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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 4437 - 4467 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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4437
Hello my name is Catherine Mathews. I met many of you at the Boston meeting in August and also in Salt Lake 2 years ago. Our 14 year old daughter Amanda...
alsemb1234
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Feb 1, 2006
10:05 pm
4438
... Catherine God bless your family at this time. May you find the strength to get through this time and remember those 14 loving years with the happiest of...
renny01@...
costedio
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Feb 1, 2006
11:00 pm
4439
Dear Catherine and Tom, I hope you can find comfort in the wonderful memories you have of Amanda. Our thoughts and prayers are with you all. Thank you for...
popcornkcv@...
popcornkcv
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Feb 1, 2006
11:08 pm
4440
Hi Catherine and Tom. This is Nancy, grandmother to Cameron. We were in Boston with Cam's mom Joanna and I'm quite sure we met you and Amanda. I am so sorry...
Nancy Barrett
margsmac
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Feb 2, 2006
2:43 am
4441
My thoughts and prayers go out to you. Just a reminder to all of us to hold our children close and treasure each day, no matter how trying those days can be. ...
mkderks@...
mkderks
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Feb 2, 2006
2:45 am
4442
Tom & Catherine, I'm so sorry to hear about the passing of Amanda. Thanks so much for finding the strength and the time to let us know. Please know that we...
Jennifer
jejeant
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Feb 2, 2006
3:37 am
4443
I am so sorry to hear about Amanda. We never met but my daughter Nicole also suffers from AHC. I feel we all have something in common and not just this...
teapots44
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Feb 2, 2006
9:05 am
4444
Dear Tom and Catherine, Our family is very sorry to hear about the loss of your daughter Amanda. Our daughter, Brooke is 15 years old with AHC. Our thoughts...
Dana Tasi
dtasi@...
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Feb 2, 2006
12:11 pm
4445
my heart gos out to you at this hard time all my love joanne x david and kelsey x...
joannedavidkelsey
joannedavidk...
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Feb 2, 2006
3:13 pm
4446
my heart gos out to you at this hard time all my love joanne x david and kelsey x...
joannedavidkelsey
joannedavidk...
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Feb 2, 2006
3:13 pm
4447
Catherine & Tom I am so sorry to hear about Amanda, Please know my heart and prayers will be with you and your family. I hope you can take comfort in knowing...
LEE SOFIA
homesofia
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Feb 2, 2006
4:45 pm
4448
So sorry to hear about your lose....my heart goes out to you and your family..may you find comfort knowing that you are in our prayers. Mindy and Mark Jonkoski...
MandM421@...
Send Email
Feb 2, 2006
10:31 pm
4449
We are so sorry to hear about your terrible loss. Our family would like you to know that you are in our thoughts and prayers during this most difficult ...
ADCAR@...
adelelouisc
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Feb 3, 2006
2:57 am
4450
Tom and Catherine, My heart goes out to you and your family. May you find comfort and joy in all the memories of the past 14 years. I would like to share this...
Marcia Perkins
marcia_perkins
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Feb 3, 2006
1:00 pm
4451
hi, this is Dave Ashleys dad she is 17,just got back in the sceen here what has happened,who has passsed,please advise--Dave [Non-text portions of this message...
MANEEXP@...
Send Email
Feb 3, 2006
2:44 pm
4452
David -- I just sent the email to your private email address. ... From: MANEEXP@... To: afha@yahoogroups.com Sent: Fri, 3 Feb 2006 09:38:20 EST Subject:...
KathHurl@...
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Feb 3, 2006
2:52 pm
4453
Hello all, Our 2 year old son was just diagnosed with AHC and has been prescribed amatadine. Does anyone have any thoughts about this drug? Also, is there...
mj mccartney
mjm4th
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Feb 3, 2006
9:59 pm
4454
Hi Michael, Have you tried flunarizine yet? I read below that the amantadine was used for AHC when the patients didn't respond to flunarazine. We have not...
popcornkcv@...
popcornkcv
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Feb 3, 2006
10:41 pm
4455
Tom and Catherine I am so sorry to hear about your lose. My heart goes out to you and your family. With deepest sympathy, Stan, Zuzana, Michele & Nicholas...
Michele
miska1997
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Feb 3, 2006
11:31 pm
4456
Tom and Catherine I am so sorry to hear about your lose. My heart goes out to you and your family. With deepest sympathy, Stan, Suzie, Michele & Nicholas ... ...
Michele
miska1997
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Feb 3, 2006
11:40 pm
4457
Hi Michael, Cameron was prescribed Amantadine even before we had the AHC diagnosis and he's been taking 50 mg 3 times a day for a couple years now. While there...
Nancy Barrett
margsmac
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Feb 4, 2006
2:41 am
4458
Dear Catherine and Tom, We are very, very sorry to learn of Amanda's passing. Please know that you are in our thoughts and prayers and that we wish you ...
pgpalmerino
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Feb 4, 2006
4:02 am
4459
Dear Michael, Our family is in the process of getting ready to move to Tulsa Ok - where I am from. Presently we live in California. This summer is our...
Ken & Faye Wilkinson
zachsmom77
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Feb 4, 2006
10:47 pm
4460
Tom & Catherine, Amanda is in our prayers. She is now enjoying perfect health and in His warm embrace. With deepest sympathy, The Wilkinson family (Zach 3 1/2...
Ken & Faye Wilkinson
zachsmom77
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Feb 4, 2006
10:53 pm
4461
THIS UNDISCOVERED GEM ( MDEX.PK) Watch it go crazy on Monday morning February's Feature Company... Madison Explorations, Inc. Symbol: MDEX.PK CURRENT...
vi-west206@...
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Feb 5, 2006
1:22 pm
4462
Tom, Catherine and family With deepest sympathy. My heart goes out to your family in this difficult time. Look after yourselves. Claire, Jeff, Jenna and...
claire_rosati
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Feb 5, 2006
3:56 pm
4464
My name is Amy and my 3 yr. old daughter has AHC. We have tried many different drugs to help her attacks. We just started flunarizine @ the end of December....
amy_gayle28
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Feb 7, 2006
5:19 pm
4465
Hi Amy, My name is KAren and my daughter, Addie, is 6yrs old. She was dx with AHC at 2yrs. SHe too has had a good response to flunarazine to date. Please...
popcornkcv@...
popcornkcv
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Feb 7, 2006
5:53 pm
4466
Amy- I have a four-year old daughter with AHC. She was diagnosed at 18 months of age. If you would like to speak with me, please e-mail personally at ...
Platt, Vicky
ahcplatt
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Feb 7, 2006
6:09 pm
4467
Hello Amy -- my name is Kathy and my 16 yr old daughter is Abbie. She was diagnosed at about age 2. She gets the AHC attacks infrequently so is not...
KathHurl@...
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Feb 7, 2006
6:48 pm
Messages 4437 - 4467 of 7529   Oldest  |  < Older  |  Newer >  |  Newest
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