckids website and have not received anything.Is there...
