I have a 19 month old, Ashlynn, that has pneumonia. She was hospitalized a couple of days this week. She kept having eye nystimgus, which usually means that...
Hi Angela: Yes, I have seen this very frequently. My Leslie is now a grand total of 40 years, so there is little I have not seen. After a seizure, she can...
Lynda Burnham
lynda.burnham@...
Mar 6, 2004 11:22 pm
3048
Hi Angela, My son Alex, now 6 years old got a really bad bout of the flu when he was about 2 1/2 years old. He couldn't eat for 5 days. The result was a...
My son Nick is 14 years old and from what I have experienced, this is quite normal. Nick usually regained his skills in about three days to a week. Pneumonia...
Mkderks@...
Mar 8, 2004 4:15 am
3050
Hi all, Just one quick question, were all these episodes of loss of use, during the use of Antibiotics, or before during the virus, illness, etc.? Emily's only...
Hi: Leslie's loss of mobility was always after a seizure or a very severe AHC episode. She has been on antibiotics without incident, except two years ago,...
Lynda Burnham
lynda.burnham@...
Mar 9, 2004 12:24 am
3052
We've never had Alex on antibiotics so I can't blame the meds. Carol ... From: Lynda Burnham [mailto:lynda.burnham@...] Sent: Monday, March 08, 2004...
Hi all: David has had total loss of his abilities on several occassions. None seemed related to antibiotics, but always after a severe and prolonged AHC...
hi Deanna, Emily still has that problem after an extended episode, her regular routine is once a day in the AM. if is notice she misses one day, I give her a ...
Mary has always had this constipation problem. We, for years, used glycerin suppositories every 2 days. And the last couple years have used Dulcolax ...
Hi Deanna, it sounds to me like there is something missing here. Is he on meds and what? What is his age? My daughter had spell like that but the meds slowed...
MANEEXP@...
Mar 11, 2004 6:58 pm
3058
Addie has become constipated alot more often and easily over the last year. She is 4.5 yrs old. I find at the earliest signs of a cold she can start to have...
Hello, My 18 month old had been diagnosed with epilepsy at 7 months, but now after a VEEG showing no seizures with her spells, and talking to a very experinced...
Rebecca, Alot of what you describe sounds very familiar with most AHC kids although they all have their differences. I have never heard of an MRI diagnosing...
It is Dr Chugani out of Detroit, I see he is a contributor to the foundation in research, so that makes me feel better if it does turn out to be that. So are...
Dr. Chugani is a familiar name, we've just never seen him. He should be able to help you diagnose her, has he mentioned AHC or did you find this on the web...
Hi: Constipation is a big time problem with Leslie as well. She is now on Sannetab twice daily and if needed Lactulose in the afternoon as well. Things have...
Lynda Burnham
lynda.burnham@...
Mar 11, 2004 9:49 pm
3064
Hi, this is Dave Ashley's dad she is 15 yrs now. The problem is that there is so little known and tests really don't show the problem of AHC.ash has had them...
MANEEXP@...
Mar 11, 2004 10:02 pm
3065
Yes, it has been confusing because she had two EEG's that were abnormal showing a positictal state and one that was normal before the VEEG. But, I just found...
Hi Rebecca: Have you had a chance to read some of the historical emails from the group website? That might be the best source of information about what our...
Hi, I hope everyone is doing well. Is there going to be a USA conference this year for the AHC families? Is there a time/location, etc. Anthony, Alaina, and I...
Hello Jennifer, We will not be having a meeting this year. We will be planning for next year and will know the time and location by mid summer. I hope that...
Hi, we are supposed to be moving to San Francisco in the summer and I wondered could anyone help me with the education process or where I should start. We...
thankyou all who responded to my request for info about constipation. All very good ideas and we will have to experiment to see what works for david. ...
I have searched the archives and didn't find anything. I am still waiting on a diagnosis on Elie. Her MRI was normal, thank God! But she continues to have...
Hi, Emily does have what we call muscle spasms in the trunk area, it makes her wriggle front and back and side to side, her eye lids always stay open a crack...
Hi All, Gus is 5 and is attending a early intervention program at present to get him ready for school next year. I'm concerned that he might miss alot of...
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