Hi. Aryssa was diagnosed with low thyroid too when she was about a year old. She is now on L-Thyrosin . She has her blood check-ups every 3 months or so to...
Here is the link to the group on Facebook' http://www.facebook.com/group.php?gid=2337078972 feel free to join and post Wendy ... From: afha@yahoogroups.com...
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Hi I am mother of Jesse a 1y.o. boy. We have a recent diagnosis and are overwhelmed with stuff. We are confused and not quite sure what to expect. Thank you ...
Danielle, You are in the right place, Danielle. We have all been where you are now and we know how you feel. Please feel free to ask any questions. There...
Danielle, Welcome to the group. Feel free to ask any questions. We all know what an overwhelming time it can be to get the diagnosis and all the questions...
Hi Danielle, I am Karen, mom to 7 yr old Addie with AHC and seizures. She is doing well and is happy eventhough she struggles with her symptoms. I hope we can...
I knew there had to be a group of parents out there. Ones that were willing to support, hold, pray for, and encourage one another. I have sent so many e-mails...
I forgot to ask are your children on dual indurance. I cannot get a private insurer to take Jesse. Medical tells me I have to liquidate my retirement and sell...
Hi Danielle -- Have you looked at the website: www.ahckids.org ? It has a lot of info that you may find helpful. I have a daughter, Abbie who is almost 18...
KathHurl@...
May 8, 2007 3:42 pm
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Dear Danielle- We understand your sense of isolation. We have felt your fear, anger, and frustration. We have met doctors that know very little about the ...
I would really like to encourage more people to give the Facebook groups a try. Facebook is a social networking site similar to Myspace, but with better...
Danielle, Welcome! If you have the time I suggest you go back and read old postings. There is a wealth of information there. I think the only thing we do...
At no point did i start the group on facebook to take over, or stop this group from progressing. i think that both are great ideas. My vision for the group...
... to ... Dear Danielle, You've come to the right place. My daughter Nicole is 17. She has ahc and a seizure disorder. It seems the ahc episodes are getting...
Hi Danielle, I have a 4 year old son with AHC, Zachary... .We live in Northern Ca - North of Chico in the mountains, Chester CA. It seems like yesterday I was...
Hi Faye, We live in Placerville, Ca In between Sacramento and Lake Tahoe. Should you ever travel near here let me know. I would love to meet up with you. We...
hello my son is Tyler and he is turning 9 on moyhers day what a blessing. my son has been lucky because he has been able to have mainecare wich most places...
Danielle, At 3 months we brought Zach to the Mind Institute in Sac. with curious eye movements - nystagmus. He was not diagnoised until 11 months after we had...
Thank you! Having another parent is so comforting. Jesse is a pt. of Dr Pinter. Do most kids live a special delayed life? Should we plan on that? Thank you ,...
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Danielle, Most kids with AHC have some delays or issues that follow them through life. But at the same time these kids are happy, kind, intelligent, silly,...
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Julia would like to invite you to join her circle of friends. Check her circle of friends here: http://juliafriends32633.googlepages.com/juliafriendcicle.htm...
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