hi all xxx kelsey has added more problems to my list , new attacks , she put s her head back and looks up to the sky with her eyes in the top of her head ,only...
Joanne, Yes, we see this all the time with Trevor it started as he got older, usually comes before an episode although sometimes this is the only thing we...
I haven't written for ages due to a few serious shocks. One is that Jimmy has developed epilepsy. I read that British Medical Journal article in which it was...
Dennis, This is Karen mom of Trevor who is 9. Trevor started having true seizures two years ago so I understand what you are going through. I have some ideas...
Hi Dennis: First of all your are definitely in a crisis. The seizures that accompany AHC were not fun for us and all of them life threatening. I took...
Lynda Burnham
lynda.burnham@...
Apr 2, 2008 11:39 am
6508
Hi Dennis I know this must be tough for you. Joel started his "epileptic" seizures in August 06 - he was 4 1/2. I know how you feel about putting him on...
Hello Dennis, Your not alone in these struggle's. Our son has seizures for 14 years now (he's 19) along with daily AHC attacks. He is on seizure medication...
Our thoughts and prayers are with your family in this tough time. Chad and Roshell Hawkes Parents of Alicia 18 and Abbie 4 (both with AHC) and Bennet 8 weeks ...
Dennis, I read your e-mail about Jimmy. I am so sorry. I have a niece that specializes with behavior issues and has taught children with special needs in the...
Thanks, I will as soon as I can think again. Particularly since next year he will start high school and I want a good start. Unfortunately, Jimmy just had...
Dear Dennis, My heart goes out to you and Jimmy. I can't imagine how difficult this time must be for your family right now. Emma, 6, has had seizures since...
Dennis This is from another list serve I am on, but the steps for managing, identifying causes and positive therapies may be useful when you try to work with...
Hi Dennis, My daughter (14) has grandmal seizures. She was diagonosed with AHC at 6 months, then at 3 years started with seizures. At first they were only a...
Rachael, How are you doing? I haven't talked to you in a long time and was wondering how Levi was doing. Things here have been pretty busy with the new baby....
AHCF Family Meeting The 20008 AHCF family meeting will be near Chicago Illinois on July 25th, 26th, and 27th at the Marriott Renaissance Chicago O'Hare Suites...
Hi Chrystal, I am so glad to hear that your baby girl is here and that she is doing great. This is good news. Levi is doing okay. He has his ups and downs....
Hi Kelly, I just got a phone call from a man who is trying to contact your husband Gene and wanted to know if I knew how. I guess he got my number from the AHC...
Carol & Kevin
pruntys79@...
Apr 8, 2008 8:56 pm
6521
Hi Carol, I tried to email you twice, but I keep getting errors. You can email me directly at kelly_andrasco@.... There's an _ between my first and...
I am a new member on the yahoo AHC group but not new to the AHC disorder. Our daughter Torrie turns 17 this month and I can hardly believe that she is almost...
HI, Brenda I'm glad you found our group and was able to share some of Torrie's history with us. It's always helpful to hear about other's experiences with this...
Rachael, Hunter is doing good. We started him on Ambrotose back in October or November and I think it is helping. We hope to have him crawling in the next 6...
Now you can order cheap drug medications online such as pain relief, antidepressant and other drug medications without prescription and for a cheaper price. It...
Hi all, I came across a few articles regarding xenotransplant and the outcome seems to be very promising. I'm not sure if the procedure will benefit our...
Hello all, My name is Albert, I think my wife Amy is on here. Amy and I were married in Dec. and Amy has a 5 year old daughter named Gayle who has been...
Albert, Welcome to the group. There is so much to be shared and learned here and it does feel good knowing you're not the only one going through something...