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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 3861 - 3890 of 7524   Oldest  |  < Older  |  Newer >  |  Newest
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3861
Sorry this took so long! I forget to check this website. I will do more often. As far as your questions from this last note. The Tsunami really had no...
aztobkkmorris
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Mar 2, 2005
4:29 am
3862
I understand the feeling of loss for my little girl too, My Emily is getting so big I don't know how to handle it sometimes..But like everything with her I go...
lee
homesofia
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Mar 3, 2005
5:46 pm
3863
Our son is 3 1/2 years old with ahc. He is still not walking independantly. What ages did your children start to walk without any help. Russell and Rebecca...
Rebecca Bushell
bushmar17
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Mar 4, 2005
5:06 am
3864
Hi Rebecca, Are you new to the group? Whereabouts in Victoria do you live? I live in Mitcham, Victoria. My daughter, Laura, has just turned 18. She didn't...
Sakareassen Family
sakareassen_...
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Mar 4, 2005
11:41 am
3865
Hi Rebecca, Joel (almost 3) started walking independently at about 17 mths old - although his balance is very ordinary and his gait just isn't right. All kids...
Brenda Stedman
brendals76
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Mar 4, 2005
12:00 pm
3866
Hi, Alaina started walking independently the week of her 4th birthday. She was very slow and awkward at first (similar to babies when they first start walking)...
Jennifer
jejeant
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Mar 4, 2005
12:35 pm
3867
Our daughter started walking independently at about 1.5 years old. By 2 her gait had narrowed more and she was much steadier. Her gait would widen as she got...
popcornkcv@...
popcornkcv
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Mar 4, 2005
1:02 pm
3868
Rebecca- My 3 year-old daughter started to walk independently when she was 2 ?. She just turned 3 in February. She has worn SMOs, an ankle brace, for the last ...
Vicky Platt
ahcplatt
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Mar 4, 2005
3:43 pm
3869
Rebecca, our daughter, Jocelyn, did not start walking independently until she was 3 1/2, almost 4 yrs old. She did use a Kaye walker to help her until she was...
Heather
hossanova2000
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Mar 4, 2005
4:26 pm
3870
Cameron is 6 1/2 and he is still not walking independently. He is getting MUCH better at walking with less and less support though--- holding hands on either...
joanna_emmons
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Mar 4, 2005
7:37 pm
3871
Mario who will be 3 1/2 in May is still not walking. He received a walker about five months ago and refuses to use it. A walker really benefits children. Mario...
thelma salcedo
dat1grl77
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Mar 4, 2005
10:29 pm
3872
Hi there, Our Pauline ( 2.2 y.o.) has not yet walked independently either, but she already started to stand and tries to walk with support. She has small feet...
janikay1964
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Mar 5, 2005
3:16 am
3873
My 13 year old son started at about that age. I never thought it would happen but it did. The same went for speech. Everything was late but it will likely...
JIMMYAHC@...
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Mar 5, 2005
7:44 pm
3874
Hi, My son was diagnozed as suspected of having AHC a week ago, we started giving him Flunarizine 3 days ago currently 2.5mg (half capsule), we had an episode...
oren_graiver
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Mar 7, 2005
7:10 pm
3875
Oren- Flunarizine has a very long “half-life”. That’s the amount of time it takes for a medication to be at its therapeutic level. I believe I am correct...
Vicky Platt
ahcplatt
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Mar 7, 2005
7:22 pm
3876
Hi Vicky, Thank you for your rapid response. We were suggested to add CoQ10 as supporting vitamin to the treatment. Our son is 3.5 YO, do you have any...
Oren Graiver
oren_graiver
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Mar 7, 2005
7:33 pm
3877
Oren- While I have no experience with CoQ10, some others on the board may be able to provide some insight. Good luck. Vicky ... From: Oren Graiver...
Vicky Platt
ahcplatt
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Mar 7, 2005
7:45 pm
3878
Cameron takes CoQ10 twice a day. I can double check the miligrams when I get home, but it seems to be the standard size chewable tablet. We have not seen any...
joanna_emmons
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Mar 7, 2005
9:06 pm
3879
Hello everybody! I recently wrote to get opinions about growth hormone therapy. As it turns out, the endocrinologist judged that Cameron's growth hormone...
joanna_emmons
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Mar 7, 2005
9:26 pm
3880
Regarding CoQ10 enzyme, my daughter takes 100mg/day of the chewable wafer from Vitaline. This particular brand's product is supposed to cross the blood/brain...
popcornkcv@...
popcornkcv
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Mar 7, 2005
11:30 pm
3881
Hi Joanna, When Addie was very young we had her thyroid tested and her level was normal. Thyroid disease runs in our family and I have taken synthroid or...
popcornkcv@...
popcornkcv
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Mar 7, 2005
11:37 pm
3882
Hello, My daughter ( 2 y.o.)has also started taking flunarizine, but 5 mg. ( 2.5 twice a day). she just started 3 days ago while having an episode- good thing...
janikay1964
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Mar 8, 2005
12:57 am
3883
Hello. This is Hong, Hannah's mother. Hannah started her flunarizine in December the 29th. We started her with 2.5 mg twice a day, then increase to 5 mg twice...
residentswife2003
residentswif...
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Mar 8, 2005
1:49 am
3884
Ashlynn, 2 1/2 years old, was started on Flunarizine when she was 11 months old. We started out with 5 mg once a week and saw no change in that. We then...
Sparky
jamieangelas...
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Mar 8, 2005
3:37 am
3885
Hi Joanna! Ashlynn, my daughter, is taking Synthroid for hypothyroidism. I think that is the same as Levoxyl. Ashlynn, 2 1/2 years old, was diagnosed last...
Sparky
jamieangelas...
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Mar 8, 2005
4:08 am
3886
Hello thelma here, ,my son mario who's 3 was diagnosed with hypothyroidism. He's been on it for about two years. He is also taking Levoxyl. Personally, I have...
thelma salcedo
dat1grl77
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Mar 8, 2005
7:08 am
3887
Based on what my neurologist had informed me. Flunarizine is a slow acting medicine that increases gradually. I was told that it took 5-6 weeks to see if it...
thelma salcedo
dat1grl77
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Mar 8, 2005
7:16 am
3888
Hi, this is Dave Ashleys Dad,she is 16,some ofthis inofrmation is new to me,What is Hypothyroidism,also these drug,Synthroid or Lexoxyl,what do they do to any...
MANEEXP@...
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Mar 8, 2005
12:13 pm
3889
I remember when we started my daughter on the flunarazine she did have some tremoring and som odd eye movement where one eye moved out of sync from the other....
popcornkcv@...
popcornkcv
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Mar 8, 2005
1:14 pm
3890
Has anyone had success with the vagus nerve stimulator with AHC and/or seizures in our group? karen venti [Non-text portions of this message have been removed]...
popcornkcv@...
popcornkcv
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Mar 8, 2005
2:20 pm
Messages 3861 - 3890 of 7524   Oldest  |  < Older  |  Newer >  |  Newest
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