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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 5022 - 5051 of 6715   Oldest  |  < Older  |  Newer >  |  Newest
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5022
GOODMORNING; YES I HAVE EXPERIENCE THIS WITH LESLIE AND IT IS VERY FRIGHTNENING. I CALLED THEM 'MOUTH SEIZURES' BUT OF COURSE THEY ARE NOT VERY COMMON. THEY ...
Lynda Burnham
lynda.burnham@...
Send Email
Aug 1, 2006
12:02 pm
5023
This is really odd because I'm starting to think that an episode I had last fall sounds very similar to the tongue spasms people are talking about. It started...
Marcia Perkins
marcia_perkins
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Aug 1, 2006
12:34 pm
5024
My 14 yr old son has often had a thickening of the tongue (best way to describe it) and it makes his speech slurred. Of course, if he gets deeper into ...
JIMMYAHC@...
dennis_kiern...
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Aug 2, 2006
1:00 am
5025
Honestly, I think you are a marvel and am sure you did everything and anything to help your daughter. I wish I had magic words. I must say again that by doing...
JIMMYAHC@...
dennis_kiern...
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Aug 2, 2006
1:10 am
5026
Hello All, Just thought I'd say 'hi' and to let u know i've posted some photos of sister's wedding. Hope ur all ok. Natalie...
Natalie
nat_ngc
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Aug 4, 2006
3:56 pm
5027
Hi, Natalie You all look lovely...is that you in the first wedding photo? You look beautiful. Take care, Jennifer (mom to Alaina, 4/7/00) jejeaja@... ...
jejeaja@...
jejeant
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Aug 4, 2006
5:48 pm
5028
Thank u, I'm in the red. "jejeaja@..." <jejeaja@...> wrote: Hi, Natalie You all look lovely...is that you in the first wedding photo? You...
Natalie Lloyd
nat_ngc
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Aug 4, 2006
9:42 pm
5029
Hi everyone! I am mother of a 14 years old girl who is diagnosed by AHC. She is taking Cinarizina (Stugeron) instead of Sibelium. I want to know if anybody is...
rm_aesha
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Aug 7, 2006
5:39 pm
5030
Hello All, I have not been on the site in a while, It's been a little crazy for us the past year. My Father passed away in March after a long illness and we...
amcar46
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Aug 7, 2006
11:28 pm
5031
Adele, Hi, it's Marcia Perkins - Jennie's mom, we met in Boston. Jennie also has had her times when she became very violent. We started her on Zoloft a few...
Marcia Perkins
marcia_perkins
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Aug 8, 2006
1:01 pm
5032
Adele, I don't have any suggestions. How scary to go through that. I can only relate in that Jocelyn is more resistent to going new places and when new...
Heather Gates
hossanova2000
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Aug 8, 2006
1:18 pm
5033
Hi, Sorry about your month, I think we all can relate to your frustrations and concerns, I just thought you might be interested in some second hand news about...
LEE SOFIA
homesofia
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Aug 8, 2006
5:58 pm
5034
Marcia, Thanks for the reply. I agree, Louis has had a very emotional few months. Losing his grandfather who he was very close to and finishing school, (he ...
ADCAR@...
adelelouisc
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Aug 8, 2006
7:18 pm
5035
Hi Adele I don't know about Xanex but I did take Topamax for a while last year for my migraines. After the first dose I found I couldn't talk well. I was...
kcventi
kcventi1
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Aug 8, 2006
7:23 pm
5036
To those of you whose children take Zoloft, did any of them have a problem with not wanting to eat. Kristen has been on it for three weeks on Thursday. Every...
sockman1253
Offline Send Email
Aug 9, 2006
1:26 am
5037
Zoloft has not affected Jennie in that way at all. Marcia _____ From: afha@yahoogroups.com [mailto:afha@yahoogroups.com] On Behalf Of sockman1253 Sent:...
Marcia Perkins
marcia_perkins
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Aug 9, 2006
3:04 pm
5038
Adele, Jennie takes 150 mg each morning. In her case we have seen no side effects from the Zoloft. I hope things settle down for all of you soon. Marcia _____...
Marcia Perkins
marcia_perkins
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Aug 9, 2006
4:22 pm
5039
Jennifer; in reply to your stroller question we have had very good results with the baby jogger strollers--They make all kinds--infant, double and special...
huizing_1
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Aug 10, 2006
3:17 am
5040
We are so very sorry to hear of the passing of Terra. ... [Non-text portions of this message have been removed]...
Süleyman
ysasici
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Aug 11, 2006
10:41 pm
5041
hi all ,I have started a site http://www.outofstress.com which deals all aspects of stress and recovery.Our objective is to help people those who are suffering...
healthisswealth
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Aug 14, 2006
5:17 am
5042
I was wondering if anyone has tried Omega 3/6 fish oil supplements to help with their child's speech development. A read a book called "The Late Talker" and...
kcventi
kcventi1
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Aug 16, 2006
9:16 pm
5043
Just wanted to say that we had to take Kristen off the Zoloft. She started seeing things and the Dr. stopped it. I had also seen loss of sleep and she wasn't...
sockman1253
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Aug 18, 2006
2:25 am
5044
I am a Kindergarten teacher that will have a student with AHC. I had never heard of this disorder before. Any information or ideas on things that your...
cfergus4
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Aug 18, 2006
11:53 pm
5045
Hi there kindergarten teacher! I think it's terrific that you're asking for advice to help out your new student with AHC. I can give you my perspective but I...
Nancy Barrett
margsmac
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Aug 19, 2006
1:38 am
5046
Hi, there.... I think it's a great idea that you are reaching out to our group for insight in this rare disorder! I can tell you that this disorder presents...
Jennifer
jejeant
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Aug 19, 2006
3:16 am
5047
Hello, I'm Natalie (26), and live in Chester, UK and I have AHC since age 2 and 1/2. I see a consulant in Wrexaham Maelor - Dr. Smith, for about 9 years, prior...
Natalie
nat_ngc
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Aug 19, 2006
9:36 am
5048
Hi, Catriona here (Liam's Mum), Liam is 3 years old and progressing well, he was diagnosed at 18 months. Liams starts Pre-school in sept and is really looking...
catrionamontgomery
catrionamont...
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Aug 21, 2006
8:58 am
5049
I received details on the following resource this weekend from the Illinois Special Education Newsletter. I hope it may help you and others. In striving to...
Platt, Vicky
ahcplatt
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Aug 21, 2006
1:13 pm
5050
hi all,I have started a blog http://outofstress.blogspot.com which explains about stress relief and weightloss.In this blog i suggested some yoga to reduce ...
healthisswealth
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Aug 21, 2006
5:53 pm
5051
HI, My name is Dwayne. I am Chrystal's husband and Hunter's proud dad. I just wanted to write and let everyone know a little more about our little boy and...
Chrystal Wagner
wagnerchrystal
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Aug 22, 2006
2:53 am
Messages 5022 - 5051 of 6715   Oldest  |  < Older  |  Newer >  |  Newest
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