Has anyone's children with AHC had elevated ammonia levels? If so, was other blood work abnormal and what was suspected? thanks Karen [Non-text portions of...
Natalie, sorry for a late reply. but just wanted you to know I've been thinking about you and all the children and adults with AHC. I'm praying for you. Our...
hi Natalie I can understand you situation very closely, My husband and I have never had any outside or family help with Emily. We have raised Emily now 14,...
I was looking through old posts and saw that some parents have been ordering flunarizine through a Thai web site 1drugstore-online.com. Is no prescription...
Hello, I am so thankful for all the support that this wonderful group of people has/is giving me. I have taken much comfort from the fact that I am no longer...
Hi Becky, This is Dana Tasi - Brooke's mom she will be 16 next Monday. We get Flunarizine through Marks Pharmacy in Canada. The number is: 1-877-888-9265....
Dana Tasi
dtasi@...
Oct 2, 2006 11:56 pm
5168
Becky, We have purchased Flunarizine through 1drugstore-online.com and had no problems. Marcia Perkins _____ From: afha@yahoogroups.com...
Hello My 25 year-old daughter has recently started complaining about a very severe pins-and-needles feeling in her feet during an episode. Has anyone else ...
Don/Janet Kilpatrick
kilpatri@...
Oct 4, 2006 7:19 pm
5170
Jennie, age 19, has complained of this before and has said that it's so strong it hurts. Also, if by chance your daughter is taking Topomax, that is one of the...
Hello again, Tonight, Joel (4) is back in hospital with more seizures, he had four in a short period of time, so they decided to admit him. (he only came home...
Hello Brenda, I am sorry to read that you are having such a bad run with Joel's seizures. My thoughts and prayers are with you. Laura used to be on Tegretol...
Emma(4.5) also experienced an increase in seizure activity shortly after her 4th birthday. We finally got them under control using Topamax and Flunarizine. I...
Brenda, So sorry to hear about Joel and what your family is going through. I can't share any experiences in regards to the seizures. But, I am hoping and...
Hi Glenda Joel has had three Grand Mal (Clonic Tonic) seizures since August, his last one being Tuesday this week, that is when the started the Epilim....
HI Vicky, Does the flunarazine actually help in seizure control? Joel has been on Flunarazine since 1 yr old for the AHC, but I was speaking to the Dr today...
Brenda- For Emma we have seen definitive improvement with seizures only after getting the proper dosage of Topamax. The dosage started out a bit high and...
Hi Brenda, I am glad to read that Joel is home from hospital. I bet he is just fine now... and YOU are exhausted! I would love to meet with you (and Cassie) in...
Hi Brenda Are the docs getting an EEG to confirm the seizure diagnosis? Mydaughter also has seizures butour local hospital is unable to get leads on her...
Hi Karen, I think the EEG is to check if they can pick up any damage because the decision to do an EEG came after the hour long seizure. To me, there appears...
... With my expierence with the eye movements and head going to one side was first diagnosed as partial seizures. BUT, nothing ever came up on the EEG. This...
We had the same experience with Kiley here in Chicago, Illinois. By the way, I posted this once before.do any of your children have somewhat excessive body...
I thought my daughter had a somewhat increased amount of body hair and asked her pediatrician. She is dark haired and had noticable hair down her upper back....
Hello to everyone. I would like to see how things are going for those of you with children experiencing behavior problems. My daughter had started taking...
Hi there, My son Ryan (25) takes Ritalin, however at present it doesn't seem to be helping as his behavior is such that I'm getting complaints from the program...
Yvonne: we also had to take David age 16, off Zoloft due to side effects. Right now we are trying to increase his anti-seizure med-- Divalproex, as it has a...
Kelly: David has very much excessive body hair and it has gotten much more since puberty. He was on flunarizine when he was younger, but has not been for the...
... I would like to ask anyone what sort of bad behaviour any one has experienced. Does anyone have a child who is, or used to be a head banger? It would be...
What kind of side effects are kids experiencing from Zoloft? ________________________________ From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On...
Hello Val, Yes... Laura has obsessive/compulsive behavior. It drives me crazy! For example, she has to do everything FOUR times: Laura washes herself four...
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