Nous sommes à la recherche d'une famille parlant français depuis 7 années. Notre fille atteinte de HA est maintennat âgée de 8 ans. Faites-nous signe. ...
Hi, my name is Karen Newman and my husbands name is Steve. We have a daughter with AHC. She is 8 and she was diagnosed at 3 months of age. We also have 2...
Hi, Karen We are in Kansas City, MO...are you the family that also sees Dr Torkelson at Children's Mercy? We also met at the AHC meeting in Chicago.... Take...
Hi Karen and Steve Our daughter is 6yrs old and has AHC and seizures and her speech is significantly delayed. Addie did have behaviors act up particularly at...
Hi all, this is Dave Ashley's dad just thought Id give an update. She is going to be 17 in Jan, hard to believe,however,she is now ending her first year at...
MANEEXP@...
Nov 11, 2005 2:01 pm
4241
Hi Karen, I'm Carol and we live in San Jose CA. I too have an 8 year old with AHC and intractable seizures. Carol ... From: afha@yahoogroups.com...
Hi Karen (KS) and Carol (CA), I was hoping to talk with you and compare notes about our children with AHC and seizures. It was clear to me at the BOston mtg...
... Dave It always sounds like you have such amazing strength. God bless ashley and your family it sounds like you found something that works for you all....
... particularly at the end of her ... started. ... was in. Her ... fights with brother. ... summer ... classmates (8 other ... Her teacher's ... schedule and...
Hi everyone! We need some help dealing with Ashlynn's preschool!!! Ashlynn, 3 years old, has not been to school since the first week of October. We had a few...
My suggestion would be to contact PACER. This is a Parent Advocacy group and is based in Minnesota but they can direct you to the appropriate agency in your...
Hi Karen and Steve, Just a thought...if you haven't already done this you may want to have Ashley evaluated at some point by a neuropsychologist. The...
Hi Angela, My 6 yrs old is similar. We have a health care plan. We also have a nurse in her kindergarten who helps in the class after Addie goes home. She...
PS. I also think the school needs to supply you with compensatory at-home services for the time she is missing if your daughter is in a state with public ...
... have Ashley ... eval is just ... in the ... services to help with ... with ... diagnose autism. ... with children ... scripting and ... allow the kids ... ...
Addie's little events also involve her mouth alot. She also has had lots of meds without responses for over 2-3 hrs. Docs say they are seizures but it does...
Hi my name is Karen. Our daughter is 8. We just went through another bad time with our daughter, not seizures or her limpness, but with the attitude. This...
Hi Karen. I'm Nancy, grandmother to Cameron, a 7-year-old with AHC. I am his aide at kindergarten and his caregiver while his parents work, so I'm with him...
-Nancy THis is Karen, Ashley's mom. Ashley does have a neurologist. She has just seen a new one also. Ashley's fits normally last for 10-20 minutes or...
... Hello Nancy My son Alec is 7 years old and has done all of the things you have mentioned and more. Sometimes before,after or without an episode. He has...
When Nick would go through these, I would hold him from behind and wrap my arms around him and calmly tell him it would be OK over and over again. You stand...
My daughter, Abbie, is now 16 years old. When she was about 3, she became very cranky almost constantly. We had heard that ativan was used to treat AHC in...
KathHurl@...
Nov 14, 2005 1:59 pm
4258
I am a speech therapist who works with a little girl, 3, who was diagnosed with alternating hemiplegia last year. Her mother and I are looking to make...
Angela- Emma, 3 1/2, is in preschool and receiving excellent services. While this doesn't help with your immediate problem, maybe you could ask the group to ...
Dear Julie- My daughter is 3 ½ years old and has been in speech therapy since she was 14 months old. If you would like to speak with me or one of her speech ...
hi my name is joanne and i have a two year old little girl kelsey who last year we were told had ACH . She started having fits at 4 months old and we are now...
Hi Joanne I have a little boy named Ethan who is 2.5 years old who was diagnosed with AHC also about a year ago. When Ethan has an episode he becomes limp on...
For those avoiding busy places due to fear of episodes, have you tried putting sun glasses on your child while in a store? This works really well for Emma. She...
Hi Julie. Thank you for reaching out on behalf of your student! My grandson Cameron just turned 7 and has had speech therapy since he was about 18 months old....
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