What if the Alternating Hemiplegia of Childhood Foundation earned a penny every time you searched the Internet? Well, now we can! GoodSearch.com is a new...
Dear Families, Because of lack of interest and response, the next family meeting scheduled for November 1-3, 2007 in Utah has been canceled. We only had 10...
Oh, no! We were absolutely planning on attending. How would the group know which families were going to attend because we haven't RSVP'd to anyone yet. Was...
This is great!!!!!!! Thank you Vicky! We're already using it and we are forwarding it to all our family and friends! Best, The Palmerino Family ... revenue, ...
We too have sent this e-mail to all of our family and friends. Hopfully it can be a great tool in raising money and awareness in our family and friends. Great...
Hi Sofia, It seems that I can relate with what you are saying about your kid with AHC. And this thing about toxins do make sense. Our daughter has been...
Lynn, I was just wondering a few things about cancelling the Family Meeting. Isn't there any other hotels that we could look into? One's that would allow for...
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Just wanted to say hello and hope all is well with each and everyone of you. I posted a couple new pictures of Gayle so I hope you enjoy. Best wished Amy &...
Hi, I am Renee, My son Hunter is waiting on a diagnosis for AHC. He is seventeen months old. It has affected him since birth. His episodes have a clear...
Hi Renee Welcome to the group! Where do you live? We live in a suburb of Chicago, IL. Kelly Andrasco (Mom to Kiley-6 yrs old) ... From: afha@yahoogroups.com...
Hi, I am Renee. My son is undergoing testing for AHC. His name is Hunter. He is one year old. It is good to see pictures of other children. I am a teacher...
I just saw the picture of Gayle. She's adorable Amy! Thanks for sharing. We took some pictures this morning because Alaina started first grade today. I'll see...
I live in Brevard, North Carolina. It is a small town. Our county is Transylvania. It is the land of the waterfalls. We have hundreds of falls in our...
HEY EVERYONE MY NAME IS MARYANN & I LIVE IN JAX,NC.I HAVE A 16 YR OLD NEPHEW WITH AHC.HE ACTUALLY LIVES IN PA.I JOINED THE GROUP TO LEARN MORE ABOUT IT. ... is...
Hi do you livein Jacksonville NC? or is there a Jax NC and where is it located/ I am about an hour and a half or so form Jacksonville if thats where you are....
i am from jacksonville,nc.the where camp lejeune is.its a small place but ok.nothing to do here thats for sure.where abouts are you at? maryann Angela Compton...
I'm looking for feedback on how many teen/young adult individuals we have out there with AHC. My daughter Jennie who is now 20 really wants to get something...
Hi Marcia, Ryan is 26 and has never met or spoken with someone who has AHC. I also think it would be very nice for these young adults to connect with ...
... She'll be 18 in Jan. I know she wants to meet other young adults/teens with AHC. There's many times she feels she's the only one with this illness. Nicole...
I would be willing to try to put together a gathering this fall/winter in the midwest somewhere, so that the parents and kids can get together. I live in the...
We are in Kansas City, Missouri and would definitely consider coming up to meet with other families. Chicago was a good place for us, but, would consider...
Hello Everyone, I wanted to say a few words about the family meeting scheduled for November. Nobody was more disapointed than the executive committee of the...
Thanks ,Willem for sharing the photos. The Dutch AHC website is very nice. I had never seen it before. Thanks for sharing. Take care, Jennifer (mom to Alaina,...
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