Hello This is Mindy mother of Hailey 3 years 9 months just have a question for anyone who can answer.we started potty traing Hailey a few days ago........what...
Hi Rebecca, I am trying to remeber back a few years but I believe when Trevor was younger we would see the crunchy joints a lot more. Even now in a bad week...
Hi, your doctors should read all of the information about the medications other kids are on and consult with doctors who have some idea about this disorder....
Hey it's me again. I am having a hard time finding information on this that I understand. My daughter was evaluated for therapy yesterday and they found she...
Hi all, Well Ashley is 14,Ive been reading all of the stories about joints and there problems. When the muscle tone is low everything occurs, its not a joint...
Hi Claire here. I just joined today. I live in New Zealand and I have ahc. I am 19 years old and I would like to hear from anyone else with this condition....
Hi Michelle, We set up a special needs trust, redid our wills and set up powers of attorneya nd health proxies. Typically you fund the SNT with whole life...
Hi Dave. Lynda Burnham here. Our Leslie was put into a residential school at exactly the same age as Ashley. We were having major behaviour problems at home....
Hi! Everyone, This is Michelle Cusimano, Nicole's mom. I haven't written in a while but I been reading the messages regularly. I was just wondering if anyone...
Jennie's legs can lock straight up when she is laying down or sitting in her wheelchair. We consider this Dystonia. I have learned that wherever she is hit...
I just made a discovery last night that I have been wondering about for a year. Elie was up all night with a croupy cough and just as she would start to dose...
Hi this is Dave again,Ashleys dad. Thank you so much for the words of support. Yes, it is a hard decision but it is for Ashley and her future. Where do u live?...
Dear Dave: You are really fortunate to have such a school so close to home. Where I live we have a 10 hour drive to the nearest one. We obviously have not...
Hi, this is Dave Ashley's dad, she is 15 now and has always had a gate to her walk, shoulders turned down and her head, knees almost together, she does not ...
Hi rebecca I read your email and my heart goes out to you. I remember all the confusion this condition/disease brings on. Those days are only to clear still....
Hi everyone, this is Dave Ashley's dad she is now 15. Through the years we have been looking for a behavior plan at our school.she has been there almost 4 ...
My 12 year old son sees Dr. Rust at UVA in Charlottesville. We used to see a Dr. Meyer at MCV (Medical College of Virginia) in Richmond but coming from my ...
Hi everyone! My daughter, Ashlynn, has AHC and we just found out we are moving to Virginia. Does anyone live in the area Richmond to D.C.? If anyone does,...
I live in Canada and in our city we were able to get a grant for a snoozelen room from Ronald MacDonald House. I do believe this charity is also in the US....
My children's school is planning to apply for grants for arts and sports. I am going to be working on the grants, and I would like to see the school apply for...
Hi Rebecca, My daughter Addie, now 4.5 yrs. old, had 2 winters where she caught cold then stomach flu then cold then flu until she just was exhausted. She...
Hey everyone, Sorry if I am driving you nuts with questions. From looking at the archive I saw the need for IV fluids alot. Elie is now on her 3rd stomach...
Hi, the is Dave again, I feel like IM getting to know you lol.I would go to see the Dr. in Detroit,call and see if he wants your records to this point, also is...
Hi, its Dave. What about meds,is your child on any and as far as AHC, sounds like it to me.meds I use to think were not the answer but the give the kids relief...
I'm in Virginia and the school systems vary on inclusion and the amount of emphasis on kids with special problems. Some areas are just cheap and won't spend...
Hi All, Gus is 5 and is attending a early intervention program at present to get him ready for school next year. I'm concerned that he might miss alot of...
Hi Cassie, I have just read your e-mail and thought I would write and let you know about Laura. Laura keeps a wheelchair at school and only uses it on days...
BlankHi all: Just wanted to ask if anyone lives in Florida? any info on how the schools and services run there? We are moving to Cape Coral from NY, ( we...
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