Goodmorning: Leslie has had multiple seizures lately and we are considering Keppra as an add on. Has anyone anything to report on the medication. Thanks ...
Lynda Burnham
lynda.burnham@...
Jan 7, 2008 12:54 pm
6312
Hi Lynda Sorry to hear of Leslie's seizure increase. Addie was put on Keppra at age 4yrs and they brought her seizures from 2-3 hrs in length down to 20-40min...
Hi all, Anyone out there with a girl who's either going thru or has been thru preteen-teen yrs that would talk with me over the phone about how they dealt with...
Keppra and B6 being taked about on another group so I am forwarding some more useful info. Karen Note: forwarded message attached. [Non-text portions of this...
Hi Lynda I forwarded some info on B6 to help w/possible behavior side effects of keppra. I just wanted to add that for Addie, the B6 revved her up and within 2...
Hello Karen: I am unable to pick up the infor on Keppra and B6. Would you please give be a brief. We are meeting with Dr. Andermann tomorrow and he wants to...
Lynda Burnham
lynda.burnham@...
Jan 8, 2008 2:39 am
6317
Lynda, My daughter Kristen went through the same thing years ago and we were offered Keppra and Zonegran. This was when they had just came out. We chose the...
Hello, Sorry to hear that Leslie has been having more seizures. 18 months ago or so, I was offered Keppra as an add-on too. However Keppra made me very ill,...
Thanks everyone for your responses. I am so afraid of Keppra, I am not sure why, but I guess it is the aggression, which in our case has totally subsided,...
Lynda Burnham
lynda.burnham@...
Jan 8, 2008 12:35 pm
6320
Hi Lynda Sorry it didn't come through yesterday. I copied the article here so you have the research info if needed. Please let me know if there is anything I...
Hi Lynda, Sorry for the late response but we tried Keppra for Alex's (10 Years old) seizures years ago with no success. WE always have the honeymoon period of...
Hannah, I know this will sound strange to some, because it did to her Dr. When Kristen started having grand mal seizures we went through all the drugs with no...
I was wanting to know if anyone has heard of the drug Nemotop and if their child has ever been on it. Lili has seen a huge increase in episodes especially...
Hi Linda So sorry to hear that Leslie is in hospital. Margaret has been Keppra for at least a half year, not because of grand mal seizures, but just because...
Don Kilpatrick
donkilpatrick@...
Jan 13, 2008 12:58 am
6327
Hi everyone. I have a lady who is 28 living with me. We have been working together for 5 years. She has AHC. She use to be on Flunanze, but it stopped...
Where in NC. Do you live. I live near asheville. My son is almost two. Sent from my Verizon Wireless BlackBerry ... From: "mycrew5" <mycrew5@...> Date:...
I have also learned it is more important to have a doctor who is Willing to work with other Dr.s than who have experience. Sent from my Verizon Wireless...
hi i havent been here for a year im mum to kelsey aged 4 in england uk . since i was here last i ve had a healthly baby boy aged 7 months . and my oldest 2 are...
My name is Angie.My son Isaac was born with ahc,but misdiagnosed for three years.I just want to say I'm glad I wasn't the only one going crazy and knew there...
I have no advice except sort out what is behavior from frustration with the AHC symptoms and what is "normal" child behaviors. We are trying to sort that out...
... daughter ... the ... seems to have less episodes it comes back more frequent and seem to get worse.Does it seem to you ,the bigger your child gets, the ...
Welcome to the group, Angie. We can all relate to your frustration of misdiagnosis. I told the doctors for 2 1/2 years that Laura had more than just seizures. ...
... seizures. ... the ... of his neurologist.We would go to see him and he would just prescribe another medication or go up in the dosage.Finally we found...
Hello Jo, Sorry to hear that you are having such a bad time with Kelsey. Don't be so hard on yourself... I am sure you are doing your best under such difficult...
Hello, Hope ur all well. I thought I would just share my excitement with you and some good news. I have just started a new job in pathology lab, after being...
That is great news Natalie. I hope you really enjoy it. Karen and Addie Natalie <nat_ngc@...> wrote: Hello, Hope ur all well. I thought I would just...
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