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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 6503 - 6532 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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6503
hi all xxx kelsey has added more problems to my list , new attacks , she put s her head back and looks up to the sky with her eyes in the top of her head ,only...
joboxerbaby
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Apr 1, 2008
2:03 pm
6504
Joanne, Yes, we see this all the time with Trevor it started as he got older, usually comes before an episode although sometimes this is the only thing we...
Ms Karen Kluting
kluting1
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Apr 1, 2008
3:51 pm
6505
I haven't written for ages due to a few serious shocks. One is that Jimmy has developed epilepsy. I read that British Medical Journal article in which it was...
JIMMYAHC@...
dennis_kiern...
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Apr 2, 2008
12:30 am
6506
Dennis, This is Karen mom of Trevor who is 9. Trevor started having true seizures two years ago so I understand what you are going through. I have some ideas...
Ms Karen Kluting
kluting1
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Apr 2, 2008
2:52 am
6507
Hi Dennis: First of all your are definitely in a crisis. The seizures that accompany AHC were not fun for us and all of them life threatening. I took...
Lynda Burnham
lynda.burnham@...
Send Email
Apr 2, 2008
11:39 am
6508
Hi Dennis I know this must be tough for you. Joel started his "epileptic" seizures in August 06 - he was 4 1/2. I know how you feel about putting him on...
brendals76
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Apr 3, 2008
7:03 am
6509
Hello Dennis, Your not alone in these struggle's. Our son has seizures for 14 years now (he's 19) along with daily AHC attacks. He is on seizure medication...
Roberta Creech
bert_400
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Apr 3, 2008
11:58 am
6510
Our thoughts and prayers are with your family in this tough time. Chad and Roshell Hawkes Parents of Alicia 18 and Abbie 4 (both with AHC) and Bennet 8 weeks ...
Roshell Hawkes
rlanelh
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Apr 3, 2008
4:45 pm
6511
Dennis, I read your e-mail about Jimmy. I am so sorry. I have a niece that specializes with behavior issues and has taught children with special needs in the...
rachelrubow
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Apr 3, 2008
5:30 pm
6512
Thanks, I will as soon as I can think again. Particularly since next year he will start high school and I want a good start. Unfortunately, Jimmy just had...
JIMMYAHC@...
dennis_kiern...
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Apr 3, 2008
6:57 pm
6513
Dear Dennis, My heart goes out to you and Jimmy. I can't imagine how difficult this time must be for your family right now. Emma, 6, has had seizures since...
Platt, Vicky
ahcplatt
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Apr 3, 2008
7:34 pm
6514
Dennis This is from another list serve I am on, but the steps for managing, identifying causes and positive therapies may be useful when you try to work with...
kcventi
kcventi1
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Apr 4, 2008
1:07 am
6515
Hi Dennis, My daughter (14) has grandmal seizures. She was diagonosed with AHC at 6 months, then at 3 years started with seizures. At first they were only a...
Sylvia Ockman
sockman1253
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Apr 4, 2008
1:37 am
6516
Rachael, How are you doing? I haven't talked to you in a long time and was wondering how Levi was doing. Things here have been pretty busy with the new baby....
Chrystal Wagner
wagnerchrystal
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Apr 4, 2008
3:52 am
6517
AHCF Family Meeting The 20008 AHCF family meeting will be near Chicago Illinois on July 25th, 26th, and 27th at the Marriott Renaissance Chicago O'Hare Suites...
Sharon Ciccodicola
sharonciccod...
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Apr 4, 2008
6:38 pm
6518
I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page ...
pitxsxhbhjhm
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Apr 5, 2008
2:58 pm
6519
Hi Chrystal, I am so glad to hear that your baby girl is here and that she is doing great. This is good news. Levi is doing okay. He has his ups and downs....
rachelrubow
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Apr 6, 2008
1:48 am
6520
Hi Kelly, I just got a phone call from a man who is trying to contact your husband Gene and wanted to know if I knew how. I guess he got my number from the AHC...
Carol & Kevin
pruntys79@...
Send Email
Apr 8, 2008
8:56 pm
6521
Hi Carol, I tried to email you twice, but I keep getting errors. You can email me directly at kelly_andrasco@.... There's an _ between my first and...
Kelly Andrasco
gandrhotmailcom
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Apr 10, 2008
2:34 am
6522
I am a new member on the yahoo AHC group but not new to the AHC disorder. Our daughter Torrie turns 17 this month and I can hardly believe that she is almost...
brenda.dailey
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Apr 13, 2008
1:31 am
6523
HI, Brenda I'm glad you found our group and was able to share some of Torrie's history with us. It's always helpful to hear about other's experiences with this...
Jennifer
jejeant
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Apr 13, 2008
3:24 am
6524
Rachael, Hunter is doing good. We started him on Ambrotose back in October or November and I think it is helping. We hope to have him crawling in the next 6...
Chrystal Wagner
wagnerchrystal
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Apr 13, 2008
2:15 pm
6525
Welcome to the group, Brenda. Where do you live? We live in the NW suburbs of Chicago. Kelly Andrasco (mom to Kiley almost 7 yrs old) ... From:...
Kelly Andrasco
gandrhotmailcom
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Apr 13, 2008
5:22 pm
6526
We live in New London Wisconsin (near Green Bay) we are about 4 hours from Chicago. We are looking forward to seeing "old friends" and meeting new...
brenda.dailey
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Apr 13, 2008
7:55 pm
6527
Hi Chrystal, Write to my e-mail addy and I'll send you my phone number. rachelrubow@... I'd love to catch up! Rachel mum of Levi age 6...
rachelrubow
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Apr 14, 2008
2:00 am
6528
Now you can order cheap drug medications online such as pain relief, antidepressant and other drug medications without prescription and for a cheaper price. It...
almirahommel
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Apr 14, 2008
4:14 am
6529
Hi all, I came across a few articles regarding xenotransplant and the outcome seems to be very promising. I'm not sure if the procedure will benefit our...
Hur Hazlin Abdullah
hazzlynn_abd...
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Apr 14, 2008
1:28 pm
6530
Hur Hazlin Abdullah <hazzlynn_abdullah@...> wrote: Hi all, I came across a few articles regarding xenotransplant and the outcome seems to be very...
Hur Hazlin Abdullah
hazzlynn_abd...
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Apr 14, 2008
1:32 pm
6531
Hello all, My name is Albert, I think my wife Amy is on here. Amy and I were married in Dec. and Amy has a 5 year old daughter named Gayle who has been...
manalb169
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Apr 16, 2008
1:19 am
6532
Albert, Welcome to the group. There is so much to be shared and learned here and it does feel good knowing you're not the only one going through something...
Marcia Perkins
marcia_perkins
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Apr 16, 2008
12:20 pm
Messages 6503 - 6532 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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