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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 4565 - 4594 of 7527   Oldest  |  < Older  |  Newer >  |  Newest
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4565
Hi Lee, I love your orchestral explanation to your six year old, fantastic, not sure how you came up with it, but can already hear me repeating it. I have an 8...
brendals76
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Mar 1, 2006
2:57 pm
4566
hi kelseys nun here joanne id just like some help with a question , kelsey is 2 and a half and has ahc since birth . Her temper is so bad and im reduced to...
joannedavidkelsey
joannedavidk...
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Mar 1, 2006
8:30 pm
4567
Hi everyone, We are working on Trevor's schedule for next year. He will be advancing to 1st grade. He will be extending his school day by one extra hour next...
kluting1
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Mar 2, 2006
1:58 am
4568
Hi Karen, Addie is 6 yrs and also going onto '1st grade' but she is in a special education classroom (9 kids with language issues and some mild delays). She...
popcornkcv@...
popcornkcv
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Mar 2, 2006
2:48 am
4569
Dear Joanne--I've been there with our son david, who is now 16 yrs old. Behaviour has always been an issue and we discovered that food or drinks more...
huizing_1
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Mar 2, 2006
3:21 am
4570
Hi, Karen Alaina is in Kindergarten this year and attends all day. She participates in recess and gym. She actually has an aide that must be with her anytime...
Jennifer
jejeant
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Mar 2, 2006
3:32 am
4571
Hi Jennifer and Karen, thanks for your response, so if we increase his day by 1 hour and add gym and recess I know we are going to have more episodes. He...
kluting1
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Mar 2, 2006
4:44 am
4572
Hi Karen, Alex (8) is in a special day class and we've always let him do everything. The sun was a big factor for him and living in California, its something ...
Carol Presunka
sunplace95008
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Mar 2, 2006
5:15 am
4573
Hi Karen Yes, Addie's teacher's have asked to talk to the kids. Some think she is still a baby b/c she has a blanket and needs breaks in a bean bag chair...
popcornkcv@...
popcornkcv
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Mar 2, 2006
1:04 pm
4574
If the school doesn't offer an adaptive PE program, you may want to see if they can start one up -- especially since they are pushing for Trevor to be in a PE...
KathHurl@...
Send Email
Mar 2, 2006
1:42 pm
4575
Hi Kathy, I would be interested in the info you have on fatty acid issue or hypoglycemia. At our last nuero visit when I asked about the keto. diet she said...
popcornkcv@...
popcornkcv
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Mar 2, 2006
5:10 pm
4576
Hi Karen and Trevor and everyone who has responded to you so far! Cameron is 7 and will be heading to first grade next year, too. We were very worried when we...
Nancy Barrett
margsmac
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Mar 2, 2006
6:35 pm
4577
Hi all I have lived with poor eating, and food allergies for Emily, It is difficult to tell whether it is a food allergy or a food intolerance, and they each ...
LEE SOFIA
homesofia
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Mar 2, 2006
6:58 pm
4578
Kathy, does Abbie take any flax oil, or fish oil? sounds like it might be something to look into for her. Lee _____ From: afha@yahoogroups.com...
LEE SOFIA
homesofia
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Mar 2, 2006
7:12 pm
4579
Hi Karen -- the name of the disorder is "fatty acid oxidation disorder" and it is really just a guess that this might be happening to Abbie. Its when the...
KathHurl@...
Send Email
Mar 3, 2006
5:26 pm
4580
... Hi Lee, I was wondering if you could tell me the name of the protein drink that you used to help keep weight up. Trevor has dropped again to the 3% and I...
kluting1
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Mar 3, 2006
7:51 pm
4581
hi Karen and Trevor the name is now Carb-Fit Shake mix, Emily only gets the vanilla flavor, but they do have chocolate, and strawberry, The Vitamin Shoppe #...
LEE SOFIA
homesofia
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Mar 3, 2006
10:02 pm
4582
hello I have a question if anyone is willing to answer...we just took my daughter Hailey off of Risperdal...which she was taking for her lovely...
MandM421@...
mindyjonkoski
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Mar 7, 2006
9:40 pm
4583
We did try Topamax long ago, and I am fuzzy on the details but I know when we decided it wasn't doing enough good we were really relieved to get off of it...
joanna emmons
joanna_emmons
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Mar 8, 2006
2:16 am
4584
hi this is ashleys dad,we tried topamax and worked well but it runs a limit after so long and you will need to increase its dosage and then it will be at a...
MANEEXP@...
Send Email
Mar 8, 2006
2:20 pm
4585
hi people, I have started a site http://www.outofstress.com which deals with all aspects of stress.Our site is a fast growing.Our site objective is to help...
healthisswealth
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Mar 17, 2006
5:45 am
4586
[Non-text portions of this message have been removed]...
popcornkcv@...
popcornkcv
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Mar 20, 2006
5:14 pm
4587
hi kelseys mum here . Thanks to a lovely lady gillian Bailley we are having a meeting on the 29th july the first time we ve meet up . and Mr Nevell the top man...
joannedavidkelsey
joannedavidk...
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Mar 21, 2006
1:26 pm
4588
essai...
dominique poncelin
d.poncelin@...
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Mar 29, 2006
8:39 am
4589
Hello, we are living in Mönchengladbach (Germany) and we are members of the german ahc-community. We have two kids (Oskar 3yrs + Luisa 8yrs). Luisa is...
Christian Kockhans
skatalite09
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Mar 29, 2006
12:46 pm
4590
Welcome to the group. There are several families from outside the United States that participate in this group. It is great to have a family from Germany...
Platt, Vicky
ahcplatt
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Mar 29, 2006
1:19 pm
4591
Welcome to this group. This has been a great resource for me when dealing with the many questions we have about our daughter, now 6.5 yrs old. I hope it helps...
kcventi
kcventi1
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Mar 29, 2006
2:34 pm
4592
Welcome to our site glad to hear from anyone who has something to share with us, Lee, mother to Emily 13 yrs old with AHC [Non-text portions of this message...
LEE SOFIA
homesofia
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Mar 29, 2006
5:14 pm
4593
Hi Christian, My grandson Cameron is 7 and has ahc. We live in Vermont and would love to help you any way we can. Welcome! Nancy _____ From:...
Nancy Barrett
margsmac
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Mar 30, 2006
1:25 am
4594
hi every one and the new familes to a big hello xxx kelseys mum here , we live in england hope you are all well x well kelsey has been very good over the last...
joannedavidkelsey
joannedavidk...
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Mar 30, 2006
6:40 am
Messages 4565 - 4594 of 7527   Oldest  |  < Older  |  Newer >  |  Newest
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