hello everyone well I took Hailey to the Doctor on tues. so now we started Zoloft ..25mg for 2 weeks and then 50mg for another 2 weeks.........then we...
Hi Mindy, We all need to vent, and where better than here. Besides being a helpful site for understanding the physical challenges of living with AHC, we also ...
Hi Mindy, I sure hope the medicine works. I am sending a copy of part of a testimony that I give at retreats. I'm not a holy roller or a religious fanatic, but...
Carol and Nancy thank you so much for your wise words....Your thoughts and prayers mean so much..... Mindy [Non-text portions of this message have been...
Hi! Nicole is 16 y/o. I've been having the same problems with her since she's been about 11 or 12. The biting, kicking, scratching, hair pulling etc. My arms...
Hey everybody. This discussion is making me so sad. It all speaks to me. And Michelle, like you said : "it could always be worse for all of us" is just...
Hi everybody! On a new topic---Cam is being evaluated at school for something called Cortical Visual Impairment. To quote: "Cortical Visual Impairment...
Back when Mary was 3 she had a very severe episode that set her way back. At that time she was diagnosed with Cortical Blindness. In time it eventually...
Addie is almost 7yrs old. She has always been highly sensitive to light (bright outdoor light she says hurts her eyes and flickering flourescents in dept...
Hi Karen--When you say she is grabbing at her eye--it reminded me, Cameron has twice gone through a period of time when he was pressing on his eye pretty...
Mindy: My heart goes out to you. We've been there a few years ago, David was about 13 and we couldn't take it anymore. We we burned out and did need a break....
Hi Joanna She too was insistently pressing hard on her eye like she was trying to stop whatever was happening and sounds like Cameron. She can talk although...
Hi all, It sounds like many of us are going through the same thing - different degrees (what else is new!!!). Kathleen had no major behavior issues we couldn't...
This was one sided too--always the left eye, and several dozen times per day. kcventi <kcventi@...> wrote: Hi Joanna She too was insistently pressing...
Hi everyone, The AHCF will be sponsoring a pre-congress workshop/symposium at the Internationl Child Neurology Congress in Montreal this Sunday, June 11. As...
hello everyone, my name is tameika,just found out about this website.My son is five years old and has been diagnosed with ahc early this year and is taking...
Lynn, I'm a member of a few Yahoo email groups and the AHC group does not allow for email attachments. Maybe the group owner can change that setting. Or you...
Thank you Jennifer - I did forgot that. Here is the program: INTERNATIONAL SYMPOSIUM ON ALTERNATING HEMIPLEGIA In Honour of Dr. Jean Aicardi June 11, 2006...
Greetings Tameika, Welcome to the group! My son Ian is three years old and was diagnosed last summer with AHC. I joined the group in January and have come to ...
Hi Lynn How are you? I just want to ask if is possible for parents to attending too this conference or it's just for the doctors? Thanks Stan ... email...
Hi Lynn Could you tell me if there is anything schedule for Saturday night? Thanks Stan blava0069@......
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dominique poncelin
d.poncelin@...
Jun 9, 2006 12:17 pm
Association Française Hémiplégie Alternante Mr Dominique PONCELIN - Président A.F.H.A 4 chemin de la sablière 91180 St Germain lès Arpajon - France As...
Hi Lynn I know Stan mentioned I might be coming, but wanted to confirm with you that both my husband and I will be coming. We understand that the focus is for...
Hello! I'm Natalie (26) from UK and have had AHC with epilepsy since 2 years. It's great at last to find some families with the same condition as me :)...
Welcome, Natalie! I'm so glad you've found us. I look forward to hearing from your perspective. My son Cameron is 7 (almost 8 now!) and was diagnosed with...
... This is Catriona, I live in Ireland and my son Liam has AHC, he is now 3 years old. Will you be attending the family support meeting in Windsor on the 29th...
Hi Catriona, Thanks for your welcome. I would like to come down to the support meeting in July, do you have any contact details. Thanks Natalie ... in ... ...
