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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 4329 - 4358 of 7524   Oldest  |  < Older  |  Newer >  |  Newest
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4329
hi joanne here. just wanted to ask the group about eatting promblems. My little girl kelsey is on a milk deit (pedisure). She has very losse stools but lately...
joannedavidkelsey
joannedavidk...
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Dec 1, 2005
9:33 am
4330
were you able to get her to a gastrointestinal doctor? they could give you more specific info about the diet and its effects on her system and why she is in...
popcornkcv@...
popcornkcv
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Dec 1, 2005
1:05 pm
4331
Hi! This is Michelle Cusimano. My daughter Nicole is 15 years old. Her birthday is next month. We've been having a problem lately. She has been getting...
teapots44
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Dec 10, 2005
6:53 am
4332
hi my names joanne and i have a two year old daughter called kelsey . She to is starting to be aggressive mainly towards me but her sister also can be attacked...
joannedavidkelsey
joannedavidk...
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Dec 10, 2005
9:40 am
4333
Wow, I never thought I'd try this stuff, but after a couple of mates egged me on I decided to give it a go. Honestly, I am pretty damn happy with how things...
barbi.elizabeth8486@...
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Dec 10, 2005
10:02 am
4334
My son Nick is also 15 and this was an issue for us. He was put on Ripserdal about 4 years ago and this has made a big difference. I can always tell when his...
mkderks@...
mkderks
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Dec 10, 2005
2:41 pm
4335
... Hi My Son Alec Costedio has had very aggressive behaviors in the past three years. We have also tried ignoring, punishing etc. None of this helped...
renny01@...
costedio
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Dec 10, 2005
9:12 pm
4336
Hi this is Dave Ashleys dad she is 16 soon to be 17 jan 10th,She has all of the things u talk about aggressive,hitting and what ever acting out behavior u can...
MANEEXP@...
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Dec 10, 2005
11:59 pm
4337
Greetings Everyone, Please let me begin by wishing everyone a happy and healthy new year! I'd also like to apologize for the length of this post, but I am...
pgpalmerino
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Jan 1, 2006
9:12 pm
4338
[Non-text portions of this message have been removed]...
PAULA COUTUREPALMERINO
pgpalmerino
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Jan 1, 2006
11:33 pm
4339
Hi Paula I am glad your are asking questions to this group and hope you can find some more answers. My daughter is 6yrs now and was diagnosed at 2yrs with...
popcornkcv@...
popcornkcv
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Jan 2, 2006
1:47 am
4340
Hi~ I'm so sorry we've been out of touch for the past few months. We've been busy with the new "addition" to our family and the holidays. I've caught up on...
Jennifer
jejeant
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Jan 2, 2006
4:29 am
4341
Hi Karen, Thank you so much for sharing that information. Unfortunately, late yesterday and this morning, we started seeing signs of dystonia (his elbow would...
pgpalmerino
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Jan 2, 2006
5:54 pm
4342
... Paula My name is Kelly All three of my children have ahc that present in different ways but ian seems alot like my middle son max. Feel free to call me...
renny01@...
costedio
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Jan 2, 2006
10:56 pm
4343
When Addie was 1yr-2yr she had the eye deviations and some limpness in an arm (on same side as eye deviations. She had some weakness in leg but not much....
popcornkcv@...
popcornkcv
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Jan 3, 2006
12:20 am
4344
Hi Paula. Welcome and thanks for telling us about Ian. My name is Nancy and I am the grandmother to Cameron who is 7-years-old and has AHC. Cameron's mom,...
Nancy Barrett
margsmac
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Jan 3, 2006
2:17 am
4345
Greetings Nancy, Thank you so much for sharing! I am so sorry to learn of Cameron's many disorders. My heart goes out to you and your family. I am once again...
pgpalmerino
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Jan 3, 2006
4:22 pm
4346
Wow. I am beginning to see just how fortunate Ian (and we ) are in regards to triggers, medications and other illnesses. Fortunately, the only trigger at this...
pgpalmerino
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Jan 3, 2006
5:18 pm
4347
Thank you Kelly, I definately will! Best, Paula ... present in different ways but ian seems alot like my middle son max. Feel free to call me at home 978 667...
pgpalmerino
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Jan 3, 2006
5:25 pm
4348
Hi, just signed on after a long while, and saw your message, I also want to wish everyone a happy and healthy new year to start off with, we changed our ...
LEE SOFIA
homesofia
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Jan 3, 2006
6:34 pm
4349
Paula My name is Mindy and my daughter Hailey has AHC...she will be 9 this month (Jan.) ( Hard to believe we've made it this long) I just read your letter...
MandM421@...
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Jan 3, 2006
6:45 pm
4350
Hi Paula, We have a large family too and when Addie was very young my husband and I would disagree about whether something was even happening. I was sure I...
popcornkcv@...
popcornkcv
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Jan 3, 2006
10:58 pm
4351
Thank you! I will keep that in mind and will check out your past posts. Thank you again! Best, Paula...
pgpalmerino
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Jan 4, 2006
9:21 pm
4352
Greetings Mindy, Thanks for responding and Happy Birthday to Hailey!I think you are right about the vomiting being associated with headaches. By sharing ...
pgpalmerino
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Jan 4, 2006
10:01 pm
4353
Greetings Karen, I had to laugh after reading your post because my husband and I, just yesterday, "debated" whether or not we saw posturing. He saw one thing,...
pgpalmerino
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Jan 4, 2006
10:24 pm
4354
We live outside Boston in Concord, MA so if you are in the area, please let us know and we can get together or put you up for a stay. I remember the first time...
popcornkcv@...
popcornkcv
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Jan 5, 2006
12:48 am
4355
Paula Did you say Ian has not been officially diagnosed with AHC? You may want to talk with a doctor about trying flunarizine if you haven't already, to see...
popcornkcv@...
popcornkcv
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Jan 5, 2006
12:54 am
4356
Hi Paula, This is Dana Tasi. My daughter Brooke is 15 years old and has AHC. I saw in one of your emails that you now live in Connecticut. We live in...
Dana Tasi
dtasi@...
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Jan 6, 2006
12:52 am
4357
Thanks Karen. I appreciate the offer and please allow me to extend it to you if you are ever in Connecticut. We are in Lebanon, not quite as historic as...
pgpalmerino
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Jan 6, 2006
7:08 pm
4358
He was given a "working" diagnosis of AHC. That said, even though the calcium channel block came back negative, our pedi- neuro still feels very strongly that...
pgpalmerino
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Jan 6, 2006
7:25 pm
Messages 4329 - 4358 of 7524   Oldest  |  < Older  |  Newer >  |  Newest
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