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afha · This is the Alternating Hemiplegia of Childhood Mailing list for all families affected by this disorder. (http://www.afha.org)
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Messages 3323 - 3352 of 7527   Oldest  |  < Older  |  Newer >  |  Newest
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3323
test...
teddy dumitrescu
teddy_22001
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Sep 8, 2004
8:58 am
3324
All this talk of valium is of interest to me. In the beginning, my 12 yr old Jimmy, took it from about 2 yrs old till about 8 yrs old. It was liquid and ...
JIMMYAHC@...
Send Email
Sep 9, 2004
6:20 pm
3325
Hi Did anyone stuped giving clonazepam and did you see any withdraw symptoms,after stopping. If you did stop clonazepam ,how long did it take ,until the child...
blava
miska1997
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Sep 10, 2004
1:44 am
3326
Dennis, We tried melatonin when our daughter was a toddler for major sleep disruption (before the AHC dx and her Gastro dx). It did not help at all. We just...
Heather
hossanova2000
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Sep 10, 2004
12:44 pm
3327
Has anyone ever researched why the lighting affects our children. Is it the sound the flourescent lights may emit, the brightness, or both. We have tried...
Heather
hossanova2000
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Sep 10, 2004
12:49 pm
3328
Hi, this is AShlkeys dad she is 15,I find its not the lights but all the activity going on,like in a supermarket all the colors products action to much visual...
MANEEXP@...
Send Email
Sep 10, 2004
1:12 pm
3329
When Mary was younger she had trouble sleeping with the leg jerking and muscle spasms. When it was really bad I would give her Benadril, the over the counter ...
pruntys79@...
cprunty79
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Sep 10, 2004
1:18 pm
3330
hi I have always had problems in library's with Emily and we came to the opinion that it was the dust and mold on and in the books. Library's are filled with...
lee
homesofia
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Sep 10, 2004
2:53 pm
3331
Hi Heather, Karen Venti, Addie's mom....I have luck in dept stores with flourescents if addie wears a hat. Still she cannot stay long without an attack or...
popcornkcv@...
popcornkcv
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Sep 10, 2004
4:05 pm
3332
What does she say the wiggles feel like? Jocelyn always gets those with full body attacks and gets the kind where on turns in when she concentrates to hard on...
Heather
hossanova2000
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Sep 10, 2004
7:43 pm
3333
Jocelyn is doing well. She just turned 6 in August. We took a break from preschool in April(after 2 1/2 yrs of it). She went from cyclical attacks every 1...
Heather
hossanova2000
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Sep 10, 2004
7:55 pm
3334
Hi Heather, Addie is in a special ed preschool at age 5yrs. SHe loves going. THis year (week) she is traveling by van to school with a nurse in case of...
popcornkcv@...
popcornkcv
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Sep 10, 2004
9:11 pm
3335
Hi, Karen I ready about your fundraiser...that's great!! I really do wish we were nearby to attend. Are you planning a raffle or anything so that the AHC...
Jennifer
jejeant
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Sep 11, 2004
3:34 am
3336
Hi, Heather! Hope you all had a good summer! I was so happy to read that Jocelyn is improving with your homeschooling! We are trying to potty train Alaina...
Jennifer
jejeant
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Sep 11, 2004
3:47 am
3337
At the fundraiser we have a silent auction but not raffle. The raffles were time consuming but we did raise alot one year through one. We found we have to be...
popcornkcv@...
popcornkcv
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Sep 11, 2004
10:38 am
3338
Heather My daughter Brooke (now age 13) has worn sunglasses when she goes outside and riding in the car since she was 2 years old. I've tried several times ...
Dana Tasi
dtasi@...
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Sep 11, 2004
11:26 am
3339
Jennifer, We had a great Summer. How was yours? Is Alaina in preschool again this year? How's it going? Your post made me laugh! Jocelyn also will say she...
Heather
hossanova2000
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Sep 11, 2004
12:43 pm
3340
I'm so glad Addie likes preschool! That's great that her first week went well! Jocelyn always needed a nap too before or after to get thru the school day. ...
Heather
hossanova2000
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Sep 11, 2004
12:49 pm
3341
Hello, I was wondering how everyone deals with these types of extreme weathers and our children. Most are aware of the Hurricane's that have been hitting...
R Creech
runwild_30
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Sep 11, 2004
9:02 pm
3342
Dana Tasi <dtasi@...> wrote:Heather My daughter Brooke (now age 13) has worn sunglasses when she goes outside and riding in the car since she was 2 years...
John Bowman
bowmanlpcc
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Sep 12, 2004
1:01 pm
3343
Hi everyone. I read all the stuff about valium and other methods of relaxing our kids so that episodes are less severe. I was wondering if any of the kids have...
Wendy Walker
lyxana
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Sep 12, 2004
1:07 pm
3344
Wendy- My daughter, Elizabeth, has been diagnosed with both AHC and dysautonomia. Her respiratory rates, temperature, heart rate,gi motility, pupil size, ...
Wendy Greathouse
iamwendyann
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Sep 12, 2004
2:14 pm
3345
Hi! Ashlynn, 2 years old, has affected breathing also when she has full body paralysis. We have a pulse ox machine we hook her up to. She almost always...
Jamie and Angela Sparks
jamieangelas...
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Sep 12, 2004
6:14 pm
3346
Hi Wendy, I hope you can find some help and answers from this group and with the flunarizine. There is alot of information from the parents on this group and...
popcornkcv@...
popcornkcv
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Sep 12, 2004
9:01 pm
3347
Hi! Ashlynn, 2 years old, has affected breathing also when she has full body paralysis. We have a pulse ox machine we hook her up to. She almost always...
Jamie and Angela Sparks
jamieangelas...
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Sep 13, 2004
2:11 am
3348
Hello, First thinking I would like to say No, Valium has no effect on behaviour. But as it helps to calm her down, it may also have a certain action on...
toullec@...
Send Email
Sep 13, 2004
7:42 am
3349
The periactin is currently a stop-gap measure based on the presumption some have made that AHC is migraine-triggered. As Elizabeth is non-verbal and her pain...
Wendy Greathouse
iamwendyann
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Sep 13, 2004
1:33 pm
3350
hi, Emily says that with the wigglies, her eyes dance back and forth, and it is hard to concentrate, so she looks up or down at one thing and she trys to focus...
lee
homesofia
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Sep 13, 2004
6:10 pm
3351
Thanks for all your responses. I think we'll just stop trying the library. Lee, thanks for asking Emily about the eye movements! Heather ... From: lee To:...
Heather
hossanova2000
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Sep 13, 2004
6:45 pm
3352
Hello everyone! I just want to say hello. My son Cameron is about to turn 6. He has a strong team of people who love him helping us, but I have wanted to...
joanna_emmons
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Sep 13, 2004
8:04 pm
Messages 3323 - 3352 of 7527   Oldest  |  < Older  |  Newer >  |  Newest
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