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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 3585 - 3614 of 6648   Oldest  |  < Older  |  Newer >  |  Newest
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3585
Hi Rebecca. My name is Laura and my son, Wesley, who is 3 years old, has AHC. He was diagnosed with this just this year. Before that, he was being treated...
LAURA ROTHI
hlrothi
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Nov 1, 2004
3:15 pm
3586
Opportunities such as this do not occur every day. We will refinance your home at a better interest rate. We save people time and money, with our outstanding...
ftawdgptc
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Nov 1, 2004
4:49 pm
3587
My son, Jimmy, will be 13 this winter. He's mainstreamed in 5th grade and is on flunarizine 3x/day and ativan 4x/day. He's been on that dose for years but ...
JIMMYAHC@...
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Nov 1, 2004
10:08 pm
3588
Hi this is Ashleys dad DAve and she is 15-16 in jan.This i just like ash,all the way,its all part of the AHC.acting out is a big problem,some meds work at...
MANEEXP@...
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Nov 1, 2004
10:41 pm
3589
Hello This is Mindy Mom of Hailey 7yrs. I don't get to write much (1 1/2 yr old twins) but I always read. But boy are we having a really hard time with...
MandM421@...
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Nov 2, 2004
6:11 pm
3590
mindy,this is exactly what my wife and I expereinced with ashley and then some.They have no control of themselves,could be anger frustration and something ...
MANEEXP@...
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Nov 2, 2004
6:31 pm
3591
Hi Mindy, I think behavior is a big part of AHC but it is not researched or understood to date. I know another family that is going through similar things...
popcornkcv@...
popcornkcv
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Nov 2, 2004
7:36 pm
3592
Hey guys, I am new to the group and just wanted to say hi! If you would like to check out a pic of me I took yesterday, or talk to me check my profile our over...
Bubiboo
towers3792@...
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Nov 3, 2004
7:56 am
3593
Hi! Ashlynn, 2 years old, has just gotten her wheelchair and I am having problems lifting it in/out of our mini van. My husband and I are looking at...
jamieangelasparks3
jamieangelas...
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Nov 3, 2004
3:21 pm
3594
Hi, this is Pam, Terra's mom. Terra has never had behavior problems that are out of the ordinary. She is 23 now, but even when she was in school her behavior...
psriepenhoff
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Nov 3, 2004
5:28 pm
3595
Pam, Does she or has she ever taken Flunarizine? If so, at what ages? Marcia ... From: psriepenhoff [mailto:psriepenhoff@...] Sent: Wednesday, November...
Marcia Perkins
marcia_perkins
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Nov 3, 2004
5:33 pm
3596
Terra has taken Flunarizine for years. She takes 25 mg a day now. She also takes Lamictal, Amitriptyline for migraines, and 20mg Diastat (Valuim) when needed...
psriepenhoff
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Nov 3, 2004
6:03 pm
3597
Angela, we too are looking at lifts or ramps in vans to get the wheelchair in and out. We have a station wagon now so I break the chair all the way down to put...
Heather
hossanova2000
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Nov 3, 2004
6:23 pm
3598
Hi Mindy, Alex is 7 and we've never experienced what you are going through. He's pretty good natured overall. Good luck to finding a solution. Carol ... ...
Carol Presunka
sunplace95008
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Nov 3, 2004
6:35 pm
3599
In California the Regional Center can assist in lift payments. An acquaintance had a swing lift (the belt came under the chair and an arm came out and "swung"...
Carol Presunka
sunplace95008
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Nov 3, 2004
6:46 pm
3600
We have had 3 different lift vans over the course time. The first we had installed into our Chevy astro van with state funding when Mary was about 4.It was...
pruntys79@...
cprunty79
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Nov 3, 2004
8:28 pm
3601
Mindy, I'm sorry to hear of the behavior issues you are having. We have been having them off and on with Jacob too. Is she acting out all the time? We did...
merido@...
take2xcess
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Nov 4, 2004
2:22 am
3602
Mindy, I can relate to you. I have 2 year old twins (one getting much closer to an official diagnosis of AHC) and a 3 year old, also a baby due in January....
ikeleclaire
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Nov 4, 2004
6:23 pm
3603
Rebecca Ethan (17mo) seems very similar in his ways. We have noticed that he always has to tip his bowl over too. And doors and drawers..he is fascinated...
Claire Rosati
claire_rosati
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Nov 4, 2004
11:25 pm
3604
Cameron loves doors too! Mostly opening them, he seems compelled to open doors all the time, especially the front door. He also likes to swing an open door...
joanna_emmons
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Nov 5, 2004
9:48 pm
3605
Our son David has had major problems with behaviour since he was abour 2. A behaviour therapist has helped us alot. I would reccommend it to anyone with alot...
Deanna Huizing
hourmom2003
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Nov 6, 2004
5:21 am
3606
Deanna, could you say what drugs you have tried re; aggressive/destructive behavior? We have similar problems at time with our 14 year old son. These past...
SJ Law
fengshuiquee...
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Nov 6, 2004
7:39 pm
3607
Hello, Angela I am just curious what the reason was for Ashlynn to have a wheelchair. My daughter is 2 and does not walk , she pulls up to stand and cruises...
residentswife2003
residentswif...
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Nov 9, 2004
12:56 am
3608
hi all My son gus 5 is off to big school next year and we are in the process of school orientation etc which is going great so far (touch wood). Gus and I are...
cassie_dawes
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Nov 9, 2004
6:48 am
3609
Hi Hong! Ashlynn does not walk and has hypotonia also. She has started to stand in the last couple of months and is starting to cruise now. Back in June, we...
Sparky
jamieangelas...
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Nov 9, 2004
11:55 am
3610
Hi Hong! Ashlynn does not walk and has hypotonia also. She has started to stand in the last couple of months and is starting to cruise now. Back in June, we...
Sparky
jamieangelas...
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Nov 9, 2004
11:56 am
3611
Angela, Thanks for the explanation. It sounds like our kids are more alike. Hannah just turn 2 last month. She was very hypotonia, better now, but still not...
residentswife2003
residentswif...
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Nov 9, 2004
1:45 pm
3612
Hi Cassie,this is dave ashleys dad she is 15 now.I had the same thought when she started school.Well adavane,clonaspam,any othe the drugs that get them ...
MANEEXP@...
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Nov 9, 2004
1:52 pm
3613
Hi, this is Pam, Terra's mom. Terra has an adverse reaction to Ativan. She was given it in the emergency room once, and then was admitted and they continued...
psriepenhoff
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Nov 9, 2004
3:00 pm
3614
Joan: We have tried many drugs, most didn't work, and some made him alot worse. The ones taht seemed to make hime worse were Ritalin, clonidine, Zoloft,...
Deanna Huizing
hourmom2003
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Nov 12, 2004
2:12 am
Messages 3585 - 3614 of 6648   Oldest  |  < Older  |  Newer >  |  Newest
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