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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 4144 - 4173 of 7528   Oldest  |  < Older  |  Newer >  |  Newest
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4144
Hi Everybody We're so happy we went to the meeting in Boston we met so many nice people with the same problems and heard so many great ideas . We would like...
Michele
miska1997
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Aug 1, 2005
5:25 pm
4145
Hi Brian Could you please send me your e-mail or phone number .I would like talk to you about the sleep study. Thank you Stan blava0069@... or...
Michele
miska1997
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Aug 1, 2005
6:01 pm
4146
Hi Everyone,this is Dave Ashleys dad,we went tothe NY meeting a few yrs ago but not the boston one,what is new if anything out there in research and ...
MANEEXP@...
Send Email
Aug 1, 2005
6:10 pm
4147
Hi! I attended the Boston meeting over the weekend with my brother, Louis and took lots of photos! I've posted them on the ahc yahoo groups website, here's...
louiesbig_sis
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Aug 1, 2005
7:18 pm
4148
... I loved the photos of boston. greaat Job. Could you please send me the one of Alec and Louis??? Thanks Kelly>Hi!? I attended the Boston meeting over the...
renny01@...
costedio
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Aug 1, 2005
7:41 pm
4149
Clear Dayto whomever posted the photos from the Boston meeting!! It was great to see photos of the other kids. We were unfortunately not able to attend, but,...
Jennifer
jejeant
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Aug 3, 2005
2:23 am
4150
The Boston Meeting was great. Jennie has been talking to Mindy on the phone since they met last weekend. Mindy is telling Jennie that she is going to be...
Marcia Perkins
marcia_perkins
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Aug 7, 2005
4:38 pm
4151
Willem It was so nice meeting you and I really enjoyed looking at the pictures on the dutch website. Please let us know when you have posted more. We didnt'...
Marcia Perkins
marcia_perkins
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Aug 7, 2005
4:44 pm
4152
Nicole, Is it possible for you to send me all the pictures you took in a file to my home email address of mperkins3@...? I would like to load them onto...
Marcia Perkins
marcia_perkins
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Aug 7, 2005
4:47 pm
4153
Hi all, I just wanted to say that it was great to meet everyone at the Boston Meeting. Thank you to Lynn for all her hard work organizing the weekend, It's ...
ADCAR@...
adelelouisc
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Aug 10, 2005
12:47 pm
4154
I finally figured out how to add some pictures of Abbie. Its great to see pictures of all the kids! Wish we could have made it to the Boston meeting -- we...
kathyhurley17
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Aug 10, 2005
5:12 pm
4155
Hi all this is dave Ashleys dad she is 16,I missed the meeting and i was telling ash about the pics that may be out there for us to look at from the boston...
MANEEXP@...
Send Email
Aug 11, 2005
2:25 am
4156
Dave, Just sign into the yahoo group page and click on Photos. Marcia ... From: afha@yahoogroups.com [mailto:afha@yahoogroups.com]On Behalf Of MANEEXP@... ...
Marcia Perkins
marcia_perkins
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Aug 11, 2005
12:12 pm
4157
Click on the link below. If you are not already a member of the group, you will have to join and then you can view the photos as well as all of the messages...
KathHurl@...
Send Email
Aug 11, 2005
12:21 pm
4158
Hi everyone. It was great to meet so many of you at the meeting. Thank you Lynn for all of your hard work and smiles throughout the conference! I just wanted...
gandrhotmailcom
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Aug 12, 2005
12:10 am
4159
Hi, Kelly My daughter, Alaina, is 5 years old and we have always gotten her med through a pharmacy in Canada - Sibelium. I then had a co-worker go to Mexico...
Jennifer
jejeant
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Aug 12, 2005
12:34 am
4160
Hi all,haven't been active for a few months but i've been keeping up with all the messages..We've just moved house and just starting to settle in..Just...
fordnarelle
Offline Send Email
Aug 18, 2005
9:52 am
4161
Hello, there well am sorry to hear that your child as not been so good lately. I also did not attend the Boston Meeting unfortuantely. Well my son Mario now...
thelma salcedo
dat1grl77
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Aug 18, 2005
11:32 pm
4162
Hello from Dallas Texas. We are Chad and Roshell Hawkes, parents of two AHC kids - Alicia (age 15) and Abigail (age 15 months). Alicia was diagnosed 12 years...
Roshell Hawkes
rlanelh
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Aug 19, 2005
3:00 pm
4163
Hi, I know this might sound very simplistic, but is it possible that your daughter may have been experiencing a severe migrain? Migrain would not show up in a...
Hannah Garnet
hannahgarnet
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Aug 20, 2005
12:02 am
4164
hello, this may sound totaly off track. but many many years ago my brother did research on the mind while a person is asleep during a dream . there are...
thelma salcedo
dat1grl77
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Aug 20, 2005
2:55 am
4165
... I've been watching out on the site for an Austalian for local support . We live in Tasmania with a 3 1/2 yr old with AHC. Would like to touch base....
gprand
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Aug 20, 2005
5:02 am
4166
My daughter is 3 and we are so lucky to never have experienced this issue. Good luck with the recovery and we'll say a prayer that this never happens again. ...
Vicky Platt
ahcplatt
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Aug 22, 2005
3:23 pm
4167
This all sounds very familiar to me. could it have been a bilateral ahc attack. or the other a possible seizure. we have had this experience. it is...
Lynda Burnham
lynda.burnham@...
Send Email
Aug 22, 2005
8:20 pm
4168
Note: forwarded message attached. ____________________________________________________ Start your day with Yahoo! - make it your home page ...
kate s
kate_tn41
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Aug 24, 2005
10:53 am
4169
Hi Roshell & Chad, My name is Dana Tasi and I have a 14 year old daughter with AHC. There have been times when Brooke would have a full body episode where she...
Dana Tasi
dtasi@...
Send Email
Aug 26, 2005
10:11 am
4170
Hello This is Mindy mom to Hailey 8yrs. I just had a question to all of you who have older children with those lovely behavioral issues ...do you think you can...
MandM421@...
Send Email
Aug 26, 2005
3:32 pm
4171
My 3 year old daughter just tested for a mild hearing loss. Are there any other kids out there with hearing issues? Vicky Platt Director of Research Willamette...
Vicky Platt
ahcplatt
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Aug 26, 2005
3:59 pm
4172
My son Nick age 15, takes Risperdal and it definitely helps. I think it takes about 3-4 weeks to notice a huge change but it does work. We tried Prozac but...
mkderks@...
mkderks
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Aug 26, 2005
6:11 pm
4173
Hi Mindy, Amanda is 14 and we started having some mild behavior problems between 8 and 10. Then all you know what broke lose. She became very volitale and...
Catherine Mathews
alsemb1234
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Aug 26, 2005
8:35 pm
Messages 4144 - 4173 of 7528   Oldest  |  < Older  |  Newer >  |  Newest
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