hi my name is jackie i have a 15 yr old girl called abey who was diagnois with hemiplegic migraine with paralasis 4 years ago after being treated for fits for...
hi my name is jackie i have a 15 yr old girl called abey who was diagnois with hemiplegic migraine with paralasis 4 years ago after being treated for fits for...
Hi Jackie Have they ruled out seizure actctivity during this event? Did a catscan tell them she had a mini stroke or are they assuming it is a TIA? Has...
hi thanks for the reply thy have done another eeg on abey and although abnormal it was normal for abey as she has had eegs every year since she was 5 she was...
On the 18th November, Earl (Laura's dad) Laura and I made the trip from Melbourne to Sydney to meet up with 2 other families: Brenda, David, Cassie and Joel....
Hi- My name is Allison Baker. I'm 16 years old. I have ahc. Allison Baker alli ... Check out the all-new Yahoo! Mail beta - Fire up a more powerful email and...
Hi Allison Welcome to the group. There is another young lady who is online sometimes her name is Natalie. Hope you are doing well. I have a little boy who is...
Hello Allison, Welcome to the group! Where are you from? I have a daughter, Laura, who is 19 with AHC. Glenda (Melbourne, Australia) ... From: Allison Baker ...
Hello Allison, Welcome to the group. Its exciting to have another young person online. Where are u from? I'm Natalie 26 UK. Hope ur well. Natalie :) ... ...
I'm from Madison Wi Allison Baker Glenda Davies <gkdavies@...> wrote: Hello Allison, Welcome to the group! Where are you from? I have a daughter, Laura,...
I'm from Madison Wi AllisonBaker Glenda Davies <gkdavies@...> wrote: Hello Allison, Welcome to the group! Where are you from? I have a daughter, Laura,...
Hi, Allison. Welcome to the group. I have a 5 year old daughter with AHC. We live in Lake Zurich, IL. We're probably a couple of hours from you. Kelly...
Hello Allison, Welcome to the group! ... -- Uzman Süleyman Aşıcı Ege Üniversitesi BİTAM Network Yönetim Grubu Network Yöneticisi Tel: 343 40 00 - 5369 ...
Hi Allison, My daughter, Emma is almost 5 years old and we live in Mt. Prospect, Illinois. I think Madison is around a three hour drive from us. In September...
Hi Glenda, Thanks for posting the photo's. We had a fantastic time in Sydney meeting with your family and Cassie's. Joel was the best he had been in ages. As...
Hello, Just thought I'd let u no, I've had my referal date through to the London National neurology hospital to see Prof Hanna on 18th Jan. I am quite...
... I hope you get answers and find what you are looking for Natalie. I also wanted to wish everyone a wonderful holiday and new year. (Hope this one will be a...
Hope this finds you and your families well. I would like to take this time to wish all of the families affected with AHC a Merry Christmas and Happy New Year....
I was just catching up on the latest postings. I want you to know that you are all in my prayers, and on my mind more than you can know. My hope is that this...
Thank you to all who have sent Christmas greetings. And to those who are reading this: Have a Happy, Holy, Christmas and a healthy and safe 2007. May you also...
I will out of the office from December 20th, 2006, until January 3rd, 2007. Please call 00 33 1 41 06 57 00 for any information or urgent request Thanks and...
Merry Christmas to all, and I wish you a very happy and blessed new year in 2007 Blessings at Christmas Natalie Julie Hesse <jhesse@...> wrote: I will out...
I have a 14 years old daughter who is affected by AHC. Because of this disease she has distony disorders in her legs. Our doctor suggested us to inject...
HI Rafi, I have not yet heard of Botox for AHC, but I have a friend with a child with cerbral palsy and they have successfully used Botox to help him walk. (he...
I have also heard of Botox being used for migraines. Karen brendals76 <stedy@...> wrote: HI Rafi, I have not yet heard of Botox for AHC, but I have a...
Our daughter Mary, now 20, has had the injections twice. Once about 5 years ago and I didn't think that they did any good. (Mary cannot say for herself if...
Hi Everyone, We have just returned from another meeting with our school district regarding Trevor our 7y/o with AHC. I have a couple of questions to post...
Hi Karen This is Karen V., mom to Addie age 7. Addie is in small classroom, no more than 10 kids. She receives her speech, OT/PT and has a nurse in her...
Hi, Karen I'm sorry to hear about the challenges you are having with Trevor's school. Alaina is in Kindergarten (repeat year) and we have seen an increase in...
Hi Jennifer, I too have been wandering of late what outside activities Joel (almost 5) can be involved in over the next 12 months. Our case worker has...
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