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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 6149 - 6178 of 7524   Oldest  |  < Older  |  Newer >  |  Newest
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6149
This sounds like a great fundraiser. Can we buy tickets for your raffle? Karen Angela Compton <harcompton@...> wrote: Hi, My son Hunter has been...
kcventi
kcventi1
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Oct 1, 2007
10:40 am
6150
Hi and thanks for your time, My daughter is 3.5 and has some form of episodic disorder that causes ataxia, reduced appetite, reduced language,...
sst27
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Oct 1, 2007
5:02 pm
6151
When I first started trading the stock market, there was not the wealth of information available online like there is today. I read a lot of books and learned ...
ptf olima
ptfolima
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Oct 1, 2007
9:28 pm
6152
I think it's great what you are doing. You can use Kristen's picture if you would like. Yvonne pgpalmerino <gpalmerino@...> wrote: Greetings...
Sylvia Ockman
sockman1253
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Oct 2, 2007
2:21 am
6153
The internet is jam packed with so-called independent experts who claim that they made a fortune trading stocks. They are only too willing to share those tips ...
ptf olima
ptfolima
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Oct 2, 2007
12:35 pm
6154
Hi, My son has Alternating Hemiplegia of Childhood. He is 16 years old now and I recently was able to move him into a group home. Unfortunately I could not...
d.wisyanski
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Oct 3, 2007
7:06 am
6155
Can they warn you or your son's house leader that they are doing it so he can be told it's going to happen and perhaps give him ear plugs for noise and keep...
kcventi
kcventi1
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Oct 3, 2007
12:19 pm
6156
Dawn, I can't help but wanted to let you know I understand how traumatic those alarms are for our daughter. The last time one went off it was in a hospital...
Heather
hossanova2000
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Oct 3, 2007
12:27 pm
6157
Fire alarms have been affecting TJ for years. It doesn't matter if he is warned or if it is a surprise. If he is warned, he begs to not be allowed to go to...
Wendy
lyxana
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Oct 3, 2007
12:58 pm
6158
You are welcome to use any of the pics of Jake S. on the site...also he has a website http://home.comcast.net/~cougercat/Jake.html where you can see more pics...
merido@...
take2xcess
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Oct 3, 2007
9:42 pm
6159
Summer, My son Jake, now 16 yo, began with such an episode when he was 14 months old. I thought he was having a stroke and took him immediately to his...
merido@...
take2xcess
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Oct 3, 2007
9:49 pm
6160
Wow! Thank you to everyone that has sent pics and/or granted permission. I can't tell you how much I appreciate it and how much I really think it will drive...
pgpalmerino
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Oct 3, 2007
11:56 pm
6161
Greetings Dawn, Ian just had a fire drill at his school and the staff made sure he was the first one out the door and then he waited with his aide, in the...
pgpalmerino
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Oct 4, 2007
12:19 am
6162
Has anyone ever run into having increased AHC problems due to a change in the manufacturer of Flunarizine? The last time we ordered we got a different generic...
Marcia Perkins
marcia_perkins
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Oct 4, 2007
12:49 pm
6163
When we gave Mary the generic it was like we weren't giving her anything. You can get the brand name from Mark's Marine Pharmacy 1-877-888-9265 Carol ... From:...
Carol
cprunty79
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Oct 4, 2007
1:01 pm
6164
Forex trading, or foreign exchange, is a market in which currency is changed from one type to the next in the hopes of making money off the trade. In fact, ...
ptf olima
ptfolima
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Oct 4, 2007
2:23 pm
6165
Paula, you can use photos of Jocelyn on the yahoo group (there are some from the Boston conference) and we'll e-mail some to you. Great fundraising idea! ...
Heather
hossanova2000
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Oct 4, 2007
2:24 pm
6166
I wanted to ask for feedback from anyone who has tried any of these supplements and what kind of results (pos, neg, none) you had. We are still trying to...
kcventi
kcventi1
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Oct 4, 2007
4:19 pm
6167
I noticed the same problem with Allison when she was on the generic. She is back on the brand name and doing much better. We also get it from Marks Pharmacy...
laurie ingwell
laurieingwell
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Oct 4, 2007
6:06 pm
6168
Hi, Karen We tried Carnitor with Alaina for a period of about a year when she was an infant/toddler before we started her on Flunarizine. We didn't see a...
Jennifer
jejeant
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Oct 5, 2007
12:37 am
6169
Hi Marcia, KIley takes a generic form of flunarizine because we felt the brand version was not as effective. As usual, all kids seem to react differently to...
Kelly Andrasco
gandrhotmailcom
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Oct 5, 2007
1:02 am
6170
HI, My son Hunter (1) has just been diagnosed and we are trying meds for the first time. One of our doctors put him on topomax. Has anyone had this...
Angela Compton
harcompton
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Oct 5, 2007
3:10 am
6171
all of the meds we have used for our son has been great and as they say it has a honeymoon period, Tyler is on Flunarizine and clonazapam and it works but...
erika misenti
emisenti
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Oct 5, 2007
3:21 am
6172
Hi, Im ashleys dad,she is 18,topamax did not work for ash,they call it dopeamax because it make them very tired and slow,there was no success with this at...
MANEEXP@...
Send Email
Oct 5, 2007
4:09 am
6173
I am thinking about flunarizine because of the side effects of the topomax. It has decreased the episodes but also his appetite , however he is regaining...
Angela Compton
harcompton
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Oct 5, 2007
10:42 am
6174
Hi Renee A little off your subject but thought I'd mention we finally managed to get our insurance company to reimburse us for flunarizine after I heard from 2...
kcventi
kcventi1
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Oct 5, 2007
11:48 am
6175
I called SHore Pharmacy yesterday b/c that is where we get our prescription filled. THey told me there is no generic in Canada and that sibelium is...
kcventi
kcventi1
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Oct 5, 2007
12:19 pm
6176
I do think Sibelium is the name of the drug but to me the brand name would be the one we used to get that Jansen Pharmaceuticals produces. I'd have to look at...
Marcia Perkins
marcia_perkins
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Oct 5, 2007
12:26 pm
6177
Thanks for the info and phone numbers. Jennie usually snaps back quite quickly but this time is different. In an answer to another question we do give Jennie...
Marcia Perkins
marcia_perkins
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Oct 5, 2007
12:39 pm
6178
Hi, Karen (and all) We get our generic Flunarizine from Canada. It is called APO-FLUNARIZINE by Apotex Inc. It is in a red/white/blue box. I can scan a picture...
jejeaja@...
jejeant
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Oct 5, 2007
2:08 pm
Messages 6149 - 6178 of 7524   Oldest  |  < Older  |  Newer >  |  Newest
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