Sorry this took so long! I forget to check this website. I will do more often. As far as your questions from this last note. The Tsunami really had no...
I understand the feeling of loss for my little girl too, My Emily is getting so big I don't know how to handle it sometimes..But like everything with her I go...
Our son is 3 1/2 years old with ahc. He is still not walking independantly. What ages did your children start to walk without any help. Russell and Rebecca...
Hi Rebecca, Are you new to the group? Whereabouts in Victoria do you live? I live in Mitcham, Victoria. My daughter, Laura, has just turned 18. She didn't...
Hi Rebecca, Joel (almost 3) started walking independently at about 17 mths old - although his balance is very ordinary and his gait just isn't right. All kids...
Hi, Alaina started walking independently the week of her 4th birthday. She was very slow and awkward at first (similar to babies when they first start walking)...
Our daughter started walking independently at about 1.5 years old. By 2 her gait had narrowed more and she was much steadier. Her gait would widen as she got...
Rebecca- My 3 year-old daughter started to walk independently when she was 2 ?. She just turned 3 in February. She has worn SMOs, an ankle brace, for the last ...
Rebecca, our daughter, Jocelyn, did not start walking independently until she was 3 1/2, almost 4 yrs old. She did use a Kaye walker to help her until she was...
Cameron is 6 1/2 and he is still not walking independently. He is getting MUCH better at walking with less and less support though--- holding hands on either...
Mario who will be 3 1/2 in May is still not walking. He received a walker about five months ago and refuses to use it. A walker really benefits children. Mario...
Hi there, Our Pauline ( 2.2 y.o.) has not yet walked independently either, but she already started to stand and tries to walk with support. She has small feet...
My 13 year old son started at about that age. I never thought it would happen but it did. The same went for speech. Everything was late but it will likely...
JIMMYAHC@...
Mar 5, 2005 7:44 pm
3874
Hi, My son was diagnozed as suspected of having AHC a week ago, we started giving him Flunarizine 3 days ago currently 2.5mg (half capsule), we had an episode...
Oren- Flunarizine has a very long “half-life”. That’s the amount of time it takes for a medication to be at its therapeutic level. I believe I am correct...
Hi Vicky, Thank you for your rapid response. We were suggested to add CoQ10 as supporting vitamin to the treatment. Our son is 3.5 YO, do you have any...
Cameron takes CoQ10 twice a day. I can double check the miligrams when I get home, but it seems to be the standard size chewable tablet. We have not seen any...
Hello everybody! I recently wrote to get opinions about growth hormone therapy. As it turns out, the endocrinologist judged that Cameron's growth hormone...
Regarding CoQ10 enzyme, my daughter takes 100mg/day of the chewable wafer from Vitaline. This particular brand's product is supposed to cross the blood/brain...
Hi Joanna, When Addie was very young we had her thyroid tested and her level was normal. Thyroid disease runs in our family and I have taken synthroid or...
Hello, My daughter ( 2 y.o.)has also started taking flunarizine, but 5 mg. ( 2.5 twice a day). she just started 3 days ago while having an episode- good thing...
Hello. This is Hong, Hannah's mother. Hannah started her flunarizine in December the 29th. We started her with 2.5 mg twice a day, then increase to 5 mg twice...
Ashlynn, 2 1/2 years old, was started on Flunarizine when she was 11 months old. We started out with 5 mg once a week and saw no change in that. We then...
Hi Joanna! Ashlynn, my daughter, is taking Synthroid for hypothyroidism. I think that is the same as Levoxyl. Ashlynn, 2 1/2 years old, was diagnosed last...
Hello thelma here, ,my son mario who's 3 was diagnosed with hypothyroidism. He's been on it for about two years. He is also taking Levoxyl. Personally, I have...
Based on what my neurologist had informed me. Flunarizine is a slow acting medicine that increases gradually. I was told that it took 5-6 weeks to see if it...
Hi, this is Dave Ashleys Dad,she is 16,some ofthis inofrmation is new to me,What is Hypothyroidism,also these drug,Synthroid or Lexoxyl,what do they do to any...
MANEEXP@...
Mar 8, 2005 12:13 pm
3889
I remember when we started my daughter on the flunarazine she did have some tremoring and som odd eye movement where one eye moved out of sync from the other....
Has anyone had success with the vagus nerve stimulator with AHC and/or seizures in our group? karen venti [Non-text portions of this message have been removed]...