Carol, I should have also mentioned that Addie does take other meds b/c who knows if it's the combo of meds or her version of AHC/seizures or what. However,...
I was just wondering about the seizures because it sounds like it could be a part of the brain that effects speech or something that seizures could be...
Another thing that typically happens with Addie is she has these seizures and then she doesn't have one for 4-6 weeks (unless she has some type of illness)....
Hello, thank you for replying to my message My daughter is 22 months old, She started with this probably about 14 months old and it was frequent until lately....
HI there, WE have Alex on Clonazepam as well as Phenobarbital now so we fit in the "not helping" category. We tried weaning Alex off Pheno and we too had ...
Clear DayHi, Hope everyone here in the States enjoyed their holiday weekend! I'm hoping some of you can help here.... We are thinking of going to DisneyWorld...
... at times when stress events are here we use a little extra> clonazapam to get her by the stress,it helps,just an extra tablet.good luck-Dave and ash...
MANEEXP@...
Jul 6, 2004 3:52 am
3240
Hi Jennifer This is really the first year we have taken a plane with Em since she was two years old, (12now) We took Jet blue and loved it. it is much easier...
Jennifer, Contact your local Make-a-Wish and request a wish trip for Alaina. You are treated like royalty, get to stay in a special village called Give Kids...
Hi, Marcia. Wow, that sounds great! I did discuss with Alaina's pediatrician the Make-a-Wish foundation and The Dream Factory, but, wanted to wait until Alaina...
I've just had a chance to check my email, first time in several weeks. David(14) HAS also had many word recall problems. His speech is very limited as it is...
Jennifer, WE just went to the park in April with Alex (6). The access passes are a little different now so make sure you bring some proof of a disability. ...
Hi Glenda, My name is Cassie and my son Gus is 5yrs we also live in Australia, Coffs Harbour, NSW. I did get excited when i was going throug previous emails...
Hi Debbie I don't live in the UK, but I have a 12 year old girl Emily with AHC. We live in New York now and are moving to Florida in a few weeks. My best ...
Hi everyone, Does anyone's child vomit when they are stressed or trying to get out of doing something? Our daughter, Jocelyn, has on and off fallen asleep by...
Dear Cassie, I was so pleased to read your email. I apologize for not writing sooner but I have had one of "those" weeks. So Gus is off to big school next...
HI! THIS IS MICHELLE CUSIMANO, NICOLES MOTHER. I WAS WONDERING WHAT THE DOSE WAS FOR THE MAGNESIUM? DO YOU GET BLOOD LEVELS DRAWN AT INTERVALS? ALSO, DOES...
Hi this id Dave Ashley's dad she is 15, ash has always been a great sleeper, but in your case I would look at any and all medication that may effect sleep, any...
MANEEXP@...
Jul 23, 2004 12:21 pm
3254
Hi claire, I'm Cassie and my son is Gus 5yrs old we live down under. I've been reading past letters and here you are I think a gift from god. Can i give you...
Hi Claire My name is Cassie and my son is Gus 5yrs old. I've been reading through past letters and came across yours and I thought how exciting an expert so...
Hi Michelle, I just give Laura one tablet per day of Magnesium complete. They come in a container of 100 and are available from Health Food stores. No... I...
HI all, I am interested to know if anyone has noticed any benefits with either a Chiropractor or Kinesiologist?? I understand there are no miracle cures for...
Hi Brenda, We used to take Mary (now 18) to the chiropractor. We stopped about 6 years ago when we moved, but I wish we hadn't. I don't think that it had any...
Hi Brenda and Joel, my names Debbie Thomason, my daughter Bethany is now 4 but when she was a baby she had a lot of problems eating. I struggled with weaning...
When Ryan was young, we tried Reflexology and at one time a chiropractor. My advise is save your money, and don't risk your child's health. I don't trust them,...
Hi Brenda, You may want to see someone who specializes in eating/swallowing. When Addie was young, early intervention recommended it. they can work with Joel...
Brenda: My son David(14) used to have alot of touble swallowing as well. It has gotten better with age, but still has problems before during and for a while...
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