Hi Lee Were you able to test for any of these allergens with an allergist or did you figure this out through process of elimiation etc? karen [Non-text...
HI some did show up with and allergist, only a few, the others showed up when we did a big test, if I remember correctly, it was called an encephaly panel a &...
Hi all, after one week back at our 5 mg normal dose of flunarazine Trevor is back to his normal self. We have no more loss of tone, naps are back!!! and his...
Hey I just wanted to tell you about a great company I found! I applyed for a lower mortgage rate and i only had to fill in a simple form. This month alone I...
Hi everyone, more questions for all of you. Trevor is still having problems with this eye deviation. It is one eye at a time deviating slightly inward, if...
Hi Karen, Pauline ( 2 y.o.) also had Nystagmus ( Eye movements ) when she is about to or during her episodes- apparently these are caused Neurologically (...
Karen, our daughter, Jocelyn, 6 1/2 yrs still has the eye deviation. When she was an infant/toddler they would dart (both or one). In the past few yrs we saw...
Karen- Emma, 3 years old, is also experiencing eye pain. She is able to tell me that her eyes hurt, but I am not seeing the deviation you refer to. She has ...
Hi this is Dave Ashley's dad she is now 16, We have experienced this and still do but one of the things she likes is to have a cool cloth placed over her ...
MANEEXP@...
Jul 12, 2005 2:27 pm
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Hi Karen, Sorry to hear Trevor is going through this. Is he off the flunarazine? What is his dose? I only saw this once with Addie and it was when we first...
hi Emily has had this problem on and off for the past year, her episodes have gotten less intense, but the eye deviation has giving her a little more trouble,...
Heather, So when you are seeing the eye deviation and she takes a break it stops?? With Trevor it doesn't seem to get better for a long time, hours or until a...
Ashylnn has eye nystgmus sometimes also. We took her to a pediatric neuro-ophthalmologist when she was 10 months old and her vision is great. When she has...
Jennie is now 18 and doesn't have alot of problems with eye movements anymore. There was much more when she was younger. What we did find out when she was...
Wow!! Marcia! I just read your email and realized that Jennie is 18! I guess it was three years ago that we met you at the Chicago meeting, but, I just...
Karen, yes, it stops after a few minutes to 1/2 hr. She keeps asking my why it does that? She doesn't say it hurts, just bothers her. (she has a pretty high...
Jennifer, I also can't believe she is 18! Age 18 brings on alot of decisions and paperwork - we just completed guardianship and are now working on Social...
Hi, Marcia We feel the same way about Alaina starting Kindergarten. We (especially me) am always wondering if were missing something, etc. I guess those are...
Lee, is there any muscle stregthening exercises or anyway to help the eyes get more strengh so you don't get the painful deviation. It is bad enough to see...
hi Marcia I read in the email, Jennie is at or around 3-4th level in reading, did I understand that correctly, because Emily has gotten to that level and we ...
Lee, Jennie did seem to plateau at this level early on in high school. I guess I just figured that with her IQ level falling in the range of MMI (mildly to...
These are good questions for the neuropsychologist who is presenting at the meeting in Boston, Joshua. I hope his presentation covers these kinds of things...
If there is anyone living in Boston that is able to pick up two tickets to the Boston Red Sox game on Friday night the 29th (vs. the Minnesota Twins) my...
Marcia -- I live in the Boston area. Tickets are very hard to come by... Kathy ... From: Marcia Perkins <marcia.perkins@...> To:...
KathHurl@...
Jul 21, 2005 6:02 pm
4126
Hi Lynn We are still waiting for some form we were spouse to fill out,(answer question).I think it had something to do with the doctors in Boston. Could you...
Hi Zuzana, What kind of form? Can you give me more info? I didn't send anything out and as far as I know, you will fill out all paper work when you have your...
Hi Lynn could be a consent form my husband got a cal last week. Alady maybe a nurse telling him she will e-mail him form to fill out. We don't have any copies...
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