Carla vi o seu e-mail no grupo de Emiplegia Alternante da Infancia. Meu ingles nao e muito bom, o que impossibilita a comunicacao no grupo. Me retenho apenas...
524
Karla Costa
karlafrazao@...
Aug 4, 2001 11:41 am
Olá Vilson, como vai? Também não domino muito bem o inglês, por isso tanta demora para entrar para este grupo. Para nós, aqui no Brasil, foi muito bom ter...
525
kluting1@...
Aug 4, 2001 2:39 pm
Hi there, During the past six months we have been using valium to break Trevors episodes. We were only giving it rectally 2.5 mg if he had a severe episode....
526
KathHurl@...
Aug 6, 2001 2:01 pm
Hi, Karen -- we used to see Dr. Mikati when he was at Children's Hospital in Boston. Since his departure, we have seen Dr. Riviello who was aware of Dr. ...
527
popcornkcv@...
Aug 11, 2001 1:32 pm
Has anyone seen Dr Andermann in Montreal for a review on your child's AHC diagnosis. We have been referred there for a second opinion or more accurately to...
528
Lynda Burnham
lynda.burnham@...
Aug 11, 2001 4:09 pm
Hi Karen: Leslie has been a patient of Dr. Andermann's for 37 years. To this date, we still have nothing new. He works with a team of neurologist and is very...
529
blava69
blava69@...
Aug 11, 2001 6:40 pm
Hi Karen, It sounds like your daughter had a seizure Our daughter Michele is 4 and she doesn't jerk and never had the drooling and frothing.The only thing that...
530
Carol
sunplace@...
Aug 11, 2001 10:28 pm
Hi Karen, It sounds like your daughter had a seizure. My son has them along with the episodes. One of his seizures have lasted over 30 minutes. Our mistake...
531
yvonne3
yvonne3@...
Aug 12, 2001 4:02 pm
Karen, Your daughter's attack sounds to me like a seizure. My daughter has AHC and Epilepsy. She has the very same kind of seizures. They have happened the...
532
Don Kilpatrick
kilpatri@...
Aug 12, 2001 4:31 pm
Karen, Our daughter was diagnosed by Dr. Andermann in 1982 (at which time we first met Lynda Burnham's family for the first time). He might be good for...
533
MANEEXP@...
Aug 13, 2001 8:20 pm
hi, Im Ashley's father she is 12 yrs,she is now at times raising her elbow out stright with her fist toward her face and its stiff and she cannot control it,it...
534
Bob or Donna Busby
rbusby@...
Aug 13, 2001 8:28 pm
Hi David, I am Donna, my son Jayme has had this for years, He is fifteen now It is part of the Dystonia that goes along with the AHC in some of thie kids. It...
535
ADCAR@...
Aug 14, 2001 12:52 am
Hi, My son Louis who is 16 also gets this,exactly as Donna described Jayme getting them. Louis has been getting them for the past few years and he also says...
536
Laegan@...
Aug 14, 2001 10:43 pm
537
MandM421@...
Aug 18, 2001 12:46 pm
I haven't gotten to get on the computer much with a new baby and all.........but it's so weird lately when I do get on the questions I wanted to ask are right...
538
MANEEXP@...
Aug 18, 2001 2:30 pm
Hi mindy, we have in Penna. Medicade,which covers anything over and above our insurance,we have HOM also,Ashley is 12 and is in a pogon stroller which is big...
539
KathHurl@...
Aug 18, 2001 6:17 pm
Hi, Mindy -- we got a wheelchair for Abbie when she was about 8 or 9. She's able to walk short distances without too much problem but we really needed the...
540
Jennifer
jejeaja@...
Aug 19, 2001 3:38 am
After seeing the recent emails posted, I would like to know if most every child affected with AHC will require the use of a wheelchair/stroller? Our daughter...
541
ggarnet102@...
Aug 19, 2001 8:36 pm
hi Jennifer, My son Ryan walked at five and a half. As a two year old the therapist fixed us up with a walker. He loved it and he learned how to get around by...
542
Mkderks@...
Aug 20, 2001 2:37 am
My son Nick is 11 and we do not have a wheel chair or stroller for him. I don't think he would use either one without putting up a huge fight. Nick walked...
543
Thomas Campbell
thomas_e_campbell@...
Aug 20, 2001 10:38 am
Hi Jennifer, My name is Sherry and my son Tom has AHC and is 22 years old. He started pulling himself up at about 22 months and was walking independently at...
544
MandM421@...
Aug 20, 2001 12:35 pm
jennifer My daughter hailey started walking at age 2 she does have low muscle tone and isn't so sturdy on her feet but i was just looking into a stroller...
545
Becky
becka@...
Aug 21, 2001 3:36 am
Mindy, Jake is 9 and can't walk long distances. Also, he is too heavy for me to carry now. We have used 3 different stroller type chairs for him. One was a...
546
Marcia Perkins
marcia.perkins@...
Aug 21, 2001 12:39 pm
All children are going to be different. My daughter, Jenny (14), walked when she was 17 months. She does periodically have the need for a stroller/wheelchair...
547
Dana Tasi
dtasi@...
Aug 27, 2001 11:23 am
Hi, my 10 year old daughter, Brooke has been on Flunarizine since age 2. I remember that a couple of AHC children are on Neurotin. For those of you who have...
548
popcornkcv@...
Aug 27, 2001 12:21 pm
Why are children with AHC on Ritalin? Is it due to attention issues or is their some link with the dopamine uptake? I have a 2yr old with AHC and a 7 yr old...
549
Alsemb1234@...
Aug 27, 2001 3:03 pm
Dana, My daughter Amanda in on neurotin and has been for 2 years. We are on it to help with behavior and also seizure like episodes. We have seen no ...
550
Marcia Perkins
marcia.perkins@...
Aug 27, 2001 6:13 pm
My daughter, Jenny age 14, has taken Imitrex for headaches but as she got older found that Advil almost works as well along with using Migraine Ice (a gel pad...
551
lyxanna{TZ}
lyxannatz@...
Aug 27, 2001 7:53 pm
well it is official....we are going to Disney Land.... My mom and dad have decided that we will be driving down from Hamilton Ontario Canada threw the...
552
Marcia Perkins
marcia.perkins@...
Aug 27, 2001 8:22 pm
Wendy, We went to Disney World and it was totally accessible. If you child isn't always in a wheelchair put him in one anyway for the parks. You are able to...
