Hello, I have just started with this group. I used to be connected with the group years ago. But I lost contact without a computer for a while. My daughter...
hi Liz best thing to do is check the previous posts, or ask questions and we all give you our take on what or where we have been through having to do with the...
Yvonne welcome back, My daughter's name is Emily, she is 14 later this month, and we love to hear how everyone is holding out, what state are you from? We were...
hi,its liz. jacks almost 10yrs old and apart from some behavior problems hes been doing really well. About 2yrs ago he had a severe throat infection and was in...
... we also had this happen to her if shes ill with an infection it will bring on fits and weakness . last year she was talking words such as mummy , daddy,...
Jack was almost standing on his own,holding very good conversations although speech was delayed, and generally getting up to all kinds of mischief. At present...
Liz, Hi. Ashlynn, 3 years old, tends to lose abilities when she is sick also. It seems that during the times that she is sick, she has worse episodes of AHC....
hi liz kelseys mum joanne here can i ask were you are ? if your are i have some ideas that may help you my email is rjoanne@... drop me a line and i ll...
Lee, We live in Louisiana. Kristen turned 12 in January. She also suffers from Epilepsy. We first noticed her ahc episodes when she was 6 months. Her...
Hi Liz- Amy here. My daughter Gayle seems to loose her abilities also when she is down with an illness. It is so frustrating to see her have to start all...
Liz, Emily has severe reactions to Antibiotics, she has full body episodes for 22 days straight without any relief, then just comes out of it like a light ...
Hi Liz here, thanks for all the replies. Ive thought about trying to build up Jacks immune system but other than giving him vitamins i dont really know what to...
Hi Yvonne, Alex is 8 and also suffers from seizures, which occur more frequently than his episodes. We've just started the Ketogenic Diet (one month now)...
Hi Carol, Addie will be 7 in July and also suffers from seizures more than AHC. AHC seems to be most prevelent while on antibiotics or using things like...
Hi, Carol Just wanted to say good luck with the Ketogenic diet...you will have to let us know how it goes. Take care, Jennifer (mom to Alaina, 4/7/00) ...
Hi Karen, His seizures were usually every two days and last a long time. Since we've started the diet the majority of the seizures have been about 2/3...
Carol, Thanks for sharing this info and we are pulling for all of you. karen Carol Presunka <sunplace@...> wrote: Hi Karen, His seizures were usually...
hi this is kelseys mum joanne here there is a meeting in Great Britian this summer . kelsey has seen the top doctors over here with alot of pushing we were...
Hi Joanne, Can you give more information on the family meeting in England? Do you have any doctors attending / presenting? Is there a person to contact to...
Ive read in past posts that some children react to certain foods. Can anyone tell me in what way they react and how you realized what the reaction was caused...
hi everyone this is kelseys mum in Great Britian We are having a summer meeting on the saturday 29th july here in england . It is open to you all we would love...
Carol, How long has Alex had seizures? Kristen has the VNS implant. It has really made a big difference in her seizures. What kind of seizures does Alex...
Hi Yvonne, Alex had the VNS implant as well but it didn't work for him. I know it has worked for a couple of AHC families. He started seizures at 18 months...
Hi Carol and Yvonne, What were the deciding factors that brought you to the VNS? Was it primarly to help with the seizures vs AHC episodes? Does anyone use...
