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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 4222 - 4251 of 7528   Oldest  |  < Older  |  Newer >  |  Newest
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4222
KAREN, TERRA WENT THROUGH A VERY FRIGHTENING PERIOD WHEN SHE WAS AROUND 18 YEARS OLD. WHEN HAVING AN EPISODE, HER THROAT MUSCLES WOULD SEEM TO CONTRACT, AND...
psriepenhoff
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Oct 2, 2005
11:31 pm
4223
has anybody had experience with amoxicillin increasing their child's seizures or episodes. addie had green runny nose for 7 days with no abnormal eye movements...
popcornkcv@...
popcornkcv
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Oct 5, 2005
11:40 pm
4224
I've always noticed Nick is likely to have an episode when on antibiotics. Not sure though, it is the antibiotic or the illness that causes extra stress on...
mkderks@...
mkderks
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Oct 6, 2005
12:58 am
4225
Hi there, when Trevor is on antibiotics he always seems to do better, attitude, overall everything, I have noticed episodes after a few days of him being sick...
kluting1
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Oct 6, 2005
3:32 pm
4226
My daughter's gums swell periodically. Her teeth get brushed twice a day and sometimes get flossed. Have any of you run into this problem? The dentist...
gandrhotmailcom
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Oct 6, 2005
7:38 pm
4227
Kelly, Jocelyn's gums are generally swollen, too. Our dentist said it was likely due to the flunarizine since it is considered a "calcuim channel blocker",...
Heather
hossanova2000
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Oct 6, 2005
11:26 pm
4228
... My son Max has swollen gums constantly. To the point where they hurt him. His back teeth pocket food terribly because of it. Kelly...
renny01@...
costedio
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Oct 7, 2005
6:11 pm
4229
Nick's has always had swollen gums but I thought it was from the Dilantin. Interesting info. Also, Nick had braces put on last October and his gum growth...
mkderks@...
mkderks
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Oct 7, 2005
7:46 pm
4230
hi all this is Ashleys dad,she has had 13 teeth removed and has several teeth still in her jaw bone upper and lower,her mouth has gaps in the teeth and we r...
MANEEXP@...
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Oct 8, 2005
12:47 am
4231
Hi, Karen I have posted a few times in the past regarding reactions that Alaina has had with antibiotics. Everytime she has been on antibiotics she is hit with...
Jennifer
jejeant
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Oct 8, 2005
1:19 am
4232
I just ttok my son to the dentist 2 weeks ago for a scheduled visit. I mentioned he sometimes has bad breath despite brushing. They (the hygienist) asked if...
JIMMYAHC@...
dennis_kiern...
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Oct 11, 2005
12:21 am
4233
HI Narelle, Joel was on 10 mg per day (5 am, 5pm) at Keely's age, but not long after - changed to 10mg/15mg, alternating days. There have been many times I...
brendals76
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Oct 22, 2005
10:28 am
4234
Hi Narelle, Pauline ( now 3 y.o.) has had flunarizine since she was 12 monts old with a 5 mg/day dose ( 2.5 am and 2.5 pm). We just started upping her dose now...
John Moran
janikay1964
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Oct 22, 2005
2:09 pm
4235
Nous sommes à la recherche d'une famille parlant français depuis 7 années. Notre fille atteinte de HA est maintennat âgée de 8 ans. Faites-nous signe. ...
langevinerik
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Nov 10, 2005
9:30 pm
4236
Hi, my name is Karen Newman and my husbands name is Steve. We have a daughter with AHC. She is 8 and she was diagnosed at 3 months of age. We also have 2...
ashleynichole1997
ashleynichol...
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Nov 10, 2005
9:38 pm
4237
Hi, Karen We are in Kansas City, MO...are you the family that also sees Dr Torkelson at Children's Mercy? We also met at the AHC meeting in Chicago.... Take...
Jennifer
jejeant
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Nov 10, 2005
9:54 pm
4238
... Torkelson ... <> Hi, Jennifer ... <.> ... have a ... age. ... Topeka ... Ashley, ... who...
ashleynichole1997
ashleynichol...
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Nov 11, 2005
1:08 am
4239
Hi Karen and Steve Our daughter is 6yrs old and has AHC and seizures and her speech is significantly delayed. Addie did have behaviors act up particularly at...
popcornkcv@...
popcornkcv
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Nov 11, 2005
1:31 pm
4240
Hi all, this is Dave Ashley's dad just thought Id give an update. She is going to be 17 in Jan, hard to believe,however,she is now ending her first year at...
MANEEXP@...
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Nov 11, 2005
2:01 pm
4241
Hi Karen, I'm Carol and we live in San Jose CA. I too have an 8 year old with AHC and intractable seizures. Carol ... From: afha@yahoogroups.com...
Carol Presunka
sunplace95008
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Nov 11, 2005
4:16 pm
4242
Hi Karen (KS) and Carol (CA), I was hoping to talk with you and compare notes about our children with AHC and seizures. It was clear to me at the BOston mtg...
popcornkcv@...
popcornkcv
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Nov 11, 2005
5:39 pm
4243
... Dave It always sounds like you have such amazing strength. God bless ashley and your family it sounds like you found something that works for you all....
renny01@...
costedio
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Nov 11, 2005
5:41 pm
4244
... particularly at the end of her ... started. ... was in. Her ... fights with brother. ... summer ... classmates (8 other ... Her teacher's ... schedule and...
ashleynichole1997
ashleynichol...
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Nov 11, 2005
9:50 pm
4245
Hi everyone! We need some help dealing with Ashlynn's preschool!!! Ashlynn, 3 years old, has not been to school since the first week of October. We had a few...
jamieangelasparks3
jamieangelas...
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Nov 12, 2005
12:45 am
4246
My suggestion would be to contact PACER. This is a Parent Advocacy group and is based in Minnesota but they can direct you to the appropriate agency in your...
mkderks@...
mkderks
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Nov 12, 2005
2:24 am
4247
Hi Karen and Steve, Just a thought...if you haven't already done this you may want to have Ashley evaluated at some point by a neuropsychologist. The...
popcornkcv@...
popcornkcv
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Nov 12, 2005
2:02 pm
4248
Hi Angela, My 6 yrs old is similar. We have a health care plan. We also have a nurse in her kindergarten who helps in the class after Addie goes home. She...
popcornkcv@...
popcornkcv
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Nov 12, 2005
2:13 pm
4249
PS. I also think the school needs to supply you with compensatory at-home services for the time she is missing if your daughter is in a state with public ...
popcornkcv@...
popcornkcv
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Nov 12, 2005
2:17 pm
4250
... have Ashley ... eval is just ... in the ... services to help with ... with ... diagnose autism. ... with children ... scripting and ... allow the kids ... ...
ashleynichole1997
ashleynichol...
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Nov 12, 2005
2:45 pm
4251
Addie's little events also involve her mouth alot. She also has had lots of meds without responses for over 2-3 hrs. Docs say they are seizures but it does...
popcornkcv@...
popcornkcv
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Nov 12, 2005
5:56 pm
Messages 4222 - 4251 of 7528   Oldest  |  < Older  |  Newer >  |  Newest
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