This week I joined the group and am sending my first message. The comments I read earlier were so helpful, I wish I joined years ago. My daughter Emma is 3...
well we have two careers but its not easy.Outside help from special schools and latch key programs that have extended class time till 6 helps,working together...
MANEEXP@...
Feb 1, 2005 2:55 pm
3750
Hi Vicky, I was working part-time in my own consulting business when I had my daughter. Her health issues started so early (3mos) I never made it back to ...
Hi Cassie, we always found that pointing out safety issues were a real home run, ..We found this out in 1st grade, when they lost Emily(in the school bldg) one...
Our daughter, Abbie, is now 15 years old. We are a two career family also. My husband is a police officer and I work in the financial services industry. We...
KathHurl@...
Feb 1, 2005 6:40 pm
3753
Cassie in reading some of the other reply's I also remembered a good one, " in case of a fire she would need supervision to leave the building safely" I am ...
Thank you for your kind words. It certainly does help to know how others make it work every day. Vicky ... From: KathHurl@... [mailto:KathHurl@...] ...
... OK, I'm trying again. For some reason I keep losing my post. Sorry if suddenly there are 5 versions of this reply! I want to share what we do in hopes...
welcome, I am working from home, I help run my husbands business, which affords me flexability when I have to handle Emily's stuff, I did have my own business ...
Today Elie fell as she does every day, for no apparent reason, and injured her leg. The X-Ray didn't show a break, we are supposed to watch it. The doctor...
Hi, Wow! There has been a lot of great discussions on this board recently. Vicky, welcome to our group. I am so glad you found us. My husband, Anthony and I...
Hi, How old is Elie? Does she wear ankle braces? Alaina has worn custom ankle braces since she was about 16 months old. Alaina is 4 years old right now and we...
We are in the beginning stages of a possible AHC diagnosis and of course, I'm terrified about what this may bring to my daughter. Here is our situation: My...
Hi Rebecca. My daughter is 6 months old and may have AHC....can you share some more of your situation with me? My biggest concern is that Kai won't continue to...
Vicky, We are a two working parent family. Jennie, now age 17, was diagnosed at age 6 after, of course, 6 years of misdiagnosis. It has been hard with us...
Interesting you mention the leg pain. Jocelyn was complaining that her knee hurt when she bent down to get something. She was beginning to have a hemi attack...
My daughter would trip and fall alot when she was younger. She got lots of bruises and quite a dent in her forehead once when she fell and hit her head on a...
My daughter Addie is 5 and has 2 cavities. I am wondering what others' experiences are with dentists. Do your kids tend to get cavities easily? How do they...
Hi Dea and Jorge, Your questions are still questions I still ask. My daughter is 5 and 1/2 yrs old and was diagnosed at 2 yrs at Children's Boston. We live...
Hi Karen. Thank you for your quick response. Any information at this point is helpful. It's all so new and scary to us. We don't have a definite diagnosis yet,...
My son Nick is 15 and has only had one cavity -- based on this the AHC hasn't affected his teeth. Nick handles everything pretty well as the dentist goes. I...
hi, When Emily gets into that type of place....I find it helps to get her swimming, low impact, but she still feels like she is moving. She also wore AFO's to...
Hi, This is Lee, my daughter is Emily she is currently 12, we lived in Westchester, NY until recently, where are you located? The only Neurologist I would...
Hi Karen, Jocelyn is just now able to let the dentist look on her mouth. We have gone to a dentist that has a TV above the chair for distraction. We've been...
Hello Lee. This is Dea, mother of Kai. We live in Manhattan. Our current doctor is Dr. Claudia Chiriboga-Klein, with New York Presbyterian Hospital in NYC, of...
hi, Emily had four temporary caps (stainless steel) when she was younger also had soft teeth from not enough fluoride in well water, (we gave her chewable ...
Dea, our 15 year old son starting having episodes very much like you describe your daughter having when he was small. He has what we consider to be a very...
Hi Joan, Can you tell me how long ago it was that you saw Dr Holmes at Children's? He saw us when we were in for a long term eeg study (ended up there 10...
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