hi Kristen I am Lee, my daughter Emily is 14, we live in FL, cape coral, Emily has been diagnosed AHC since 12 months old, has no epilepsy, and does have other...
Hi Lee, My name is John and I have a daughter Pristine 3 1/2 years old. As I read your description, it seems that Pauline has an Atypical AHC too. She was...
Hi Lee You mentioned Emily is reading at 3rd grade level. Did she gradually increase her reading skill or did she learn early to read and then plateau etc?...
Dear Dominque, Thanks very much for the synopsis on the Montreal Meeting. Our family is currently living in Thailand. Chris and Doug Morris, parents of Haley...
hi John never too many questions, feel free ask away...It sounds as Pristine's episodes aren't that extreme for her age....Emily's were very extreme when she...
Dear Sirs. Last May, 4, I lost my 16 year old son Jorge Junior, due to the AHC. He was trying, since March 2006, a new medicine: He changed Depakote for...
Natalie, Your email is breath taking. My daughter Jennie is 19 and struggles with every part of her every day life because she does not fit in. I can only...
Kristen, We were just in Florida this past winter visiting Mandy Mariani and her family. Mandy is 26 or 27 and has AHC. I know her and her mother don't use...
Hi Marcia, Thank u so much for your email, I was worried that i had said too much. I haven't been posting for a while, because i have been struggling with...
Marcia, what town are they in? I didn't know anyone else was in FL. I would love to know of them also if they don't mind. Lee and Em in Cape Coral _____ From:...
Thank you very much for your information Lee. By the way my daughter with AHCis Pauline, Pristine ( is my older daughter). Like Emily, Pauline too has thin...
I am so sorry for your loss. Thank you for sharing the information with us. It is heartbreaking to read and I wish you a world of peace. Joanna karla karla...
Lee, They are in Debary which isn't too far from Orlando. I will have Jennie call Mandy this weekend and then I'll talk to her mom. Marcia _____ From:...
We too are very sorry to hear of your son, Jorge's, passing. You are in our thoughts. The Ventis joanna emmons <joanna_emmons@...> wrote: I am so sorry...
... wrote:I am sorry to hear of your loss. Please know that you and your family are being thought of in this sad time. Take care of yourselves . Amy (Gayles...
Hi Roberta, Great pictures!!! I can't get over how big and grown up Chad is! I need to get pictures up one of these days....thanks for sharing Chad with...
Hi all, The UK family support meeting is on in Windsor on the 29th July Details : Oakbridge Day Centre, Imperial Road, Windsor. Professor Brian Nevill will be...
I RECIEVED THE AUTOPSY REPORT THIS WEEK, AND WANTED TO SHARE THE FINDINGS WITH YOU. THIS REPORT IS FROM THE CORONER, AND DOES NOT INCLUDE ANYTHING FROM THE...
Dear Karla, I'm Dominique PONCELIN from France , Patrick's father - 18 years old with AHC. I'm so sad about the death of your son , that is really the evidence...
dominique poncelin
d.poncelin@...
Jul 12, 2006 8:24 pm
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Just wanted to post and see how those kids on Zoloft are doing. I will be starting Kristen on it this week coming. Any problems on this I should look for?...
Hi Yvonne, Kathleen has been on Zoloft now for six months and we are still having good results with her behavior. I have not seen any interaction with her...
Hi group, This is catriona, Liam's mum. Liam is 3 years old and over the past month he has become very restless at bedtime.It can take up to two hours to get...
Our son has AHC. we think about second baby, His doctor said that , there is low risk but we are anxious we want to know taht is there anybody who come accross...
Jennie has been on Zoloft for a few years now and she's doing well on it. Haven't seen any problems as far as interactions with the Flunarizine. Marcia...
... Alec started having alot of difficulty at night going to sleep at around 5 years old. His neuroligist and peditrician put him on topamax. He takes it...
... Thanks Kelly for your quick reply. Is topamax a sleeping pill? What else is it used for? I am weary of putting Liam on further medication, does it have any...
Very sorry again about your dear daughter. I think you are very brave and extremely thoughtful to continue to pass on information to help others. The same is...
Dear Yasemin & Süleyman, My name is Chris Moris, parent of Haley 14 and Caroline 12. They are our only children, and both were diagnosed with AHC. At the...
My 4-year old daughter Emma goes through periods were she has great difficulty falling asleep. Two times we scheduled sleep studies at the Univ. of Chicago and...
