Hi Everyone, We have just returned from another meeting with our school district regarding Trevor our 7y/o with AHC. I have a couple of questions to post...
Hi Karen This is Karen V., mom to Addie age 7. Addie is in small classroom, no more than 10 kids. She receives her speech, OT/PT and has a nurse in her...
Hi, Karen I'm sorry to hear about the challenges you are having with Trevor's school. Alaina is in Kindergarten (repeat year) and we have seen an increase in...
Hi Jennifer, I too have been wandering of late what outside activities Joel (almost 5) can be involved in over the next 12 months. Our case worker has...
Hi Jennifer, We also did a repeat of kindergarten with Trevor, it was good and bad in that he lost a lot of "friends" peers who moved on but it was good in...
Karen, Thanks for your response, we have already been round and round with the school for the past few years, it is an ongoing battle to get the best for...
I think the smaller classroom has helped Addie but the biggest thing was the addition of 2 girls that liked to do the things she liked and were social with...
Hello, Just back from my London neuro appointments - which were very interesting. To put a long story short, we were talking for ages about my condition -...
Yes, Trevor loves to paint, draw etc. He does this almost every day at school. I will ask about a reward system, I had a talk with the class the first part...
Hi Karen It really is one thing after another. The school cannot change services without your signed consent. Whatever is written into the service delivery...
Hello I have several questions to ask the group 1) In the US, is there a national or state association which deals especially with the needs of the mentally...
Don Kilpatrick
donkilpatrick@...
Jan 8, 2007 3:20 pm
5347
Hi Janet, Each state is different in how it deals with the mentally or physically disabled. In California there is a state run program that was instituted ...
Thank you, Carol. That is helpful information. Janet ... From: Carol Presunka To: afha@yahoogroups.com Sent: Monday, January 08, 2007 4:38 PM Subject: RE:...
Don Kilpatrick
donkilpatrick@...
Jan 9, 2007 2:06 am
5349
fyi please share Note: forwarded message attached. [Non-text portions of this message have been removed]...
Hi everyone, I was just wondering if any of you notice that your AHC kids go into bilateral episodes when they are cutting teeth. I think that my son Hunter...
hi nat can you please tell me your symtoms over the last 25 yrs as i have a 15 year old daughter who for the last 10 years have had 3 diagnoise and they have...
hi nat can you please tell me your symtoms over the last 25 yrs as i have a 15 year old daughter who for the last 10 years have had 3 diagnoise and they have...
Jackie, My daughter Jennie, age 19, suffers from migraines, dystonia, full body and side to side paralysis (the full body attacks are very much like what you...
Hello Jackie, I hope u and your daughter are well, and i hope i can bring some comfort in that i've been mis-diagnosed with question marks for many years -...
thanks marcia ive tried asking the doctors if theres a chance it could be ahc and they have said no that it would have developed at a earlier age feel like im...
My 15 yr old, 7th grader (3 yrs behind), is also having trouble (both behavior and paralysis/dystonia) which I believe is due to recent aide transitions. He...
Hi, Natalie I was happy to read that you are getting with a doctor that may understand better what you are going through. Good luck with that. I have a...
.abey started all this when she was 5 years old after contracting meningitis's/encephalitis's they did a EEG and decided she was borderlining a fit so they...
hi nat thanks for the reply im glad you are seeing someone that will hopefully give u a light at the end of the tunnel.abey started all this when she was 5...
Hello, Thanks for your email. I can sort of sometimes tell that one is going to happen... just a kinda feeling of knowing its about to start. not saying that...
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Hi Chrystal, I am trying to remember back to Trevor being 18months, in looking back at his baby books, it seems any stressors being teething, sickness,...
Hi everyone, I wanted to see if anyone would be interested in a Valentine's Day card exchange between all the kids/adults with AHC. Jocelyn always loved to ...
I think it's a GREAT idea!! Thanks for offering to put it together. I will email you our address. Take care, Jennifer (mom to Alaina, 4/7/00) jejeaja@......
What a great idea! Yes! Yes! Yes! I'll email you right away. Nancy, gram to Cameron, 8 years _____ From: afha@yahoogroups.com [mailto:afha@yahoogroups.com]...
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