Hi Claire, I have added you to the database and you will be receiving a newsletter this month. I may take your husband up on some help with our website. I'll...
Hi Dennis, Happy New Year! I think that if your doctor or any other provider that works with Jimmy wants to join, by all means, let them. I think that while...
Hi everyone, A day late and a dollar short........When Kathleen was about 7-8 years old, I took Kathleen to an endrocronologist/DNA specialist in San...
Hi Carol, I have a new address also: Ms. Glenda Davies, 1 Ronald Street, Mitcham 3132 Victoria Australia Thanks and best wishes for the new year. Glenda...
Hi, Since I coma form Slovenia and nobody except my son has AHC in our country, I would really like to hear from other parents what can we expect and how can...
Barbara, Welcome to the group. I hope that we can all help you with your questions (no question is stupid!). Ask away! All children with AHC are different...
I am Chris Morris, parent of Haley (13) and Caroline (10). Both girls have AHC, and I am just reconnecting with everyone after a year or so. We moved from...
Dear Heather, Thank you for your answer to my e-mail. I am very happy I found this web site and to be able to talk with people that know about AHC. Well to...
Hi Chris. I find it interesting that both your daughters have AHC. I thought that was an impossibility. My son, Wesley, who is 3 years old has AHC. He is on...
Barbara -- I had the same concerns about my daughter when she was your son's age. I didn't think she would ever be able to walk because she was so incredibly...
KathHurl@...
Jan 6, 2005 3:40 pm
3708
hi Welcome back, I have Emily she is 12 and is doing better now that we moved to warmer temperature of SW Florida. How have you and your girls been doing we...
Hi Barbara, My name is Narelle,we live in Australia.My daughter Keely is 13months old.She is mostly sitting by herself but balance is a problem. She is just...
Welcome. Like others have said there is variety in AHC kids. At a blood sampling study in New York City, there was a lot of variety and (help me out Kathy)...
JIMMYAHC@...
Jan 7, 2005 4:34 am
3711
Hello everybody, I am just joining this group. I have a little girl, Cordelia, now 1 year old, how has AHC. We have learn about her disease when she was 7...
Hi Narelle, My name is Cassie and my son is Gus he is 5yrs old and off to big school this year, the reason i am writing is that i am also a fellow Australian...
Quoting kluting1 <kluting1@...>: I think what has helped with Nick in the earlier years was the flexibility of the school. If Nick was having a "bad"...
just a word from dave ashleys dad,she is now 16,let our kinds learn the way to speak on their own,work with them,encourage them,work with thier lip ...
MANEEXP@...
Jan 21, 2005 5:13 am
3716
Congratulations! It took us 7.5 years to take that leap of faith and we had Juliana, (now 5), Emily(12) has benefited tremendously from having a little ...
Its been years since I've responded to these postings, but I thought I'd finally jump back in. My son Greg just turned 14. We ended up having another child,...
Wisyanski, Greg
gwisyanski@...
Jan 21, 2005 5:51 pm
3718
This message is for Greg Wisyanski. You are truly an inspiration to all the parents of AHC children. My son, Wesley, 3 years-old, was diagnosed with AHC 8...
Hi Everyone, Thank You, Thank You for all your responses. Greg you also had me in tears with the memories of Trevor's first few years and I wonder so much...
Emily was thrilled to be a big sister, and she got a button from the hospital that rewarded her with that honor, I had her favorite babysitter come and hang...
Hello karen this is thelma. I thought I wish you the best luck on your new baby. If it's any comfort I know how confused you probably are with the new baby and...
Hi Thelma, Thanks for your reply. It is a very stressful time for us thats for sure however I am very excited about our upcoming new addition I feel it will...
Karen, This is Rebecca, mom to Elie 2. I just gave birth to an apparently healthy baby girl on Wednesday. I have a 3 yr old who is healthy, and Elie's twin...
Hi Karen! My son Cameron is 6 and is starting kindergarten this coming fall. In reading all of the replies to this post, I am struck (as always) by how much...
Hello! My name is Charlotte Kimber and I am an occupational therapist working with a child who has the AHC diagnosis. I am wondering if there is anyone out...
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