Hi Brenda How are Joel's AHC symptoms doing on the 20mg of flunarazine? How long has he been on this dose. Addie has been on 15mg/day since 2yrs old and is...
Hi. Aryssa is 3 and she weighs 12.3 kg. She is currently taking 5 mg of flunarizine 2 times a day and 100mg of tegetrol in the morning, 125mg at night.. I...
AHCF Family Meeting The 20008 AHCF family meeting will be near Chicago Illinois on July 25th, 26th, and 27th at the Marriott Renaissance Chicago O'Hare Suites...
Hi Sharon, I realize that I'm probably missing the info thats in your e-mail, but could you please give me the e-mail address to the proper contact for making...
Our 19yrs old son is getting ready to order a new wheelchair and we were wondering what other families were using for their families. He has several behavior...
i am in the same dilemma. My son is 15 yrs (almost 16)and needs a new chair. He is about 5'7". He has hemiplegic episodes to both sides and developmental...
Jaci the person who I take care of is getting a manual chair which tilts back for when she is full blown. She can walk unless she is in an episode. One of...
Roberta, Our daughter got her second wheelchair last year. The first lasted 5 yrs and was a Quickie Zippie. The new one is a also a Zippie , Quickie Tilt...
Hi everyone, I know it's late notice, but was wondering if anyone would like to have their child/adult with AHC exchange valentine's again. Jocelyn loved it...
many thanks to everyone who replyed about kelsey . kelsey is my 4 year old , she s been un well since christmas , and very unwell for a week , with fits and...
Hi Joanne My son, Ethan (4) also gets all floppy and will fall easily when he is "overly" giddy. I say in "" because I think the giddiness is related to his ...
Hi Joanne My daughter can get giddy, slap happy, silly at times. Sometimes this will end in her being 'shaky' or her mouth tightening and tremoring. She...
Alaina gets uncontrollably giddy or silly at times and then will sometimes go into an episode. This is one of the signs that I have told her aide and others at...
HI Joanne, My son Hunter (2 1/2) gets really giggly before having episodes. You always know when he starts acting this way he is going to have some sort of...
We always thought it was laughing too much that caused the event not that it was necessarily a sign an event was going to happen. Sometimes when she reads too...
... would ... connected ... the ... My daughter Nicole would love to be in the Valentine exchange but your e-mail address didn't come through. Please contact...
Sure! We're in.....and thanks for thinking of this again. Karen Addie Venti 33 Dana Road Concord, MA 01742 ... would ... connected ... the ... My daughter...
Hi Joanne, When Ian, (almost 5) was younger he would run in circles laughing (almost manic like) only to exhaust himself and have an episode. Ian also gets...
Hi, Brooke would like to participate in the valentine exchange! Thanks. Dana Brooke Tasi 1 High Meadow Road Shelton, CT 06484 kcventi <kcventi@...>...
Dana Tasi
dtasi@...
Feb 10, 2008 11:22 am
6385
Hi Michele(10 yrs)Would like to do the Valentines exchange.We missed it last year.What a great idea.Thank you Suzie. Michele Urge 69 Jackson crt.East ...
Greetings Everyone, Billy and Olga put together a web page for the event http://www.osibusinessservices.com/ahc/ and have also added another comedian to the...
this looks like a great time and quite an impressive fundraiser....thanks for making it happen. karen and addie pgpalmerino <gpalmerino@...> wrote: ...
Does anyone know when the next family meeting is and where? Last I heard it was in Chicago this year 2008.........Is this still the case? Rachel mum of Levi...
Yes, it is in chicago. I got this email from Sharon. ( See below) I am planning on attending. How about you? Hunter is just coming out of a severe episode....
as most of you know kelsey my 4 year old has ach . yesturday my 8month old son had a fit , he was having a tantum and put him on the floor , i suddenly noticed...
Hello Joanne, So sorry to hear about your son having a fit. Life is so unfair, isn't it? Our prayers are with you and your family during this difficult time. ...
Oh Joanne. I'm so sorry. I pray that your son's fit was a one-time thing, brought about by his tantrum - that he does not have AHC. And I pray for you and...
Joanne, My thoughts and prayers are with you and your family during this difficult time. Might I suggest you contact one of the AHC doctors and ask if this ...
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