To all asking about weaning off flunarizine-- We weaned David off very slowly, dropping by about 2.5mg per week. It took a long time, but we didn't have any...
hello everyone thought i give my input on flunarizine. I too weaned my son mario now 4yrs off flunarizine. it was a slow process (I believe 2 months).However...
Thank you for your responses regarding the swollen gums. I have printed them out and will speak to our Dentist about it. Joel takes 5mg/10mg each morning...
Hi everyone, I just called Mark's Pharmacy to refill Jocelyn's flunarizine rx and the lady I spoke with said we had to write a letter (as well as Dr. Silver)...
Does anyone have good/bad experience wtih using fish oil supplements to help with speech issues/apraxia and AHC? I am on an apraxia (speech disorder)...
Karen I have been giving Emily fish oil, flax oil, primrose oil, Vitamin E, and Coenzyme Q10, plus a daily multi-vitamin and mineral supplement, We started ...
Hi Heather, we also get Trevor's meds from Marks and got the same story you just told. We have dealt with this before although it has been a few years. We...
I recently had the same problem. I sent my letters and that was the end of it. I received my child's medicine without any problems. The man I spoke with...
The pharmacy I use in Canada sends my direct mail vs FEDEX/UPS and we skip customs. Anytime we used FEDEX/UPS the feds would hold up shipment, collect a $20...
Hi Lee I can't remember if Emily experienced seizures as well. I had read that primrose oil and one other (can't remember at moment) are not suggested for...
Karen, no she hasn't had seizures only the ahc episodes thus far. the other one similar to primrose oil is usually black current oil they are closely related,...
Thanks everyone for the responses. I sent my letter today and Dr. Silver's nurse is supposed to fax their letter. I was told by the pharmacy person that...
Karen V Which pharmacy in Canada do you use? We use Murray Shore in Toronto, but they won't send the medication regular mail. They told me it's up to each...
hi kelly the pharm we use is also Shore but in Montreal 85 Villeneuve West, Montreal, Quebec H2T 2R4 514-844-1989 Kelly Andrasco <kelly_andrasco@...>...
Good Afternoon, On the 29th July 2006, the first Alternating Hemiplegia of Childhood family support group meeting will take place. The venue is in Windsor,...
Hi Jennifer, I have no experience with this product but I do know anytime we have used an oil product, withing 10 days or so Addie shows increased AHC...
Is there a typical age at which most of the AHC kids go on medication for behavior issues? Is it obvious when the child needs meds for behavior? Which ones...
Those are some good questions. My daughter is having more and more behavior issues lately. They seem to be continuing and are at times really bad. As the...
For those of your who have children on medicine for behavior, do you find the children to sleepy. I guess what I am asking is what are the side effects you...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the afha group. File : /!!!Dating with...
afha@yahoogroups.com
May 19, 2006 2:03 am
4771
My son Nick is 16 and takes Risperdal. I believe at first I did notice some sleepiness but he has been on it for about 3 years and don't notice anything out...
Thanks for the response. I have only used my daughter's neuro. I quess that it would be a good idea to use a psychiatrist. My daughter is starting a new...
Hello: When Leslie was going through puberty it was very difficult. The most difficult of times I must say. I have two younger sons and they were victims of...
Lynda Burnham
lynda.burnham@...
May 19, 2006 4:20 pm
4774
Kiley just turned 5. She's had two incidents at school.one biting, one pinching. These two incidents happened just after two bad AHC episodes. I think...
Kelly, the struggle with getting dressed, etc has been a daily issue for us. Luckily we homeschool so Joce doesn't "have" to get dressed by 7 am or something....
I agree with all of you. It can be so hard at times to deal with the behavior. Kristen also doesn't do well with change. She needs to know whats coming....
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