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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 6555 - 6584 of 6648   Oldest  |  < Older  |  Newer >  |  Newest
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6555
Hi everyone, I am looking for advice on a new stroller. My son is already getting too big (in length) for the stroller that he has now. It is a great ...
Chrystal Wagner
wagnerchrystal
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May 2, 2008
11:18 pm
6556
My 16 yr old son has developed epilepsy in addition to the AHC. The seizures started about the end of November'07 and were once a month until the last ones...
JIMMYAHC@...
dennis_kiern...
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May 3, 2008
12:28 am
6557
Chrystal, I found one on dreamer designs that is especially for special needs kids. We have one of their strollers already and love it because it is...
Ms Karen Kluting
kluting1
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May 3, 2008
3:43 pm
6558
Chrystal, Just wanted to let you know how we got our stoller...here in California....our son is covered under a organization that provides service and supports...
Ken & Faye Wilkinson
zachsmom77
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May 3, 2008
4:08 pm
6559
Hi Dennis I am glad you were able to identify Jimmy is having seizures so you can hopefully find something that helps him. My daughter was on several anti...
kcventi
kcventi1
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May 4, 2008
3:51 am
6560
Can others tell me if they are experiencing these type of events: -child says she feels shaky -sometimes very visible shaking all over body, sometimes less...
kcventi
kcventi1
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May 4, 2008
1:10 pm
6561
I was wondering if any of the children suffer from OCD?(Obsessive compulsive disorder) My daughter (14) has been having alot of problems with symptoms that...
sockman1253
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May 5, 2008
10:51 pm
6562
My son definitely displays OCD behaviour. He will only wear red shirts and green pants, and they have to feel and fit, and be the right colour, or he won't...
Wendy
lyxana
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May 6, 2008
12:14 am
6563
Karen, Yes, we see most of this with Trevor, it has been ongoing the past year or so I think. He will grab his throat like he cannot breathe and act very...
Ms Karen Kluting
kluting1
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May 6, 2008
12:34 am
6564
... little things at first. If she accidently dropped her socks on the floor she would ask me "Are they still clean?" At first I kindof ignored it but it...
teapots44
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May 6, 2008
4:59 am
6565
Hi all We have just purchased an ecco-buggy stroller for Ethan (almost 5). We needed a stroller that has transport anchors so he can use of the bus on weak...
Claire Rosati
claire_rosati
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May 6, 2008
11:53 am
6566
Hi Karen, Jocelyn has had many shaking events. They seem to all be related to motor activities. If she works hard with her hands- trying to do a longer...
Heather
hossanova2000
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May 6, 2008
12:04 pm
6567
I believe my son also has OCD.He will not watch commercials.He only watches baseball and 3 movies.When he eats his food has to be a certain way; put back on...
Angie Bayona
lxdimd1
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May 6, 2008
2:53 pm
6568
my daughter hailey is 11 and definitely has ocd....she has to put everything back in it's place before leaving a room...she repeats her self to us to tell us...
MandM421@...
mindyjonkoski
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May 6, 2008
3:04 pm
6569
Thanks to all of you that responded. As with other things it's always good to know that I am not alone in this. Kristen will pick her finger and toes until...
Sylvia Ockman
sockman1253
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May 7, 2008
1:01 am
6570
Michelle, How long after the meds did you seen a difference? Any side effects? Yvonne ... little things at first. If she accidently dropped her socks on the ...
Sylvia Ockman
sockman1253
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May 7, 2008
1:02 am
6571
JC also picks her fingers (around the edge of the nail) till they bleed. She is old enough that we have a competition who has the prettiest, longest nails at...
mycrew5
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May 7, 2008
1:38 am
6572
... aggression at first like a dream than she had a BIG seizure, in the hospital on a ventilator, the whole bit. After that it didn't help with the aggression...
teapots44
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May 7, 2008
4:12 am
6573
Did the OCD symptoms become more and more noticeable as they age? or emerge in adolescents/puberty, younger? older? or were they always symptoms. My daught...
kcventi
kcventi1
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May 7, 2008
11:00 am
6574
TJ has always had some form of symptoms of OCD. We used to call it Autistic tendencies. We used to think the picking at his fingers was a self stim activity,...
Wendy
lyxana
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May 7, 2008
11:39 am
6575
Michelle, Our daughters seem to have alot of the same issues. Reading your post is like describing Kristen. The only thing I find the most frustrating is...
Sylvia Ockman
sockman1253
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May 8, 2008
12:21 pm
6576
Kristen started one little thing at a time. First it was everything has to be in order. But I am like that so I thought I taught her this behavior. She was...
Sylvia Ockman
sockman1253
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May 8, 2008
12:28 pm
6577
... my finger on.As she got older the symptoms became more pronounced until it was obvious there was another issue to deal with. Michelle ... emerge in...
teapots44
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May 8, 2008
4:00 pm
6578
... goes with me and just sits there and occ.says a few words. She hates when people talk about her in front of her. A few months ago we went to her regular dr...
teapots44
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May 8, 2008
4:15 pm
6579
Wow! All of these discussions regarding OCD has been interesting. I do think that Alaina displays these same tendencies. She has always had what I called a...
jejeaja@...
jejeant
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May 8, 2008
4:21 pm
6580
Thanks so much for all of your help. We will see the Dr. on the 28th. So I feel like I have alot to relay to her about these issues. It always helps to be...
Sylvia Ockman
sockman1253
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May 8, 2008
10:00 pm
6581
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matchclgfriends
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May 11, 2008
3:46 am
6582
Ohh Mindy... this sounds so familiar! Laura is exactly the same. Laura has to put everything back in it's place. Cupboard doors have to be shut etc. Laura...
Glenda Davies
glenda_davies
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May 15, 2008
10:24 pm
6583
My daugther Emily has not been diong very well lately. She has been having about 10 mini spells everyday for the past two weeks. Since yestrday has been...
Modesto Millo
mo_millo
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May 17, 2008
1:27 pm
6584
Hi, Diana I'm so sorry to hear your daughter is not doing well with her episodes. It seems a shame that your dr. will not prescribe the Flunarizine...do you...
Jennifer
jejeant
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May 17, 2008
2:35 pm
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