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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 5950 - 5979 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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5950
Danielle, I don't have much time right now so I thought I would just give you my phone number so that you can contact me directly. If this won't work for you...
Chrystal Wagner
wagnerchrystal
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Jun 2, 2007
4:16 am
5951
I met my future wife here! hehe. And thought I should share it with any other men who are worried about ending up alone like I was. Check it out if you...
chani-kopnicky966@...
Send Email
Jun 2, 2007
2:55 pm
5952
Hi, There was an article in the Kansas City Star last weekend about a girl with a dopamine deficiency. Her symptoms sound so much like AHC. Although, it...
Jennifer
jejeant
Offline Send Email
Jun 3, 2007
2:44 am
5953
Hi Jennifer I tried to accesst his article but I have to pay. Can you copy and paste it into an email and send it? I'd be interested in reading it. Thanks ...
kcventi
kcventi1
Offline Send Email
Jun 3, 2007
12:03 pm
5954
Hi Jennifer, Just wanted to let you know that our son Hunter takes Dopamine (carbidopa/levadopa). At our first visit with Dr. Swaboda in January she looked at...
Chrystal Wagner
wagnerchrystal
Offline Send Email
Jun 4, 2007
1:14 am
5955
Hi, Here is a link to the article that should work and doesn't require a payment. http://www.kansascity.com/105/story/124409.html Let me know if you cannot...
Jennifer
jejeant
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Jun 5, 2007
7:39 pm
5956
Thank you, Jennifer, for the link to this article. It was well worth the read. I hope that everybody on this email group takes the time to read this article......
Glenda Davies
sakareassen_...
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Jun 6, 2007
12:00 am
5957
Hi Everyone, My son Jacob, age 15, takes Sinemet, levodopa, for his dystonia. We have had mixed success with it. Every time we bump up the dosage, he goes...
merido@...
take2xcess
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Jun 6, 2007
10:33 pm
5958
Hi Hazlin-- my son David is 17. We didn't notice any difference when he was on co-enzymeQ10, but I give him a high potencey multiple vitamin with a high amount...
huizing_1
Offline Send Email
Jun 7, 2007
3:30 am
5959
Becky, Can you give this just when they are having the dystonia or do they have to take it daily to work? Thanks, Heather (mom to Jocelyn , 8 1/2)...
Heather
hossanova2000
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Jun 8, 2007
12:45 pm
5960
Jennifer, thanks for the link. The article was very interesting. Would be worth mentioning/sending link to all our neurologists. Heather...
Heather
hossanova2000
Offline Send Email
Jun 8, 2007
12:46 pm
5961
Hi all, has anyone's child with AHC had a cast? Jocelyn fell off a step stool (stepped up on it with socks and slipped off course when I wasn't right there!)...
Heather
hossanova2000
Offline Send Email
Jun 8, 2007
12:55 pm
5962
Heather- While Emma hasn't had a need for a cast, I do wish Jocelyn a speedy recovery. May the next four weeks pass without episode. Best wishes, Vicky Platt ...
Platt, Vicky
ahcplatt
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Jun 8, 2007
2:00 pm
5963
It works best when given every day. He currently takes 1 tab in AM, 1/2 a tab in PM but can add another 1/2 tab as needed. There is a long-acting form of...
merido@...
take2xcess
Offline Send Email
Jun 8, 2007
8:06 pm
5964
This is just awesome guys! I finally got around to graduatin and I didn't even have to turn up a single day this time around to get my final credit points. Now...
chani-kopnicky158@...
Send Email
Jun 10, 2007
10:22 am
5965
Just got my BA and i did not even have to go to the campus for 1 day! Just got a tip from a friend and gave these guys a call 770-621-2634, completed a ...
chani-kopnicky158@...
Send Email
Jun 11, 2007
9:26 am
5966
the extender http://www.crovds.com/lxuz...
chani-kopnicky158@...
Send Email
Jun 11, 2007
10:59 am
5967
Heather! Alaina hasn't had any broken bones yet (knock on wood) - but, we hope Joce gets healed up fast! Take care, Jennifer (mom to Alaina, 4/7/00) ...
Jennifer
jejeant
Offline Send Email
Jun 11, 2007
7:42 pm
5968
I think someone posted this question last week or so, but, will there be a family meeting this summer?? We are already in June and if it will be next month, we...
Jennifer
jejeant
Offline Send Email
Jun 11, 2007
10:14 pm
5969
Glenda, My name is Chrystal Wagner. My son Hunter currently takes Dopamine. He is on a compound- Levadopa/Carbidopa. We think that it has helped him. The...
Chrystal Wagner
wagnerchrystal
Offline Send Email
Jun 12, 2007
4:40 am
5970
Thanks Chrystal. Glenda ... From: Chrystal Wagner To: afha@yahoogroups.com Sent: Tuesday, June 12, 2007 2:40 PM Subject: Re: [ahc] Dopamine DRD Glenda, My name...
Glenda Davies
sakareassen_...
Offline Send Email
Jun 12, 2007
11:26 pm
5971
no degree = no job = no money get an instant university degree = higher salary no required tests, classes, books, or interviews! get a Bachelors, Masters,...
chani-kopnicky158@...
Send Email
Jun 13, 2007
11:46 am
5972
People judge your dick size by your shoes size. With xtrasize+ you dont have to wear bigger shoes to make women think you have a huge dick. You can...
chani-kopnicky158@...
Send Email
Jun 14, 2007
12:03 pm
5973
Hi Everyone, I wanted to find out what others are doing for their children if they require breaks or more specifically naps, at school. Addie has just made it...
kcventi
kcventi1
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Jun 14, 2007
1:06 pm
5974
Abbie used to go to the nurse's office for naps as needed.  Her teachers learned to recognize when she was getting wobbly, so they would know when she needed...
KathHurl@...
Send Email
Jun 14, 2007
3:19 pm
5975
Hi Karen, for the first two 1/2 years my son Tyler would get a nap, I don't know how your childs class room is set up or how many children are in your childs...
erika misenti
emisenti
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Jun 14, 2007
5:20 pm
5976
Hi Karen, Our daughter Michele is 10 and she naps at school almost daily, it took us a very long time to get people to understand that once she takes a nap she...
Michele
miska1997
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Jun 15, 2007
3:41 am
5977
Hi Karen, When I was at school, (I'm 27 now) I regularly had a sleep or nap at school, it was the only way I could get through the school-day. In primary...
Natalie Lloyd
nat_ngc
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Jun 15, 2007
7:43 am
5978
Hi Everyone, Ever since we doubled Cameron's (8-year-old, first-grader) Flunarizine up to 10 mg per day, he has needed very long naps. Luckily I am his aide...
Nancy Barrett
margsmac
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Jun 15, 2007
4:52 pm
5979
Hi Everybody We are going to Disney World at the end of August. Have any of you had any suggestions? Michele Just turned 10 loves roller-coasters and hate loud...
Michele
miska1997
Offline Send Email
Jun 20, 2007
1:38 am
Messages 5950 - 5979 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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