My thoughts and prayers go to you and your family at this time, and my thanks for the courage to share this with us all. Know we will hold him in our prayers,...
From everyone here at the AHCF Headquarters in Livonia, Michigan, USA, we express our heartfelt sadness at the loss of Vincent. We cannot imagine the pain you...
Please pass on my condolences to Vincent's family. May the memory of him be a comfort to all, at this difficult time. Glenda and Laura (Australia) ... From:...
Dear Mirjana, We are so sorry to learn of Vincent's passing.Our thoughts and prayers are with you and your family. Sincerely, Paula and Greg Palmerino ... away...
I posted some pictures of my son. These are the first pics I have posted of him. He started an episode today. he went 20 days without an episode. It will...
Sorry to hear that Hunter is having an episode, what pain medication is he on? Twenty days is pretty long duration without one (at least it would be a long...
We are so sorry to hear the news about Vincent. Please pass along our truly heartfelt sympathies to Vincent's family. Prayers to all that knew him. Sincerely, ...
Jennifer, He is on naproxin for pain. Yes he started the flunarizine about 3 and a half months ago. Hunter starts episodes by losing motor control on...
so sorry to hear about Vincent. My family's thoughts and prayers are with you. YİĞİT AŞICI and Yasemin&Süleyman On Sat, Jun 28, 2008 at 12:06 PM, Mirjana...
I recall my son would have it change sides as well.He would start with his rigth last for 2 days like that then he would be completely limp on both sides for a...
Hi Renee, I am sorry to hear that Hunter is in episode. In the past, when Ian was Hunter's age (he's 5 now), his episodes always lasted about 8 days. His last...
Renee Tylers Episodes use to act just like Hunters. Tyler also did the head grabbing and He still does grab his arm and let someone know that it does not...
Awhile ago at the suggestion of a friend I started a blog where I talk about Levi and what we go through as a family and what he goes through. I don't post...
Odd, not sure why but when I just went and checked my blog the photo's aren't coming up. It has never done that before so hopefully in the very soon near...
Rachel...thanks for the pick-me-up...I so loved reading your blog. I commented on your original discussion of Levi's diagnosis (November 2007). I listed it...
Hi Becky, Thank you for your comment. I went and looked at Jakes photo's. I don't have to tell you but I will.... :o) What a handsome boy! He reminds me of...
Rachel, you have a great blog! I truly enjoyed reading through some of it and you are such a great writer. There were a couple times in reading snipets of your...
Hi Jennifer, Levi can ride a bike. He has always had great gross motor skills. Delayed but good none the less. His fine motor skills.......not so much....
Our sincere condolences. We lost our Leslie in March during a seizure as well. Our prayers and love are with you. It is a difficult journey, but we do have...
Lynda Burnham
lynda.burnham@...
Jul 13, 2008 11:20 pm
6642
Sorry it took me a long time here is Dr. Sweneys email address. sweney@... I will be attending, hope to see you there. Renee ...
Dear Nandana This is answer to your request : sreyna@... or sweney@... . I will attend the meeting (not coming with Patrick ),...
dominique poncelin
d.poncelin@...
Jul 15, 2008 3:41 pm
6644
Below is an email from a local family support group I participate in for children with hemiplegia related issues. I purchased both of the books mentioned and...
Hi Dominique, Thanks. I too look forward to meeting you again. Only Vishwa and I are coming because Carmelita is busy with a school project she just...
I will bring my copies of the books to the meeting for people to review. Since the books are shipped from England, they will not be received in time for the...
Mirjana, Our hearts and prayers go out to you and your family. We lost our Amanda 2 ½ years ago when her seizures and episodes finally took their toll. We...
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