I'm in Virginia and the school systems vary on inclusion and the amount of emphasis on kids with special problems. Some areas are just cheap and won't spend...
JIMMYAHC@...
Apr 2, 2004 5:45 am
3094
Thanks Dave. We are in Grand Rapids, MI. Dr. Chugani from Detroit has seen her and I would be willing to drive the 2 1/2 hours to see him, I also think I...
Hi, the is Dave again, I feel like IM getting to know you lol.I would go to see the Dr. in Detroit,call and see if he wants your records to this point, also is...
MANEEXP@...
Apr 2, 2004 11:54 pm
3096
Hey everyone, Sorry if I am driving you nuts with questions. From looking at the archive I saw the need for IV fluids alot. Elie is now on her 3rd stomach...
Hi Rebecca, My daughter Addie, now 4.5 yrs. old, had 2 winters where she caught cold then stomach flu then cold then flu until she just was exhausted. She...
My children's school is planning to apply for grants for arts and sports. I am going to be working on the grants, and I would like to see the school apply for...
I live in Canada and in our city we were able to get a grant for a snoozelen room from Ronald MacDonald House. I do believe this charity is also in the US....
... snoozelen ... also in the ... Thanks! That is one of the ones I've been looking at now. They only give small grants, of $1,000-5,000. But I also found...
Hi Lynn, This playground idea is great. I don't know of any grants but will ask and look around. Who made/designed the playground in your town that has some...
Karen, If you would like, I could take some pictures with my digital camera and email them to you. I don't know the name of the company, but I could try to...
Wow Lynne, Thanks for all this information. You really gave me some great places to start. Addie still doesn't tolerate outdoors very well but we keep hoping...
... places to ... someday. ... up during ... First, I got a couple of links that look very helpful: http://www.rctc.com/sultrrcd/grant.html This one lists...
Hi everyone! My daughter, Ashlynn, has AHC and we just found out we are moving to Virginia. Does anyone live in the area Richmond to D.C.? If anyone does,...
My 12 year old son sees Dr. Rust at UVA in Charlottesville. We used to see a Dr. Meyer at MCV (Medical College of Virginia) in Richmond but coming from my ...
JIMMYAHC@...
Apr 11, 2004 4:27 pm
3107
Thanks for the information! Did you like Dr. Meyer? Did he listen and understand AHC? Richmond would be feasible to us to drive. My in-laws live there....
Hi everyone, this is Dave Ashley's dad she is now 15. Through the years we have been looking for a behavior plan at our school.she has been there almost 4 ...
MANEEXP@...
Apr 24, 2004 7:51 pm
3109
Hi Dave. Lynda Burnham here. Our Leslie was put into a residential school at exactly the same age as Ashley. We were having major behaviour problems at home....
Lynda Burnham
lynda.burnham@...
Apr 26, 2004 8:04 pm
3110
Hi it's Rebecca again, I have an appointment with both neurologist's on May 7th to discuss Elie's symptoms and whether it matches up with AHC. She has been...
Hi rebecca I read your email and my heart goes out to you. I remember all the confusion this condition/disease brings on. Those days are only to clear still....
Lynda -- how old is your daughter now? What was her age when she first moved in to the residential school and then on to the home? Kathy [Non-text portions of...
KathHurl@...
Apr 29, 2004 5:24 pm
3113
Hey it's me again. I am having a hard time finding information on this that I understand. My daughter was evaluated for therapy yesterday and they found she...
Hi, this is Dave Ashley's dad, she is 15 now and has always had a gate to her walk, shoulders turned down and her head, knees almost together, she does not ...
MANEEXP@...
Apr 29, 2004 8:56 pm
3115
Hi, Rebecca. I know you are probably reeling from all the information being thrown at you. Our daughter, Alaina, is 4 years old and it is still baffling to us...
Thank you, once again you all were so helpful. I am at a point where I feel I want to pretend this isn't happening, but once again I see I can't ignore...
Dear Dave: You are really fortunate to have such a school so close to home. Where I live we have a 10 hour drive to the nearest one. We obviously have not...
Hi this is Dave again,Ashleys dad. Thank you so much for the words of support. Yes, it is a hard decision but it is for Ashley and her future. Where do u live?...
MANEEXP@...
May 1, 2004 5:13 pm
3119
I just made a discovery last night that I have been wondering about for a year. Elie was up all night with a croupy cough and just as she would start to dose...
Jennie's legs can lock straight up when she is laying down or sitting in her wheelchair. We consider this Dystonia. I have learned that wherever she is hit...
Marcia, That is really interesting. There have been times that I have applied pressure to her shoulder when her shoulder and ear lock together and it seems I...
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